At the European Parliament: Domestic violence against people with disability
Sisters of Frida was asked to speak at an event hosted by Soraya Post MEP on Domestic violence against disabled people by the European Network of Independent Living (ENIL) on the 31st January 2017. Here is the speech from Eleanor Lisney ( a summarised version was given as the meeting ran out of time)
Having support for independent living is one of the fundamental needs of disabled people and the structural barriers of being able to exercise our rights is in our battles with social services, schools, higher education, housing, stigmas and discrimination and ableism.
Embla and Freyja were giving their testimonies on behalf ofÂ the next day on domestic violence against disabled people. Here is their speech for TabĂș.
It is clear that a new definition of domestic violence in itself will not solve the social situation of disabled women and end domestic violence against us. That does not change the fact that by redefining domestic violence legally and in policy can change, for the better, the practices of the police, legal system, social services and violence support networks. Changing the definition does not have to shadow the gender-based approach, it should enrich it. This should not have to exclude tackling of other forms of violence, e.g. institutional violence and hate crime. More so it could draw upon the multiple and concurrent forms of violence that should be beneficial to disabled women and service systems. It could deepen the understanding of which kind of violence affects or actuate other kinds of violence as well as offering a better ground to analyse how structures and cultures encourage and minimize abuse in the lives of disabled women.”
We also met up with all four of the Disabled Survivors Unite co-founders from the UK – Alice Kirkby, Ashley Stephens, Holly Scott-Gardner andÂ Bekki Smiddy. Here is their blog of the day with a audio recording and transcript. There was much appreciation of their testimonies.
John Pring of Disability News Service wrote the articleÂ ‘Cuts mean government âis complicit in high levels of domestic violenceâ on their appearance.
Ana PelĂĄez, the Chair of the European Disability Forum (EDF) Womenâs Committee and a member of its Executive Committee spoke on the structual problems faced by disabled women and girls
So the first thing we need to say is that violence against women and girls with disabilities is structural violence that arises from the mere fact that when we talk about their specific situation they are not recognised as women or girls. This non-recognition means they are excluded from policies aimed at providing assistance and recovery for women victims of violence. (Another related topic is the accessibility of these services, but today we donât have time to go into this.)
A second structural aspect of violence against women and girls with disabilities is that in many cases they are victims of legal incapacitation which takes place due to their gender. This incapacitation is part of the process to enable these women to be subjected to forced sterilisation without their consent, or without their realising what is being done to them. This practise is another type of domestic violence in some ways, because it is the families who, in violation of the CRPD and even article 39 of the Istanbul Convention, choose to sterilise their daughters to protect them against unwanted pregnancies. I donât mean to blame the families; they are also victims of the healthcare system, which very often suggests this type of practise. Sterilising a woman means mutilating not only her reproductive capacity, but also her civil, political and economic rights. In addition, the only thing sterilisation achieves is to leave girls and women with disabilities even more exposed to sexual abuse and rape. Even worse, they are also unable to access justice to report the perpetrators or seek remedies, because they have been deprived of their legal capacity.
Here is the Ana PelĂĄez EPÂ (Word doc) speech in full that she kindly send us.
It was wonderful to meet Madelen LĂ¶w from We Rise Again (Sweden) who spoke her powerful testimony
People who were involved with the event spoke of their willingness to have further collaboration on the topic – we hope so! We will continue to follow the discussions. There was much mention of the Istanbul Convention that we hope will be ratified soon by the UK.
More photos from the event at Flickr account
Joining the Women’s March London Saturday 21st January
Sisters of Frida are happy to march with theÂ Women Equality Party on Saturday. they are supporting us including helping with access needs so that we are able to march together.
They will have volunteers ready to support people with access needs on the day. If you need to contact us here is the mobile number you can contact 07453528706 – it might be better to text.
you can also contact us through twitter @sisofrida
see the access information provided by the organisers
And from the WEP
Getting there and getting away
- Roads will be closed from noon to 17:00, so we suggest that you plan for delays if you are expecting to rely on buses or taxis
- If you are traveling by tube please be advised that Green Park is the only nearby station that is fully accessible. Â If buses are off this may mean you need to make your own way to Green Park tube station, which is slightly under a mile from Trafalgar Square
- Please note that the Jubilee line will be closed on the day.
Buses (likely to be disrupted between 12noon and 5pm)
- To reach Grosvenor Square (stops along Oxford Street near Bond Street Station): 6,7,10,13,23,73,94,98,137,139,159,189,390
- To reach Park Lane: 2,10,16,36,73,74,82,137,148,414,436
- To reach Green Park (stops along Piccadilly): C2,9,14,19,22,38
At the start
WE volunteers will be located at both drop-off points and can help guide you to the starting points, and we will also have a volunteer who can accompany you on the shorter march route if you wish
If you think you might need support, please make yourself known to a WE volunteer before the start. Â We will be wearing a WE logo card on a lanyard so that you can identify us
During the march
Our volunteers on hand to help if you need any support and people at the back of our block looking out for anyone who needs some help
If you would like someone to buddy you on the march, just let us know.
And if you’re unable to march on Saturday?Â
Not sure you can get into the Houses of Parliament on a Saturday to use the toilet.
Marchers taking the shorter route from Pall Mall
There is a shorter route joining the march from Pall Mall, and you are welcome to join the WE/Sisters of Frida block from this point. There will be a WE/Sisters of Frida point person at Pall Mall with a banner. The organisers have let us know that there are drop off points for people joining the march onÂ Pall MallÂ from the north, at the bottom of Regent Street; from the south,Â Waterloo Place. There will be access stewards with green placards here. It is recommended that you arrive by 1.20pm to join the procession.
We hope you will join us – bring your family, childen, pets,Â friends, PAs, support workers. We might not be many but we will be seen. But please self care is important, we totally understand if you cannot join the march.
Send us your photo – a very short message and we will tweet it during the march! on twitter or to firstname.lastname@example.org
Disability and sexuality film day: Sat 26 Nov, Islington, London
After the 4 workshops on disability and sexuality, Sisters of Frida is presenting films which explore themes of disability and sexuality.
Films to make you:Â Think, feel, laugh, shake, desire and moreâŠ..
With food and discussion
Please note the films contain controversial themes, they also contain scenes of nudity and frank explicit discussion of sexual acts and sexual desire as well as scenes depicting violence.
Date and Time
Sat 26 November 2016, 12:00 â 17:00 GMT
Disability Action In Islington, unit 3 Marquess Estate
St Paul’s Road, London N1 2SY
Please register at the event briteÂ or write to email@example.com
(A rebellious young woman with cerebral palsy leaves her home in India to study in New York, unexpectedlyfalls in love, and embarks on an exhilarating journey of self-discovery.
With Kalki Koechlin, Revathy, Sayani Gupta)
and Sins Invalid
(“Sins Invalid is a performance project on disability and sexuality that incubates and celebrates artists with disabilities, centralizing artists of color and queer and gender-variant artists as communities who have been historically marginalized from social discourse”)
Please register at the event briteÂ
or write to firstname.lastname@example.orgÂ
Eleanor Lisney: Disability and Sexuality workshops
Last night one of my new colleagues expressed surprise on Â mention of my children â she said she had no idea I had children. She did not mean it to be malicious but the fact I have children prove surprising to most folks. I think, to be brutally honest, most people do not expect disabled people to be sexual beings let alone have offspring.
And for disabled women it is doubly problematic. Consider the stereotype of being a woman âas a caregiver, as a sex object, mother, housekeeper â you get the picture? Many of those roles are not seen to be within the capacity of disabled women. All the media, films of disability and sexuality are from the perspective of disabled men where they have their needs fulfilled by non-disabled women. Examples, Me Before You (even if he did not think it was enough to keep him living), The Sessions, there not many based on the needs of disabled women (excluding Children of a Lesser God).
There is not much space afforded to disabled women on sexuality and how to factor in disability in the search for companionship, romance, relationships and sex. The narratives are missing. I was made aware how much so when I joined the group of women who went to the first workshop (there are a series of four workshops) lead by Sisters of Frida steering group members, Lani Parker and Dyi Huijg, on Dis/ability and Sexuality. This workshop was titled Crip Sex, Because We Want It Our Way
As disabled women we have a wide range of experiences, positive and negative, around disability, sex and sexuality. Disabled women are sexy, sexual, passionate, loving, caring, desirable, hot, beautiful, strong and much more! Our experiences of sexuality are also affected by different kinds of oppressions such as ableism, racism, sexism, heteronormativity, classism and age.
In this workshop we will explore what sex means for us as disabled women, non-normative sex, positive self-image, exploring sex alone and sex with others
I felt we really shared our experiences as disabled women intersected by faith, culture, and sexual orientation. We examined the differences with impairments, acquired and from a young age, we spoke about chronic illnesses, the barriers and effects of medication and age. Does sex alleviate pain, do we/should we have sex when we are in pain? We compared the attitudes of social workers, medical practitioners and partners â in and out of relationships, domestic abuse from families, society and community pressures.
I cannot wait for the next session. I hope more people will come to visit this wonderful space where we afford each other sisterhood and non-judgemental sharing.
Themes and dates of the workshops
Workshop 1: Crip Sex, Because We Want It Our Way (finished)
In this workshop we will explore what sex means for us as disabled women, non-normative sex, positive self-image, exploring sex alone and sex with others.
Date: Sat 30 July
Workshop 2: When It Doesnât Feel Good and It Isnât Right
In this workshop we will discuss negative experiences and difficulties we have around sex and sexuality, our boundaries, consent, privacy and ableism in relationships.
Date: Sat 27 Aug
Workshop 3: Disabled Desire: Sexy and Sensual Possibilities
In this workshop we will discuss positive experiences we have and want to have around sex and sexuality, pleasure, and what it means to desire and be desired.
Date: Sat 17 Sept
Workshop 4: Sex: Getting What You Want and Need
Here we will build on the other workshops, and discuss how to develop confidence and feel empowered to do and want sex differently, challenge internalised oppression and other obstacles, and talk about how to put our desires and needs into practice.
Date: Sat 22 Oct
this project was funded by
Eleanor Lisney is a founder member and coordinator of Sisters of Frida. She is an access advisor, an NUJ member on the New Media Industrial Council and the Equality Council. She is also on the British Council Disability Advisory Panel and the web team of the International Network of Women with Disabilities.
End panel Brexit discussion
SISTERS FRIDA â DISABLED WOMENâS VOICES FROM THE FRONTLINE
Blackfriars Settlement 9 July 2016
END PANEL DISCUSSION
Panel: Kirsten Hearn, Miss Jacqui, Pauline Latchen, Eleanor Lisney, Becky Olaniyi,
Jagoda Risteska, Jasmina Risteska, Annabel Crowley
Contributers: Michelle Daley, Dyi,
Eleanor introduced an update from Dyi. The Disability and Sexuality project that Djy
and Lani have piloted with an initial meeting last autumn has now got funding to go
ahead. The next meeting will be in July at the New Union Church Hall and thereafter
every month. The project will provide a safe space to discuss issues around
disability and sexuality. More information and details are listed on the Sisters of
Annabel noted that the day had involved lots of interesting and powerful
conversations. The Brexit vote had provided a focus for discussion: the situation
was already difficult before we faced leaving the European Union and things will be
likely to get more difficult: now is the time to make sure we have a voice.
Eleanor commented that if she had not been at this event, she would have been at
Conway Hall to support a rally of Black Activists Against Racism to protest against
spending cuts. As she was unable to attend that rally, Eleanor had written a letter of
support and solidarity which she read out.
Annabel asked everyone what were their concerns in the light of Brexit.
Becky said that she felt there was not a lot of clear information about Brexit,
especially for young people; they should have had an opportunity to contribute and
make decisions. Older people believed that leaving the EU would mean that the
money saved would be paid into the NHS etc. Young people had mainly voted to
remain in the EU but were not really clear why â and people needed to be clear
Dyi raised the issue of being an EU citizen living in the UK going forward. We need
to think about the reality of that situation, for example in relation to peopleâs status
with the NHS. This is a real issue for EU citizens in the UK who rely on the NHS â
though of course it may be different for those who donât. However, Dyi pointed out,
there is also a lot of inequality in relation to healthcare within the rest of the EU.
Annabel asked if Dyi would be looking for wider consultation with EU migrants to
have more information about the implications of Brexit for them. Dyi replied that she
is looking into the legal implications and building up an information bank on relevant
services as a resource which she will be happy to share with others.
Michelle said that we donât know what the future will look like. She had voted to
remain in the EU, and there was not, had not been, enough information about what
Brexit would look like, or how our lives will be changed by it.
Kirsten said that the whole Brexit campaign had been based on lies, especially about
the NHS and migration. Secondly, all the years of austerity have influenced people,
especially poorer people: these people see migrants and refugees as competing with
them for jobs, services and benefits and these myths are further spread by
politicians, who paint migrants as lazy scroungers. Migrants enrich our country,
however, and it is not true that all migrants come to Britain to claim benefits rather
than to work. Kirsten said that in her local community there has been an increase in
racial hate crime and that the referendum result is advisory rather than mandatory
and parliament should act accordingly. The government should now consider what
things can stay the same and what should change: for example things like
wheelchair spaces on buses and braille labelling, these sorts of things should stay.
Michelle said that when her parents came to the UK, there were signs in public
spaces saying âNo dogs, no Irish, no Blacksâ and we are going back to those days
and with the same discrimination against disabled people.
Miss Jacqui said that the people who had voted to leave didnât really know what they
were voting for. Whatever political party is in power, disabled people â disabled
women especially, will be at the bottom of the agenda. Politicians donât consider
that the decisions they make now will still affect us in ten yearsâ time. Starting a new
political party is the only solution. She was not happy with David Cameron as prime
minister but is not happy at what may follow his resignation. We need to find and
develop our voice and consider where does it feel safe to talk.
Becky said so many politicians are leaving their jobs, and Michelle said it was their
job to have a plan (going forward). Becky said politicians exist in a bubble, all this
doesnât affect them, they donât think: itâs about the money they can make, the secret
deals and they only think about what affects them. Kirsten said she felt quite
Annabel said we do have voices however we express ourselves. How do we build
and expand on safe spaces to express ourselves? Kirsten said that we need to talk
to the communities that voted for Brexit, especially poor people, people who are
alienated. She is trying to talk to people in her street who voted leave, to try to
understand why they did â we havenât listened to them in the past. One issue is
employment: people going for jobs, not that skilled, which go to migrants: âTheyâre
taking our jobsâ. That, and well qualified people paid low wages for jobs theyâre over-
qualified for and all the time the right-wing press reinforce the view that migrants are
Dyi said that there is a history of colonialism, racism and imperialism and we should
consider what Sisters of Frida can do to support each other. Annabel said we should
consider what resources â communities and spaces â we can build on and share.
Pauline said that wages are being driven down but itâs not the fault of migrant
workers: low wages here are better than whatâs on offer in their own countries. We
should blame the government and business owners, not the migrants. Miss Jacqui
said that some people are really picky about what jobs they will take: if you really
want a job youâll take anything, you will find a job. Blaming migrants is just an
excuse. Michelle said the government is using a tactic of divide, rule and conquer
and what happened in the referendum is just history repeating itself.
In conclusion, Annabel said the discussion could continue on line: this is one way we
can add disabled womenâs voices to the discussion. Maybe there could be a Brexit
forum page on the SOF website; a lot of disability rights have come from the EU and
therefore the discussion could link in disabled friends in Europe.
All present were invited to pass on their email addresses to receive further updates.
#disabledwomenvoice and a statement on post Brexit
While we had our event Disabled Women Voices from the Frontline event today at Blackfriars Settlement, we found out that there was another meeting in Conway Hall –Â BREXIT, Racism and XenophobiaÂ Â to discuss the impact of the referendum vote on BAME communities across the UK organised by The Monitoring Group –Â some of us would have liked to be there.
We prepared our own response with a message and we had a panel discussion on the Brexit impact on disabled women which was passionate and we came to a conclusion of continuing the discussion.
Here is the message
We would like to send a message of solidarity to this meeting as we are holding our own event at Blackfriars Settlement Disabled Women Voices from the Frontline.
Sisters of Frida (SOF) is a disabled women’s collective. We are a collective for allÂ self-identified disabled women, and we are committed to an intersectional perspective on our day to day realities.
Sisters of Frida condemns the increase in racist attacks after the Referendum and is concerned how these attacks and Brexit affect disabled women, Â particularly disabled women of colour.
We are concerned about how dis/ableism, sexism, racism, homophobia, xenophobia and Islamophobia affect disabled women. As part of the disabled community, we have seen a rise in disability hate crime in recent years too.
Sisters of Frida is worried how disabled women of colour and European migrants have become pawns in the current political situation and are facing multiple discrimination and exclusion.
We are concerned about how Brexit and the conversations after Brexit are scapegoating thoseÂ reliant on the NHS and other health related and welfare support and benefits.
We are also concerned how disabled people are portrayed and treated. As Sisters of Frida, we are particularly concerned about how Brexit affects disabled women in the UK who are EU nationals. We are disquiet how this affects British and non-EU migrant disabled people in the UK, particularly those of people of colour, Muslim, LGBT and European communities. We are also worried by the impact on disabled people who rely on migrant workers to support their independent livingand how Brexit would exacerbate austerity cuts.
We hope your meeting will be fruitful. Let us unite in working together in moving forward towards a fair and just society, with an inclusive, supportive and safe environment in the future.
Unity is strength!
Some of the photos from today’s event Â – more photos and video to come later.
Women representatives on the new CRPD Committee – where are they?
posted to Rt Hon Nicky Morgan MP (UK), UN Enable, UN Women, International Disability Alliance,
Office of the United Nations High Commissioner for Human Rights
23 rd June 2016
Dear Rt Hon Nicky Morgan MP (UK) and other concerned parties,
We write as the only collective of women with disabilities in the UK to express our serious disappointment that the new composition of the Committee on the Rights of Persons with Disabilities (CRPD), which is specifically a convention on and for disabled people, will have only one woman representative.
We are joined by our deep disappointment and concern by the International Network of Women with Disabilities (INWWD), European Network of Independent Living (ENIL), Women with Disabilities India Network, Pukenga Consultancy (NZ), Advocacy for Inclusion (Australia) and Women Enabled International in this letter.
Indeed, the CRPD Committee now stands as the treaty body with the fewest number of women members â one woman (out of 18 members) in 2017– a significant departure from its previous compositions of six women (out of 18 members) in 2014-2016; seven women (out of 18 members) in 2012-2014; eight women (out of eighteen members) in 2010-2012; and five women (out of 12 members) in 2008-2010.
Yet, article 34(4) of the CRPD sets out the requirement that States Parties elect members of the Committee with consideration being given to: equitable geographical distribution, representation of different legal systems, balanced gender representation and participation of experts with disabilities. This requirement for gender parity has clearly not been met. This failure to adhere to its own Convention seriously undermines the credibility of the new Committee.
In March, members of Sisters of Frida, the INWWD, and Women Enabled International participated at the UN CSW 60 at which themes under discussion and review included the empowerment of women and the elimination and prevention of all forms of violence against women and girls. There was a marked paucity of events covering disabled women although several side-events were held by and with disabled women expressing the issues forcibly and clearly.
Disabled women are among the most disadvantaged in the world, despite being the single largest minority of women, and this failure to attend to the issues facing disabled women cannot help in the fight against barriers imposed not just by the built environment and lack of accessibility to services, employment and education but also by social barriers: stigmatization, ostracization and the easy targeting of those who are particularly susceptible to discrimination, including the fact we are female. How will these concerns be heard and represented? The CRPD recognizes the intersecting forms of discrimination faced by women and girls in Article 6; we need women representatives in the committee in order to ensure the Committee engages and addresses this issue.
What will you do to redress this lack of gender equality so that it will not be the case for the next election? What is the work to be done to ensure the inclusion of women across all the conventions, and agreements to which the UK Government is party? This absence of women in decision-making is likely to lead to leaving many behind in the face of the cry underpinning the Sustainable Development Goals, including Goal 5, that no-one should be left Â behind.
How can we be of assistance?
We look forward to your reply,
Sisters of Frida
Other signatories include
Myra Kovary (Moderator, International Network of Women with Disabilities)
Jamie Bolling (CEO, European Network on Independent Living)
Prof. (Dr) Asha Hans (Women with Disabilities India Network)
Dr Huhanna Hickey (Pukenga Consultancy, NZ)
Christina Ryan (CEO, Advocacy for Inclusion, Australia)
Stephanie Ortoleva Esq (Founding President & Legal Director, Women Enabled International)
Event: Disabled Women’s Voices from the Frontline Saturday 9th July, 11am – 4.30pm
A Sisters of Frida Event
Please register at Eventbrite
ÂÂÂVenue: Blackfriars Settlement
1 Rushworth Street London, SE1 0RB
Date: Â Â Â Â Â Â Â Â Â Â Â Â Â Saturday 9 July 2016
Time:Â Â Â Â Â Â Â Â Â Â Â 11.00am to 4.30pm
Lunch provided! BSL interpreters provided but please let us know your Access and dietary requirements by 20th June, please!
Disabled women spoke of the barriers in participating in events where organisers seem to think inclusion means that we get access to the event/ if we get access to the event. We need to increase skills, provide capacity so that disabled women will be credible to challenge intersectional inequality.
So come to hear disabled women who are great public speakers/performers
KIRSTEN HEARN is a long time blind lesbian feminist activist. Snarling at the patriarchy and agitating for Â Â inclusion since 1980,; she is founder member of Sisters Against Disablement; Womenâs tape over; Feminist audio Books, and an active member of Â a raft of other disability, womenâs and LGBT rights campaigns.
She seeks to cast all she does in a feminist light, believing that womenâs struggle speaks to the experiences of all other marginalised groups.Â Liberation for one group must not come at the sacrifice of another discriminated against groupâs rights,. As best she can, she has applied these principles through singing, songs, writing and performance.
She has been a board member of Transport for London, the Metropolitan Police Authority; EHRC Disability Committee; the chair of Inclusion London and the vice chair of the Consortium of LGBT CVOs. Currently she bends her energies for change as a Haringey Labour Councillor; An Independent Member of the Parole Board; and as a member of the board of Stay Safe East, a pioneering disabled peopleâs organisation dedicated to campaigning against DV and hate crimes experienced by disabled people. She also speaks a lot.
SIMONE ASPIS is a disabled woman with over 20 years experience of successful campaigning for disabled peoplesâ rights.Â Â Her first taste of campaigning was leading People Firstâs campaign to secure civil rights and direct payments for people with learning difficulties in the Disability Discrimination and Direct Payments legislation.Â Â Thereafter she has taken up campaigns roles with Disabled Peoples Direct Action NetworkI Decide Coalition, Disabled Peoples Equal Rights To Life, United Kingdomâs Disabled Peopleâs Council and Alliance for Inclusive Education working on many issues covering inclusive education, independent living and supported decision making, welfare reform and bioethics. She is a former Green Partyâs Disabled Peoples Spokesperson and have stood as Parliamentary Perspective Candidate and Greater LondonÂ Authorityâs elections
BECKY OLANIYI isÂ interested in acting, writing, psychology and neuroscience, but her main goal in doing this is to try to help young disabled women acknowledge and understand themselves as individuals, rather than simply being âthat disabled girlâ, as well as helping people in general to understand that disabled people are whole individuals whose limitations exist on a spectrum and are very different from one another because despite sharing one characteristic, we are all unique, with our own lives, perspectives and experiences.
MISS JACQUI came from a extremely creative family; She is fascinated by many different types of artforms. Theatre and music has always been a huge part of Miss Jacqui’s life.
Miss Jacquiâs love for theatre started a little later than most, and it was only when her mother signed Jacqui up to an inclusive drama group when she was 13 to get her out of her introverted shell; and she never looked back. Miss Jacquiâs love for music developed from recording the radio onto cassettes when she was really young, to wanting to know everything about how it all worked.
Miss Jacqui’s love for Spoken Word/Poetry only came to light in October 2011, when she joined ‘Poets Platform’ led by Kat Francois.Miss Jacqui honestly believe that creativity is a universal language.
Miss Jacqui is a Spoken Word Artist, Mix Engineer, Facilitator, and An Artist Manager.
SOPHIE PARTRIDGEÂ is a creative practitioner living in London, who trained with Graeae Theatre Co. She has worked extensively since her training, including her performance as Coral in the award winning Graeae play Peeling. Other stage performance includes work with the David Glass Ensemble, TIE in Nottingham, Theatre Resource in Essex and Theatre Workshop, Edinburgh. Her Media work also includes photo modelling, corporate video and radio. Â She is also a campaigner for the right of all Disabled People to live truly independently!
PENNY PEPPERÂ wrote the taboo-breaking book Desires Reborn in 2012 and in 2013 she won a Creative Futures Literary Award. InÂ September 2014 her one-woman spoken word show, Lost in Spaces, premiered to strong reviews at Soho Theatre, andÂ toured the Midlands in 2015. Recently she launched the Quality Writing for All Campaign for The Literary Consultancy at The Free Word Centre to great reviews. As a performance poet, she has performed across the UK,including London, Edinburgh and further afield in New York.
ANNABEL CROWLEY will chair the day. Annabel grew up as a young carer, and started working in the field of disability at the age of 17. She has supported disabled students in FE and HE, and is currently employed by the Disability Service at University of the Arts London. Annabel has also worked in the charity sector, including several years coordinating a user-led, community-based social activities programme at Hammersmith and Fulham Mencap. With experience in designing and delivering training, advocacy work, project management and youth participation.
PAULINE LATCHAM is a practicing Counsellor and relationship therapist. Pauline’s background is in community volunteering, particularly youth and mental health work, domestic violence and disability advocacy and activism. She was great speaking at the Wow Festival Chore Wars session as a Deaf woman for Sisters of Frida.
Freyja HaraldsdĂłttir: 22 random things that make me tired as a disabled woman
Many thanks toÂ Freyja HaraldsdĂłttir for allowing us to reblog this post. We met her in Leeds at the Screening AccSex meeting at the Center for Disability Studies, Leed Iniversity. So many of us could respond to the feelings she expresses here –Â
I am tired of often needing to value other peopleâs needs more than my own.
I am tired of being anxious about small events because of the fear of being marginalized and silenced.
I am tired of people over and over again assuming my opinions on sexism and ableism are just an emotional reaction instead of opinions based on diverse knowledge and deep experience of both.
I am tired of feeling like a bad feminist when I canât show matters of privileged women support who donât acknowledge or understand my reality.
I am tired of people finding it okay when Hollywood presents disabled people better of dead.
I am tired of everyone but myself having more authority to decide on my abilities and strength.
I tired of my body being objectified as desexualized, weak and emotionless.
I am tired of people I love excusing ableist people.
I am tired of needing to pick out a president candidate or other people for powerful positions who I donât identify with and will therefore have big problems understanding my reality.
I am tired of ableism being normalized on a higher level in my country then sexism and racism (not that that isnât normalized enough).
I am tired of people not understanding multiple oppression and that I can not pick out identities like clothes to wear everyday. I am always both a woman and disabled. Not either or.
I am tired of not being able to trust that my independence is longterm because in Iceland personal assistance is still a trial project. My freedom is on trial.
I am tired of being afraid of sharing what I find hard because then I automatically become victimized.
I am tired of sometimes not being able to sleep from worries about the influence of marginalization on my future.
I am tired of people constantly asking âhow is it going?â in stead of âhow are you feeling?â.
I am tired of not being allowed to be angry because it makes others uncomfortable.
I am tired of not being allowed to show difficult emotions without being stigmatized as negative and unhappy when I am most definitely not.
I am tired of not having space to talk about physical pain without my life being stigmatized as not worth living.
I am tired of many people not caring about everything mentioned above.
I am tired of not being allowed to be tired.
I am tired of being tired of being tired.
I am so tired.
There is also this great speech she gave atÂ 100 years of Womenâs Civil Rights. International Conference Celebrating the Centenary of Womenâs Suffrage in Iceland, October 22.-23. 2015. (speech transcript)
Inclusion for all – BAMER disabled person’s perspective
On 27 September 2012, Eleanor Lisney (and Michelle Daley) gave a presentation on BAMER (Black, Asian, Minority Ethnic and Refugee ) disabled person’s perspective at the âRe-thinking disability equality policy and practice in a hostile climateâ event. ItÂ is still relevant so we are reposting it here –Â (first published by Inclusion London but removed since their new website redesign).Â
This presentation was part of a series from Inclusion London âRe-thinking disability equality policy and practice in a hostile climateâ event
This is a presentation from Michelle Daley and myself.Â Michelle is sorry she cannot be here today but we both would like to thank Inclusion London to give the BAMER disabled personâs perspective from the front line.
Â In a group discussion once, we were asked what was the most important thing weâd grab in a fire or a flood and I said âmy passportâ.
Why? Because a passport defines who you are â it defines your rights. It identifies you as a citizen â and in this country, it defines whether you have rights. A refugee does not have the same rights as we do â a disabled refugee would have even less rights. In rethinking disability equality policy in a hostile climate â do we include refugees, the stateless Â and migrants?
I was alerted to a tweet last year â about Â Manjeet Kaur in Manchester, a woman wheelchair user seeking asylum. She was facing eviction from her accommodation and possible deportation from the UK. Her eviction was prevented by a picket outside her home and other efforts by her and RAPAR (Refugee and Asylum Seeker Participatory Action Research) in Salford,
who are campaigning together. We managed to get some disability activists to join the picket.
We have a series of questions we want you to consider –
how do we ensure that in rethinking disability equality that we include all voices â travellers, those in institutions including prisons, and those excluded groups?
How about those who are citizens but do not know they have rights as disabled people?
How do we make sure we include them? Its hard enough as a disabled person to negotiate barriers and discrimination when you are a native English speaker but for those who struggle with the language and are unfamiliar with the system and bureaucracy â how do make them aware that they have also a claim to disability equality?
On the frontline, where Local Authorities are cutting back, how do we ensure that BAME people are not left behind in the âpersonalisationâ process, in the maze of bewildering social welfare reforms? Resources are being cut savagely, do DPOs who are struggling for their own existence include advocacy for thoseÂ for whom English is not their first language? what happens to the practice of equality for all in this hostile climate? are some disabled being abandoned because DPOs are struggling themselves with the dwindling resources in terms of staff, time, finance and energy?
The reality is that choices for disabled people are limited. Choice is an integral aspect of the principle of inclusion â it is about increasing peopleâs freedom and opportunity to improve their life chances. However if we continue to have limited choices made available to us, our opportunities to achieve equality of opportunity will continue to be seriously limited. What this means is that our vision of a full inclusion is always being threatened.
There is a serious erosion (and the expectations) of our disability rights signed in the Convention of rights for disabled people (CRPD). When I was interviewed on radio about access for Â disabled people, theÂ interviewer opened the discussion by asking how in times of austerity at the moment, can we afford to have disabled access, are we being realistic to ask for expensive adjustments? Our rights as citizens and as humans are seen to be expandable and that goes across board as disabled people in the ethnic minorities, women, older people, those in rural communities. As cuts slash benefits, and impact on services and wages of those who already earn a barely minimum wage (including their families) there is a scramble on what they can get to survive. Many disabled people in BAME communities depend heavily on their families Â for their care needs and this recession means many of their family members are made redundant and the first people to be impacted are poor people in those communities – many of whom areÂ living in bad housing and maybe desperate conditions.
I didnât come with shocking statistics to prove that life is harder in the BAME communities â Â this is not that kind of a conference I feel. Itâs more important for me to emphasise, as Michelle says, the different journeys of BAMER disabled. We are also impacted by what happens to our communities and our young people. In my local community forum, in the stop and search police procedure, I question the status of continuing discrimination against disabled BAMEÂ because of the colour of their skin or their faith. Who advocates for them? When you get doubly discriminated who do you go to for help? What about BAME disabled women when it comes to violence against women refuges or in hospital environment when they have accessibility needs as well as dietary and other faith needs?
Equality Act 2010 covers some of those rights in the âprotected characteristicsâ but I do not think we know what happens when they intersect. Itâs too new and I’m not a lawyer but I do know there are not that many case laws to draw upon.
This presentation comes from our dialogue, Michelle and I, with each other, we both care passionately about the disability movement but also as disabled people from those BAMER communities and we ask you not to have silos â As Michelle says : Positive and real change can only be achieved with the inclusion of everybody.
Eleanor Lisney is a founder member and coordinator of Sisters of Frida. She has represented them in Geneva for CEDAW and in NYC for UNCSW. She is an access advisor, an NUJ member on the New Media Industrial Council and the Equality Council. She is also on the British Council Disability Advisory Panel and the web team of the International Network of Women with Disabilities. She enjoys being on the EVA (Electronic Visualisation & the Arts) London organising committee.
Michelle Daley has over ten years experience working in the field of disability. She has worked for a number of organisations at local, national and international levels to develop, promote and implement policies on equality and diversity. She is one of the founder members of Sisters of Frida. Her work has played a major role in promoting and influencing the inclusion of disabled people in the mainstream society.
Michelle was a former member of Equality 2025, the Independent Living Scrutiny Group and currently a trustee of Independent Living Alternative. She has passionately worked at the grass root level addressing issues such as access, education, independent living and cultural diversity.