Bringing disabled women together, mobilising
and sharing through lived experiences

We’re excited to announce a call-out for the new Sisters of Frida blog series, and we need your help!

This ongoing blog project is for you and will be shaped by you, the Sisters of Frida community. It will be an online space to share your experiences, stories and creativity, and help us to create a digital sisterhood and archive of disabled women’s voices.

We want to showcase work by writers and artists living with chronic illness, mental illness, and disability. Your work doesn’t need to be about those experiences exclusively, but we welcome and encourage submissions along those lines.

We’re looking for contributions of things that inspire you, this can include non-fiction, fiction, poems, illustrations, photographs, essays, reviews, etc.

Here are some quotes we like:

“At the end of the day, we can endure much more than we think we can.” – Frida Kahlo

“Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.” – Audre Lorde

“Hard things are put in our way, not to stop us, but to call out our courage and strength.” – Unknown

If you’d like to contribute: 

• Send all submissions with the subject SISTER STORIES: *TITLE OF PIECE* to sisofrida@gmail.com

• Please include a short third-person bio and your pronouns, but if you’d like to remain anonymous, that’s fine! Just let us know. If you also want to include a brief background about the piece, please feel free to do so.
• Attach submissions to your email in an accessible format.
  
  
• Non-fiction, essays, reviews should be no longer than 1,000 words.
• Poetry/Artwork – Please submit no more than 5 individual pieces.
• Languages: We welcome submissions in any language but please provide a translation if possible.

The blog will be updated monthly, so expect a calendar’s worth of stories! The frequency may increase depending on the number of submissions.

If you have an idea but need a bit of direction, let us know! We can work through it together, and help to guide whatever it is you’re creating. Just email sisofrida@gmail.com

* Sisters of Frida is an inclusive safe space for all self-identifying and non-binary disabled women. We do not tolerate sexism, homophobia, racism, transphobia or other forms of discrimination based on sexuality, age, gender expression, religion, education or socio-economic status.

Jennifer Brough is the curator of this set of stories/blog.

Jennifer is a writer and editor who lives with fibromyalgia and endometriosis. She is involved in projects at the Feminist Library and seeks to amplify the voices and experiences of self-identifying women.
She is learning Spanish and dreaming of visiting Frida’s house in Mexico, so is very happy to be part of the Sisters of Frida community.

Our celebratory event was a great success – thank you very much for those who did make it and thank you too for those who sent messages / videos because they couldn’t make it.

Sisters of Frida celebatory event 4th May 2018 Greenwich Yacht Club. Filmed by Lucy Fyson and edited by Leonore Schick. Music from TRG Banks – Milton Milton.

photos taken by Wasi Daniju at the event are at the SOF flickr account but to give you an idea….

 

The following is a letter we wrote to Maria Miller MP (and Jess Phillips MP)

Responses to the letter below are available to download as a PDF.

16 January 2018

Dear Ms Miller (and Ms Phillips),

On Oct 26 2017, you met one of our founders, Eleanor Lisney, at Bringing Women’s Voices into the Heart of Government , Women Resource Centre, House of Common. She mentioned our concerns about the defence to controlling or coercive behaviour in an intimate or family relationship under s.76 Serious Crime Act 2015. You asked her if we would put this in writing to you.

You will be familiar with the offence. We welcome its introduction for all victims of abuse but it is specifically important to disabled women because:

• Disabled women are twice as likely to experience domestic violence as non-disabled women;
• Disabled women are disproportionately more likely to be trapped in emotionally abusive relationships and/or households where their ‘carers’ receive financial benefits as a result of the victim’s disability; and
• [ethnicity/cultural risk element?]

1. Content of s.76(8)

In light of the high risks for disabled women, we are therefore very concerned that s.76(8) states that it is a defence to show that:

(a) [the accused] believed that he or she was acting in [the victim’s] best interests, and

(b) the behaviour was in all the circumstances reasonable.

We understand that the defence was intended to protect carers. Notwithstanding disabled women have a heightened need for the protection of s.76, we pose the follow questions:

1. Once the case for ‘abuse’ has been made out, why is a defence necessary?
2. S.76(8)(b) is an objective test of reasonableness, but s.76(8)(a) is subjective and wholly irrelevant. Does the Government believe that abuse is permissible if the perpetrator believed it was acceptable?

2. Application of s.76(8)

Turning to the application of this defence, what guidance has been provided to judges? There is a serious risk that cultural stereotypes may wrongly influence the judiciary eg that disabled people need ‘care’, that disabled people need guidance from others, that a carer is a ‘good, kind and selfless person’. In her report the former UN Special Rapporteur on Violence against Women, Rashida Manjoo, noted that the justice system is ‘widely perceived to be biased in favour of men’ and that disabled women in particular may be subjected to stereotypes that infantilise them.

3. Consultation on s.76(8)

Our fourth question is to what extent were disabled women consulted on s.76 and its defence?

You will be aware that last Summer, the UN Committee on the Convention of the Rights of Persons with Disabilities (CRPD) published its concluding observations¹ following its first review of the UK government’s compliance with the Convention. The Committee frequently noted that disabled women and girls’ rights “have not been systematically mainstreamed into both the gender equality and disability agenda”. We fear that s.76(8) demonstrates this.

Once you have had a chance to consider the issues, we should be grateful for a response to our questions and to hear whether you intend to take further action.

Yours faithfully,

eleanor

Eleanor Lisney

Co founder/coordinator

hello@sisofrida.org

Sisters of Frida CIC

@sisofrida

United House,

North Road, London, N7 9DP

There were quite a few disabled women at the Women of the World London Festival 2018, some of whom were connected to Sisters of Frida.

Here is Nidhi Goyal’s keynote speech at the Power & Protest: Art, Activism and Disability panel for Sisters of Frida

subtitles/captions to follow soon

here are the photos of the event from the Sisters of Frida’s Flickr account

and at the instagram account

more information on CEDAW on SOF website

and on the Women Resource Centre

WRC contact:     Simma Rai cedaw@wrc.org.uk

SOF contact :  hello@sisofrida.org

—————————————–

Our aim

The Government has to tell the United Nations about women’s rights in the UK.

 

We are collecting experiences from women across England to give to the United Nations. They will use these when they question the UK Government.

 

We want to be sure that disabled women are included. This report will reinforced what DDPOs wrote to the UNCPRD committee in last year’s examination in Geneva. But we will focus more on disabled women and girls’ issues.

 

Please tell us:

• What the problems are, in your own words – we are interested in your personal experiences
• Links to any evidence (research reports if you have them)
• what the government has/has not done since the last time it reported in 2013, and
• your recommendations for what needs to be done.

NB we are reporting on the period from 2013 to date.

 

We can only give a very short report to the United Nations – only 6,600 words!

We are interested in any information you can give us. Some of the areas that the UN will look at include:

 

 

• Trafficking and Prostitution               

• Healthcare – how the NHS supports accessibility of healthcare for disabled women

• Political and Public Life – whether disabled women are properly represented

• Economic and Social Benefits  – social security payments, universal credit, PIP etc

• Rural Women – the special needs of women outside towns and cities including public transport, slow wifi speeds and access to disability services

• Nationality  – special needs of disabled migrant women

• Equality Before the Law – are disabled women equal?

• Education – access to schools, colleges and university for disabled women and girls

• Marriage and Family Life – disabled women’s rights to a family life

• Employment – access to good quality work, and support to work (Access to Work)

• Violence Against Women and Girls – particular problems for disabled women, for example, domestic violence, or such violence against disabled women

 

 

Your evidence will be published unless you tell us otherwise.

Let us know if you want:

☐ EITHER your evidence to be completely confidential, OR

☐ to be shared with the Equality and Human Rights Commission only.

 

Timescale

The deadline for evidence and information is 28 February 2018. Send your evidence to: cedaw@wrc.org.uk

There is more information here

General information – https://thewomensresourcecentre.org.uk/our-work/cedaw/

The Government’s own report is here –  http://tbinternet.ohchr.org/_layouts/treatybodyexternal/Download.aspx?symbolno=CEDAW%2fC%2fGBR%2f8&Lang=en

 

The last shadow report from women’s groups is here: http://tbinternet.ohchr.org/Treaties/CEDAW/Shared%20Documents/GBR/INT_CEDAW_NGO_GBR_13333_E.pdf

 

If you have any questions please contact us.

Your experience

 

Any Links to Evidence? Yes/No

 

Has the Government taken action?

 

Your recommendations

 

CEDAW-shadow-report-template-for-written-evidence-from-disabled-women-final (Word doc. for downloading)

When we say “disabled women” we mean self-identifying disabled women, girls, and gender non-conforming people.

Our Vision  

A future in which disabled women are empowered, celebrated, informed, connected, valued and at the centre of society.

Our Mission

To make our vision a reality:

• • We create platforms that support opportunities to learn, share different experiences to increase our knowledge which enable us to challenge oppression and explore new possibilities

• • We speak out against abuse, injustice and discriminatory practices.

• • We fight for disabled women’s voices to be heard in diverse places of influence.

• • We don’t accept tokenism. We expect our allies to demonstrate meaningful engagement and commitment to securing disabled women’s liberation.

• • We embrace and celebrate our diversity by seeking out and highlighting the stories of disabled women from diverse intersectional backgrounds

• • We take opportunities to show how structures of oppression are connected and affect us all and call for their removal

• • We challenge unpaid labour of disabled women, strive for remuneration for our work and ensure our contributions are valued as individuals

Our Values and Ethical Principles

• • We are committed to the social model of disability and an intersectional approach to our oppressions and identities

• • We do not abuse or use our positions as a means to achieve

• • We are proud of who we are as disabled women and girls

• • We are committed to the continual process of challenging power and privileges, internally and externally

• • We believe in the self definition of identity and commit to not policing our identities

• • We expect accessibility and are creative, proactive and work in collaboration to achieve respectful and accessible spaces

• • We recognise, accept and challenge the oppressor within ourselves

• • We ensure credit is given to other disabled women for their ideas, involvement, contributions and work

Explanation of the logo: (logo designed and explained by Frieda Van de Poll)

The Kolibri or Hummingbird is a symbol for accomplishing that which seems impossible. For the native Americans, the bird is a symbol of rebirth, and of resurrection. It brings special messages for us, in its capacity of going in any direction; the only creature that can stop while traveling at full speed and the only bird that can fly backwards as well as forwards, up and down.

Frida had a special connection with this bird. She painted her eyebrows in the arc of the wings of the hummingbird, perhaps identifying herself with the extraordinary life skills of this colourful, tiny and vulnerable bird with the heart of an eagle. The logo is set in a stamp which fits the idea of the kolibri being a messenger… 

Why Sisters of Frida?

We took a long time deliberating on a name. We are disabled women but that is not our only identity – we are also embracing the whole package of being women and disabled. And we believe strongly in the social model of disability. We want to celebrate the difference of being of different ethnic origins, different cultures and nationalities, of different sexual orientation, of being mums, having partners and being single women. We are creative and our creativeness is born from our identities – of the very pain of being impaired and disabled at times. But we are not victims.

Hence we found a role model in Frida Kahlo. She is not one immediately associated with disability and yet her art was filled with images of the crippled body. She was also an activist and she wanted a life full of love, of relationships. In her art we also glimpse the dark landscape of her mental health in the aftermath of still births and in her stormy relationship with Diego Riveria.

We can strive to live our lives as full as she did

Some Sisters of Frida went to ENIL 2017 Freedom Drive,  which brought together 300 Independent Living activists from 19 countries in Brussels.

It brought an an end to a week of promoting independent living, peer support, protest and celebration of disability rights. The Freedom Drive has brought together around 300 independent living activists from 19 countries, from as far East as Albania, to Norway in the North.

Among the main Freedom Drive demands were the end to institutionalisation of disabled people across Europe, access to personal assistance in all countries, full implementation of the UN Convention on the Rights of Persons with Disabilities and the end to cuts to support services and benefits for disabled people.

Lani Parker and Michelle Daley said:

 

We also met some MEPs, Anthea McIntyre MEP, Keith Taylor MEP, Molly Scott-Cato MEP, Wajid Khan MEP, and Daniel Dalton MEP, among others to ask them questions on independent living, accessibility, inclusive education, disability rights after Brexit, freedom of labour as part of the EU among other issues.

​

The night before the march we met up with other British attendees for dinner, including Sarah Rennie (Sisters of Frida, Steering Group member) , who had to leave before the march.

We were outside the European Parliament the next day to join the other ENIL Freedom marchers on the streets of Brussels.

Thank you all for all who came with us. Thank you for ENIL to organising this and we wish Zara Todd, as incoming director, the best for the future.

More photos at Sisters of Frida Flickr account.

The UN Committee on the Convention of the Rights of Persons with Disabilities (CRPD) published its concluding observations following its first review of the UK government’s compliance with the Convention. We contributed to the report and went to Geneva, as volunteers, to ensure that violations of disabled women’s rights were given attention. The Committee highlighted many areas of concerns which explicitly or indirectly affect disabled women, but we’ve highlighted three key themes below.

 

1) Involvement of Disabled Women: Nothing about us without us

 

We share the Committee’s concern that disabled women and girls’ rights “have not been systematically mainstreamed into both the gender equality and disability agenda” and support its specific recommendation to “adopt inclusive and targeted measures, including disaggregated data” to prevent the multiple and intersectional discrimination we face.

 

Mainstreaming our rights, requires our involvement. We therefore also welcome the Committee’s recommendation to allocate “financial resources to support organisations representing [disabled women]” and develop mechanisms to ensure our involvement in planning and implementing law which affects our lives. For example, we were not consulted on the drafting of the coercive abuse offence in the Serious Crime Act. If we had, we would have been able to show how the ‘best interests’ defence for carers dangerously undermines the rights and safety of disabled women and people with learning disabilities.

 

Strategies need to be measured, financed and monitored. We therefore welcome the Committee’s recommendation for mechanisms to support our involvement in the design of strategies to implement the Convention through “measurable, financed and monitored strategic plans of action”. Measurability requires the collection of disaggregated data and this has been repeatedly called for by UN rapporteurs. Gaps in data mask the multiple discrimination faced by disabled women.

 

2) Multiple and Intersectional Discrimination

 

Disabled women experience sexism and dis/ableism in our everyday lives, along with many other forms of oppression (eg. based on age, sexual orientation, economic status and migrant status). Here’s an example to illustrate. A visually impaired woman cannot access information on an NHS website due to inaccessibility. This is disability discrimination, but is gender-neutral. However, lack of access to family planning services is clearly gender and disability discrimination. If she is actually a teenage girl living in a remote indigenous community, clearly intersections of multiple aspects of her identity operate to exacerbate the disadvantages she faces.

 

This is why the Convention specifically addresses the rights of disabled women in Article 6. It requires the Government to recognize that disabled women and girls face multiple discrimination. It’s therefore crucial that the Government implement the Committee’s recommendation to explicitly incorporate protection from “multiple and intersectional discrimination” in national legislation. Whether it’s routine GP appointments, cervical testing or maternity care, disabled women constantly struggle to access medical services, so we strongly support the Committee’s recommendation to develop “targeted measurable and financed” strategies to eliminate barriers in access to health care and services and to measure their progress.”

 

3) Access to Justice

Our rights are worthless if they are unenforceable or ignored. The barriers with the justice system are procedural, financial and accessibility-related and stop us from bringing claims to enforce our civil rights, count against us in proceedings (eg divorce and family matters) and prevent us from reporting criminal abuse against us.

 

We therefore strongly support the Committee’s recommendations:

• to develop training for the judiciary and law enforcement personnel. The UN Special Rapporteur on violence against women has already noted concerns about “women being deemed unfit mothers for having ‘failed to protect’ their children from an abusive parent”. Ignorant, counterproductive and damaging comments and actions by judges and police must end.
• to provide “free or affordable legal aid” for disabled people in all areas of law. The UN Special Rapporteur on violence against women has specifically noted concern about the evidential requirements to apply for legal aid and the consequences for family law problems.

 

The many other areas of concern noted by the Committee can be read here

 

Next Steps

 

We were disappointed by the lack of media attention given to the 17-page catalogue of shame but the disabled community, including the DPOs, continue to valiantly highlight the UN’s findings.

 

Whilst we welcome the Committee’s recommendation for the UK Government to produce annual reports on its progress, we fear it will be another exercise of denial and lack data, evidence or understanding of intersectional discrimination.

 

We, Sisters of Frida, are preparing for CEDAW (Convention on the Elimination of all Forms of Discrimination Against Women) and working with other women’s organisations on this. In the meantime, we are joining the ENIL Freedom March in Brussels and will raise it with our MEPs as to how they will be responding to protecting disabled women on VAWG as the Istanbul Convention is being ratified by the UK government.

 

Vivienne Hayes MBE, CEO of the Women Resource Centre says:

“The last time Sisters of Frida went with the UK CEDAW Working Group to Geneva, we noted in our oral statement that women of all ages and backgrounds in the UK are facing threats to their rights but this does not have to be the case if government policies are created in partnership with women’s NGOs and include a gendered perspective. This will ensure that there is not a long-term legacy of discrimination against women, and will also impact on the future economy.

 

In 2017, Sisters of Frida note that disabled women are acknowledged as still facing the same level of discrimination in the UNCRPD Concluding Observations. We call upon the UK government to honour its commitment to women’s rights and work with us to establish a clear and inclusive mechanism in order to bring women’s voices into the heart of government.”

 

Dr Mary-Ann Stephenson, Co-Director of the Women’s Budget Group said:

 

‘We know that disabled women have been hit particularly badly by austerity policies over the last seven years. Disabled women have lost income through cuts to both specific disability benefits but also to housing benefit, tax credits and benefits for children. Cuts to public services including social care, health, education and transport budgets have all disproportionately affected disabled women.

The Public Sector Equality Duty, contained in the 2010 Equality Act, places a positive obligation on all public authorities to have due regard to the impact of their policies and practices on equality. Despite this the government have failed to publish meaningful assessments of the cumulative impact of austerity on equality.

We call on the government to meet both their obligations under both domestic and international law to ensure that their policies meet the needs of disabled women’

 

Sarah Green, Co-Director, End Violence Against Women Coalition said:

 

“It is known that disabled women are disproportionately subjected to sexual and domestic violence by perpetrators of these crimes, and that disabled women face additional barriers to escaping and staying safe, and even in being believed.

 

“International human rights treaties require our Government to ensure that disabled women’s needs are specifically considered and addressed when implementing policy on policing and preventing violence. Following the UN CRDP inquiry into the UK’s performance in this area, we need to hear assurances from the UK Government that disabled women’s needs are known and are made part of policy and practice in relation to ending and preventing abuse.”

 

Pragna Patel, Director, Southall Black Sisters said:

 

‘Leave no woman behind’ is an important development and human rights goal that is central to achieving gender equality and one to which the UK government claims to be committed. But in the UK this goal remains largely rhetorical as the most vulnerable women – those with disabilities and multiple needs – are rendered marginalised and invisible by increasingly harsh economic and social welfare measures. Disabled women’s needs and rights are being gravely and systematically violated by the UK government. Why else do we see such an appalling lack of access to emergency shelters, secure housing and welfare rights, education, work, health and counselling facilities for disabled women who are also fleeing domestic violence? If the UK wants to be recognised as a leader in disability and human rights, it must develop laws, policies and strategies that enhance the rights of all women. This means understanding and addressing the overlapping and intersecting forms of discrimination such as race, gender and disability that create additional vulnerabilities and barriers for women. Sadly this government is unlikely to turn its rhetoric on achieving a ‘fairer’ society into reality but we are ready to stand with our disabled sisters to shame the government into action.

 

Lee Eggleston on behalf of Rape Crisis England and Wales said:

 

‘Disabled women who have experienced sexual violence make up a quarter of Rape Crisis service users – which is an indication of how disproportionately disabled women are impacted by sexual violence, often by their own carers. The voice and engagement of specialist organisations run by and for disabled women, like Sisters of Frida and Stay Safe East, is essential to the CEDAW process in raising awareness of sexual violence to the Committee.’

 

Zarin Hainsworth OBE, Chair,  National Alliance of Women’s Organisations

 

‘Disabled women  face multiple disadvantage in being able to participate as fully as they wish in all aspects of their lives – social, as well as political and economic .  The CEDAW Committee made recommendations in their concluding observations to their last report that would improve the capacity of women in the UK to access health care and justice but little has been achieved and austerity policies combined with a lack of specific attention to the issues faced by disabled women, make these more not less distant goals.  Indeed, disabled women – especially those with learning disabilities who are also likely to experience mental ill-health – continue to face the loss of their babies at birth.

We strongly support NAWO members, Sisters of Frida, in their campaign for focused attention by the UK Government on the needs and concerns of disabled women and girls.’

 

 

We would be happy to hear from others, individuals and/or organisations, who would like to join us in our campaign for disabled women’s rights in issues mentioned here. Please comment below or write to hello@sisofrida.org, tweet @sisofrida

 

Note: Stay Safe East is a unique user-led organisation run by disabled people, providing specialist and holistic advocacy and support services to disabled people from diverse communities in East London (currently Waltham Forest and Newham) who are victims/survivors of domestic or sexual violence, hate crime, harassment and other forms of abuse.

 

The facilitators for these sessions are:

Lani Parker has worked on disability issues in various capacities including taking part in many campaigns, facilitating training, and working within disabled people’s organisations in the areas of advice, information and advocacy. She has a particular passion for doing the work of connecting social justice issues.
Lani is the Community and Legal Service coordinator for Enfield Advice Plus Partnership Project  at Enfield Disability Action. She is involved in a number of disabled people’s groups and has taken part in many sctions She was co facilitator for the Sisters of Frida’s Disability Sexuality workshop last year.

Nim Ralph  has over 10 years’ experience as a trainer and facilitator, with specialisms in equalities and diversity work/anti-oppression and campaigning. They are Lead Trainer at Campaign Bootcamp and have facilitated for a wide range of groups and organisations ranging from the Girl Guides to Transgender Europe. Nim worked for Drake Music for the last 3 years, which focuses on Disability, music and technology.