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and sharing through lived experiences

Our e zine “We are Sisters of Frida” (1)

We launched this e zine last year in October, 2021. We decided against calling it a newsletter because it’s not just about our news but the voices of disabled women and non binary people, showing opinions, reflections and creative pieces.

We had members who wanted the possibility of sharing some of individual pieces so we’ re posting here for easy retrieval later.

We are very grateful to Rachel Gadsden who created these three beautiful images specially for this issue of We are Sisters of Frida upon request. Rachel is a visual and performance artist working across mainstream and diverse art sectors in UK and internationally.

We need you here

From Fleur Perry
Fleur is a law student and disabled people’s activist living in the South West. Her main interests are accessible housing and Equality Act breaches.

Fighting for your needs and your rights can be draining in every way. You push and push against a sea of eyebrows slightly raised in amused disbelief, or bent into a sharp frown of “How dare you?” or receive the same flat emails carefully constructed to make “Go away” sound like good business.
If that seems familiar, you are not alone. You don’t need to fight this alone. Every member of the SoF community has met a barrier that needs smashing. As disabled women and non-binary disabled people, we know the impact it has, what it feels like, and have words for feels that non-disabled people have never had to know.
We share those experiences, the bad and the good. We share knowledge and resources and music and poetry, building context and learning from each other. Judgement and shame, intrusive questions and gossip are for somewhere else – not here. Mutual solidarity, inclusion, and making space are key principles.
We want you here. We want your opinions. We want your voice. Got something to say that no one’s ever said before? Say it here. Know something that you don’t think will make sense to anyone else? Try us! We want to understand. You will be heard. You will be believed. You will be valued.
We think this is the first step to change. If we want to try to do something to make our world a better place to live, it has to work for everyone, and that’s means we need everyone. If we don’t have you, we’re missing out.
I think the community is the most valuable part of SoF. The reports and opportunities to campaign on some of the biggest issues in the UK today are all built from the experiences of individuals, and the time and energy they each give to making sure that knowledge isn’t lost, but unleashed.
What do you want to say?

“Disability justice is the art and the practice of honouring the body” An interview with Lydia X.Z. Brown

In this interview with Lani Parker of Sideways Times, Lydia X.Z Brown talks about disability justice as a praxis which honours the body and the whole person. Disability justice is a radical framework which requires understanding the interconnected nature of oppression and that we must tackle all forms of oppression in order to change the system we live in. We also talk about differences in language, tensions within disability movements and the importance of using a variety of tactics amongst other things…

Read or listen to it at Sideways Times. Thank you, Lani and Lydia for the podcast.

We are warriors

from Sarah Rennie

Sarah is a former solicitor, her day-to-day work is research and governance advice. However, Sarah delivers disability equality training nationwide and acts as a consultant for select clients on internal equality working groups.

I owe a great deal to Sisters of Frida.

Years ago, I was asked me to join the steering group and I experienced a major case of imposter syndrome. Looking back – I’m not going to lie – I did have a lot to learn. I was in my late 20s and feeling pretty unsure about my identity. In fact, I would sometimes feel uncomfortable around disabled people due to what I now realise is a classic case of internalised ableism. I was a feminist, a solicitor-turned-access-consultant, a feminist and had started attending disability rights protests. Sheepishly, alone and stood at the back.

Within Sisters of Frida, I saw myself as the boring but useful person who could help with governance and report writing. In a space with such incredible and talented disabled women, I was just in awe. I listened a lot and absorbed their ideas and critiques like a sponge. Whilst I battled my insecurities, I was made nothing but welcomed and treated as one of the gang.

After helping out where I could, one of the first projects I really got my teeth into was the Serious Crime Act and the defence to the crime of coercive behaviour in an intimate or family relationship. I represented Sisters of Frida at the UN in Geneva, along with other DDPOs, to present evidence of violations on disabled people’s rights to the UN Committee on the Rights of Disabled People. This was one of the greatest honours of my life.

Over the years, my confidence grew but so did my personal self-esteem. I finally felt comfortable in my own skin and proud to be a disabled woman. Whenever anyone asks why, I always credit the experiences I had and friendships I made through Sisters of Frida.

But my newfound confidence in activism was bitter sweet. In 2019, I was about to face a pretty tough challenge: the block of flats I live in is wrapped in cladding like that of Grenfell Tower and riddled with fire safety defects. I knew that disabled people were facing additional financial and safety issues, such as lack of savings or means of escape, so I co-founded Claddag, a disability action group, with another disabled woman. Sadly for me, I knew I couldn’t run the campaign and fulfil my commitment to Sisters of Frida so I had to resign from the latter. As expected, the team understood completely and have given me loads of emotional and practical help with Claddag.

If our fight for justice in the building safety crisis is successful, then my first task will be to knock on Sisters of Frida’s door and ask if they’ll take me back to support with the work. As they are a group of compassionate, inclusive, uplifting and strong warriors and I have no reason to think they won’t welcome me home.

A unique voice: why Sisters of Frida Matters

by Bethany Young 

Bethany is actively involved in with Third Sector organisations, promoting equality and advocating for disability rights. She is a SOF steering group member.

People often ask me why I joined Sisters of Frida. Why do you need it? In the past, I have asked the same question.. For years, I had soaked up the idea that my barriers came from having Cerebral Palsy. It was my job to overcome these. My experience of being both Disabled and a girl, then a woman, led to more isolation, and more hurdles that others didn’t see. If I could not clear them or ignore them myself I was a failure. It was all my fault.

Looking back, these beliefs I was taught about myself made no sense. I was putting loads of effort and skill into every area of my life – from employment and Independent Living to family relationships and managing my CP. Nothing changed, in fact the barriers got worse. After reaching out for help, I asked myself – maybe the problem isn’t me? I realised that so many of my experiences came from the strings attached to me. My CP is mine. My body and my mind are mine. These barriers are not. I felt relieved because my struggles made sense without shame or guilt. Everything I thought I knew about Disability shattered. Such a big realisation gave me a sense of hope and freedom, but also fear. I was starting again. Now I had asked the right questions, I needed answers.

I looked for mentors in the Disabled community to get peer support and find out more. I wanted an active community working for social change. Before long, I found Sisters of Frida – a disability organisation truly led by diverse Disabled women. Their inclusive vision and values, creativity and collaborative way of working all made me want to get involved.

Since joining Sisters of Frida, I have worked on lots of wonderful opportunities. I’ve written quotes for press releases, helped plan events, write reports and advocate for Independent Living. Planning for our future is exciting. We are unique because we recognise people don’t exist in clinical, clear-cut tick boxes. Real life diversity is social, human and multi-layered. This idea drives Sisters of Frida’s work and partnerships. We build relationships to connect with other women’s organisations. We bring our lived experience, and knowledge to new audiences. I have amplified the voices of diverse Disabled women on current struggles, like Social Care or Covid-19. Our perspectives don’t need to stay in an isolated bubble. Together, as Sisters of Frida, we spark better, bolder conversations to create change.

I am proud of all I have learned and achieved so far whilst working with everyone in Sisters of Frida. I am a better communicator, collaborator and activist. Working with these women shifted how I saw myself. I know my worth. I found my voice by listening to them. I found answers by learning from them. I am not alone, because together we are Sisters of Frida.

Webinar launch:

Disabled women’s perspectives on Independent Living during the pandemic 

6.30-8pm Friday 21st May 2021

We are pleased to announce the launch of our ground-breaking research 
into the long-term impacts of the COVID-19 pandemic on disabled women.  
Building on our briefing on disabled women and the pandemic, this 
research (funded by the Smallwood Trust and National Lottery 
Community Fund) will support us to create solutions and lobby for 
change. Through focus groups, it collects together a wide variety of 
intersectional disabled women’s experiences and concerns, most of which are made invisible in policy-making and society. The aim is to support us to make independent living a reality for everyone.

Come to our webinar where we will be discussing our findings with 
brilliant panellists : msunnia, Rachel O’Brien, Tumu Johnson, Dennis Queen and Martha Foulds. Dennis will also perform one of her songs for us.

Panelists

Brown woman with white rimmed glasses lying on grass. Text reads ''''I stand with Palestine'

msunnia is a queer crip feminist, with a background in campaigns and organising. msunnia is also the co-organiser of Criposium, a symposium on disability and intersectionality.

Rachel O’Brien is a member of the Sisters of Frida steering group. Her day job is doing public affairs for a Disabled People’s Organisation and campaigning to improve the rights of Disabled people. She is also a workplace rep for Unite the Union.

Blonde white woman with dark rimmed glasses, smiling with dimples

Martha Foulds is a disability rights activist living in Sheffield. She is currently a university student and helps co-ordinate the Sheffield Transgender Solidarity Network.

white woman with punish hair playing a guitar

Mx Dennis Queen is a queer, disabled musician based in Manchester. She has been involved in the disabled people’s movement for 20+ years campaigning, performing and volunteering at disabled people’s organisations. As well as being a panelist, Dennis will perform a piece for us.

young black woman smiling broadly into camera with fuzzy hair.

Tumu Johnson is a mental health worker and group facilitator with experience of working in front line support services, research and community organising. She is currently studying for a Masters in Mental Health Studies whilst working in the NHS and also provides freelance training around mental health and wellbeing.

Tumu, from the Sisters of Frida’s Steering Group, will be chairing the webinar.

Registration

Register in advance for this webinar:
https://zoom.us/webinar/register/WN_L8n-LWm2R3WlYj7z2VnXzQ

BSL interpretation and captioning will be provided at this meeting, and 
it will also be livestreamed to Youtube.

We hope to see you there!

email : hello@sisofrida.org
twitter : @sisofrida #sofvoices

16 days of activism: Million Women Rise Vigil

We thank EVAW and Million Women Rise for adding us to the “Never Forgotten Vigil.”

Let us not forget. In #solidarity

See also the Safe Lives report on Disabled people and domestic abuse

In solidarity: Black Disabled Lives Matter

image of a black fist with a loop in a figure 8 joining fist with an orange background.  Text on wrist 'Black Disabled Lives Matter' with @jtknoxroxs in the right hand bottom corner
Black Disabled Lives Matter with thanks to @jtknoxroxs for the imag

Sisters of Frida stands in solidarity with the Black Lives Matter movement globally and in the UK. We cannot do that without including Disabled Black Lives.

Racism and ableism are intertwined.

From deaths in custody to the hostile environment, from the school
exclusions to austerity policies, Black lives and, in particular, Black Disabled lives are devalued by systemic and structural racism and ableism. The coronavirus pandemic has laid bare health inequalities in the UK: Black people are four times more likely to die of Covid-19 than white people
and deaths of people learning difficulties have gone up by 134% during the pandemic.

We fight for a world where Black Disabled women are valued, cherished and can thrive in our communities.

The Impact of COVID 19 on Disabled Women from Sisters of Frida

Voices of Disabled women in the pandemic

About this paper

This paper started as a brief but we sent the first version in response to the Women and Equalities Unequal impact: Coronavirus (Covid-19) and the impact on people with protected characteristics. We know that the experiences of Disabled women are not visible in the wider response to COVID-19.

The need to add the narratives focused on Disabled women is the reason for this paper. We feel that the narrative about Disabled women, when available, is very one dimensional. There is no consideration that Disabled women occupy multiple roles, we are diverse and any considerations have to be viewed through an intersectional lens.  We are strongly aware that new measures under the Coronavirus COVID-19 2020 Act threaten rights-based protections and reduce our independent living and in some cases our lives.[2]

We were asked to join a coalition of women’s organisations[ calling on the government to take on certain actions, and to contribute evidence from the perspectives from disabled women under the impact of COVID-19. We put out a call for evidence, asking disabled women to share their experiences of COVID-19 and its specific impact for intersecting identities. We want to ensure the voices of Disabled women are visible as they are often omitted as examples of multiple protected characteristics.

We are working with Inclusion London and ROFA (Reclaiming Our Future Alliance) on the rights of disabled people under the Care Act 2014 where these are being eroded, the urgency of access to food and services for disabled people, and access to PPE (Personal Protective Equipment) for their Personal Assistants (PAs) and themselves.

Disabled women’s needs under COVID-19 measures are no less significant than those of the rest of the disabled community, but disabled women face specific issues.

We are looking in particular at those issues that are impacting rights at the intersection of gender and disability during this crisis.

Please access the paper in (PDF) and/or in Word

At UN CEDAW review in Geneva

4 women, one black and 3 white women standing behind East Asian in a raised power wheelchair holding a Sisters ofFrida banner. Behind them are many flag poles.
NAWO trustees, Justina Mutale and Margaret Clark, Viviene Hayes from the Women Resource Centre joined Rachel O’Brien Eleanor Lisney from Sisters of Frida outside the Palais de Nations with the SOF banner

 On the last week of February, two Sisters of Frida, Rachel O’ Brien and Eleanor Lisney joined other women NGOs for the review of UK government on CEDAW – The Convention on the Elimination of all forms of Discrimination Against Women,  often referred to as the ‘women’s bill of rights’, and it spells out women’s right to equality and non-discrimination. They were funded by the EHRC to attend the examination.

They met with Ana PelĂĄez NarvĂĄez, the only disabled woman on the committee and they spoke on the needs of disabled women and the importance of CEDAW.

Before the event, Eleanor was in the core group steering group in the shadow report prepared by the Women Resource Centre for England (see the shadow reports). We also did our own Shadow Report supported by Women Enabled International and met with Amanda McRae while they were in Geneva.

Here is a podcast by Eleanor about the CEDAW review and the transcript 

Concluding observations on the eighth periodic report of the United Kingdom of Great Britain and Northern Ireland – Advance unedited version

CEDAW 2019 – concluding recomendations with references to disabled women

Government is failing on disabled women’s rights, UN is told report from Disability New Service

5 women in a circle, one in a wheelchair.

Ana PelĂĄez NarvĂĄez meeting with Rachel and Eleanor from SOF, Janet Veitch, Viv Hayes from WRC and Amanda McRae from Women Enabled International.

Rachel and Eleanor with other delegates from Women NGOs

Rachel speaking to the CEDAW committee

Sisters of Frida at Brussels ENIL Freedom Drive

Some Sisters of Frida went to ENIL 2017 Freedom Drive,  which brought together 300 Independent Living activists from 19 countries in Brussels.

Sisters of Frida behind the banner which says Sisters of Frida, Disabled Women's Collective. They are all wearing read teeshirts. Four wheelchair users.

Zara Todd, Lani Parker, Michelle Daley and Eleanor Lisney, and Rachel O’Brien (photo by Mladen Spremo)

It brought an an end to a week of promoting independent living, peer support, protest and celebration of disability rights. The Freedom Drive has brought together around 300 independent living activists from 19 countries, from as far East as Albania, to Norway in the North.

Among the main Freedom Drive demands were the end to institutionalisation of disabled people across Europe, access to personal assistance in all countries, full implementation of the UN Convention on the Rights of Persons with Disabilities and the end to cuts to support services and benefits for disabled people.

Lani Parker and Michelle Daley said:

 

We also met some MEPs, Anthea McIntyre MEP, Keith Taylor MEP, Molly Scott-Cato MEP, Wajid Khan MEP, and Daniel Dalton MEP, among others to ask them questions on independent living, accessibility, inclusive education, disability rights after Brexit, freedom of labour as part of the EU among other issues.

with man in a squatting position, 3 women wheelchair users and one woman in front.

with Wajid Khan MEP (Labour), Rebecca Farren, Lani Parker, Tara Flood and Michelle Daley (photo by Katai)

2 wheelchair users (one  black woman and one white) at either end. 3 people on sofa, all white, one man 2 women)

Tweet from Molly Scott Cato MEP with Michelle Daley, (Green Party) Keith Taylor MEP, Molly Scott Cato MEP, Tara Flood and Lani Parker

​

The night before the march we met up with other British attendees for dinner, including Sarah Rennie (Sisters of Frida, Steering Group member) , who had to leave before the march.

People seated at table at restaurant

dinner with other British attendees of Freedom Drive (photo by Debbie)

people at dinner table at restaurant

dinner with other British attendees of Freedom Drive (2nd table) (photo by Debbie)

We were outside the European Parliament the next day to join the other ENIL Freedom marchers on the streets of Brussels.

Michelle (wearing the red tee ENIL teeshirt) with her hand raised up in a fist leading some of the procession

Michelle Daley leading some of the way. (photo by Katai)

Thank you all for all who came with us. Thank you for ENIL to organising this and we wish Zara Todd, as incoming director, the best for the future.

More photos at Sisters of Frida Flickr account.

Involvement of Disabled Women: Nothing about us without us

The UN Committee on the Convention of the Rights of Persons with Disabilities (CRPD) published its concluding observations following its first review of the UK government’s compliance with the Convention. We contributed to the report and went to Geneva, as volunteers, to ensure that violations of disabled women’s rights were given attention. The Committee highlighted many areas of concerns which explicitly or indirectly affect disabled women, but we’ve highlighted three key themes below.

 

1) Involvement of Disabled Women: Nothing about us without us

 

We share the Committee’s concern that disabled women and girls’ rights “have not been systematically mainstreamed into both the gender equality and disability agenda” and support its specific recommendation to “adopt inclusive and targeted measures, including disaggregated data” to prevent the multiple and intersectional discrimination we face.

 

Mainstreaming our rights, requires our involvement. We therefore also welcome the Committee’s recommendation to allocate “financial resources to support organisations representing [disabled women]” and develop mechanisms to ensure our involvement in planning and implementing law which affects our lives. For example, we were not consulted on the drafting of the coercive abuse offence in the Serious Crime Act. If we had, we would have been able to show how the ‘best interests’ defence for carers dangerously undermines the rights and safety of disabled women and people with learning disabilities.

 

Strategies need to be measured, financed and monitored. We therefore welcome the Committee’s recommendation for mechanisms to support our involvement in the design of strategies to implement the Convention through “measurable, financed and monitored strategic plans of action”. Measurability requires the collection of disaggregated data and this has been repeatedly called for by UN rapporteurs. Gaps in data mask the multiple discrimination faced by disabled women.

 

2) Multiple and Intersectional Discrimination

 

Disabled women experience sexism and dis/ableism in our everyday lives, along with many other forms of oppression (eg. based on age, sexual orientation, economic status and migrant status). Here’s an example to illustrate. A visually impaired woman cannot access information on an NHS website due to inaccessibility. This is disability discrimination, but is gender-neutral. However, lack of access to family planning services is clearly gender and disability discrimination. If she is actually a teenage girl living in a remote indigenous community, clearly intersections of multiple aspects of her identity operate to exacerbate the disadvantages she faces.

 

This is why the Convention specifically addresses the rights of disabled women in Article 6. It requires the Government to recognize that disabled women and girls face multiple discrimination. It’s therefore crucial that the Government implement the Committee’s recommendation to explicitly incorporate protection from “multiple and intersectional discrimination” in national legislation. Whether it’s routine GP appointments, cervical testing or maternity care, disabled women constantly struggle to access medical services, so we strongly support the Committee’s recommendation to develop “targeted measurable and financed” strategies to eliminate barriers in access to health care and services and to measure their progress.”

 

3) Access to Justice

Our rights are worthless if they are unenforceable or ignored. The barriers with the justice system are procedural, financial and accessibility-related and stop us from bringing claims to enforce our civil rights, count against us in proceedings (eg divorce and family matters) and prevent us from reporting criminal abuse against us.

 

We therefore strongly support the Committee’s recommendations:

  • to develop training for the judiciary and law enforcement personnel. The UN Special Rapporteur on violence against women has already noted concerns about “women being deemed unfit mothers for having ‘failed to protect’ their children from an abusive parent”. Ignorant, counterproductive and damaging comments and actions by judges and police must end.
  • to provide “free or affordable legal aid” for disabled people in all areas of law. The UN Special Rapporteur on violence against women has specifically noted concern about the evidential requirements to apply for legal aid and the consequences for family law problems.

 

The many other areas of concern noted by the Committee can be read here

 

Next Steps

 

We were disappointed by the lack of media attention given to the 17-page catalogue of shame but the disabled community, including the DPOs, continue to valiantly highlight the UN’s findings.

 

Whilst we welcome the Committee’s recommendation for the UK Government to produce annual reports on its progress, we fear it will be another exercise of denial and lack data, evidence or understanding of intersectional discrimination.

 

We, Sisters of Frida, are preparing for CEDAW (Convention on the Elimination of all Forms of Discrimination Against Women) and working with other women’s organisations on this. In the meantime, we are joining the ENIL Freedom March in Brussels and will raise it with our MEPs as to how they will be responding to protecting disabled women on VAWG as the Istanbul Convention is being ratified by the UK government.

 

Vivienne Hayes MBE, CEO of the Women Resource Centre says:

“The last time Sisters of Frida went with the UK CEDAW Working Group to Geneva, we noted in our oral statement that women of all ages and backgrounds in the UK are facing threats to their rights but this does not have to be the case if government policies are created in partnership with women’s NGOs and include a gendered perspective. This will ensure that there is not a long-term legacy of discrimination against women, and will also impact on the future economy.

 

In 2017, Sisters of Frida note that disabled women are acknowledged as still facing the same level of discrimination in the UNCRPD Concluding Observations. We call upon the UK government to honour its commitment to women’s rights and work with us to establish a clear and inclusive mechanism in order to bring women’s voices into the heart of government.”

 

Dr Mary-Ann Stephenson, Co-Director of the Women’s Budget Group said:

 

‘We know that disabled women have been hit particularly badly by austerity policies over the last seven years. Disabled women have lost income through cuts to both specific disability benefits but also to housing benefit, tax credits and benefits for children. Cuts to public services including social care, health, education and transport budgets have all disproportionately affected disabled women.

The Public Sector Equality Duty, contained in the 2010 Equality Act, places a positive obligation on all public authorities to have due regard to the impact of their policies and practices on equality. Despite this the government have failed to publish meaningful assessments of the cumulative impact of austerity on equality.

We call on the government to meet both their obligations under both domestic and international law to ensure that their policies meet the needs of disabled women’

 

Sarah Green, Co-Director, End Violence Against Women Coalition said:

 

“It is known that disabled women are disproportionately subjected to sexual and domestic violence by perpetrators of these crimes, and that disabled women face additional barriers to escaping and staying safe, and even in being believed.

 

“International human rights treaties require our Government to ensure that disabled women’s needs are specifically considered and addressed when implementing policy on policing and preventing violence. Following the UN CRDP inquiry into the UK’s performance in this area, we need to hear assurances from the UK Government that disabled women’s needs are known and are made part of policy and practice in relation to ending and preventing abuse.”

 

Pragna Patel, Director, Southall Black Sisters said:

 

‘Leave no woman behind’ is an important development and human rights goal that is central to achieving gender equality and one to which the UK government claims to be committed. But in the UK this goal remains largely rhetorical as the most vulnerable women – those with disabilities and multiple needs – are rendered marginalised and invisible by increasingly harsh economic and social welfare measures. Disabled women’s needs and rights are being gravely and systematically violated by the UK government. Why else do we see such an appalling lack of access to emergency shelters, secure housing and welfare rights, education, work, health and counselling facilities for disabled women who are also fleeing domestic violence? If the UK wants to be recognised as a leader in disability and human rights, it must develop laws, policies and strategies that enhance the rights of all women. This means understanding and addressing the overlapping and intersecting forms of discrimination such as race, gender and disability that create additional vulnerabilities and barriers for women. Sadly this government is unlikely to turn its rhetoric on achieving a ‘fairer’ society into reality but we are ready to stand with our disabled sisters to shame the government into action.

 

Lee Eggleston on behalf of Rape Crisis England and Wales said:

 

‘Disabled women who have experienced sexual violence make up a quarter of Rape Crisis service users – which is an indication of how disproportionately disabled women are impacted by sexual violence, often by their own carers. The voice and engagement of specialist organisations run by and for disabled women, like Sisters of Frida and Stay Safe East, is essential to the CEDAW process in raising awareness of sexual violence to the Committee.’

 

Zarin Hainsworth OBE, Chair,  National Alliance of Women’s Organisations

 

Disabled women  face multiple disadvantage in being able to participate as fully as they wish in all aspects of their lives – social, as well as political and economic .  The CEDAW Committee made recommendations in their concluding observations to their last report that would improve the capacity of women in the UK to access health care and justice but little has been achieved and austerity policies combined with a lack of specific attention to the issues faced by disabled women, make these more not less distant goals.  Indeed, disabled women – especially those with learning disabilities who are also likely to experience mental ill-health – continue to face the loss of their babies at birth.

We strongly support NAWO members, Sisters of Frida, in their campaign for focused attention by the UK Government on the needs and concerns of disabled women and girls.’

 

 

We would be happy to hear from others, individuals and/or organisations, who would like to join us in our campaign for disabled women’s rights in issues mentioned here. Please comment below or write to hello@sisofrida.org, tweet @sisofrida

 

Note: Stay Safe East is a unique user-led organisation run by disabled people, providing specialist and holistic advocacy and support services to disabled people from diverse communities in East London (currently Waltham Forest and Newham) who are victims/survivors of domestic or sexual violence, hate crime, harassment and other forms of abuse.

 

A ‘human catastrophe’ – New UN condemnation for UK human rights record

The UK Government’s claim to be a ‘world leader in disability issues’ has today been crushed by the UN Committee on the Rights of Persons with Disabilities. The Committee has released damning Concluding Observations on the UK, following its first Review of the government’s compliance with the Convention.

The Observations conclude last week’s public examination of the UK Government’s record on delivering disabled people’s rights. The examination was declared by the UK rapporteur Mr Stig Langvad, to be “the most challenging exercise in the history of the Committee”. Mr Langvad raised deep concerns on the UK Government’s failure to implement the rights of disabled people. He also noted the government’s “lack of recognition of the findings and recommendations of the (2016) Inquiry” which found ‘grave and systematic violations of disabled people’s human rights’.

Deaf and Disabled People’s Organisations (DDPOs) were hailed as the genuine “world leaders” for their efforts in bringing to light the injustices and human rights violations inflicted on disabled people in the UK.

The UK Delegation of Deaf and Disabled People’s Organisations has issued the following joint statement:

“Today the UN(CRPD) Committee has, once again, condemned the UK Government’s record on Deaf and Disabled People’s human rights. They have validated the desperation, frustration and outrage experienced by Deaf and Disabled people since austerity and welfare cuts began. It is no longer acceptable for the UK Government to ignore the strong and united message of the disability community.

UK Government representatives committed during the review to rethinking the way they support Deaf and Disabled People to monitor our rights. We welcome this commitment.  However, we are clear that our involvement must be genuine and inclusive and that we cannot accept anything less than progress on delivering the human rights enshrined in the Convention, and denied us for too long.

DDPOs have established themselves as a force to be reckoned with following a long campaign of challenging the Government’s blatant disregard for the lives of Deaf and disabled people in the UK. The unity and solidarity demonstrated by the Committee and the UK Independent Mechanism in supporting our calls for justice continue to strengthen us.

Michelle Daley, a Director of Sisters of Frida, said –

“The rights of disabled women and girls have not been systematically mainstreamed in the UK. The UN is obviously recognising this.

The proper collection of disaggregated data has been repeatedly called for by UN rapporteurs. Gaps in data mask the multiple discrimination faced by disabled women.

We welcome the Committee’s recommendation that the State allocates resources to support representative organisations for disabled women and girls and secure our strategic involvement and contributions in legislation. Perhaps this would, in future, avoid abhorrent situations like the ‘best interests’ defence for carers committing coercive and controlling abuse which the Government introduced without consulting us.”

Notes to editors:

  •     The Concluding Observations are published on the Committee’s webpage (UK section) : http://tbinternet.ohchr.org/_layouts/treatybodyexternal/SessionDetails1.aspx?SessionID=1158&Lang=en
  •     DDPOs across the UK have worked in coproduction to collect evidence and compile the reports through the Review process. The delegation of DDPOs present in Geneva w/c 21st August 2017 included Disability Rights UK, Inclusion Scotland, Disability Wales, Disability Action Northern Ireland, the Reclaiming our Futures Alliance, British Deaf Association, People First Scotland, Alliance for Inclusive Education, Inclusion London, Disabled People Against Cuts, Equal Lives, Black Triangle, Sisters of Frida, Black Mental Health UK.
  •     Contributions were also received from Innovations in Dementia, HFT and Intersex NGO Coalition.
  •     On 23rd and 24th August the examination of the UK Government took place in Geneva, with the UN Committee on the Rights of Disabled People. The report of the dialogue can be found here, with links to submission documents: http://www.ohchr.org/EN/NewsEvents/Pages/DisplayNews.aspx?NewsID=21993&LangID=E
  •     The committee postponed its assessment of the UK (originally due in 2015) to investigate a complaint of the violation of disabled people’s rights as a result of welfare reform. This was brought under the optional protocol of the Convention. The findings expressed concern of grave and systematic violations of disabled people’s human rights. That investigation looked only at a part of the UN Convention on the Rights of Disabled People – with a particular focus on the impact of austerity measures and welfare reform. The Review looked at a much wider set of issues, including our laws on mental health and mental capacity, policies on employment and education and more.

Inquiry report, 2016: http://www.ohchr.org/EN/HRBodies/CRPD/Pages/InquiryProcedure.aspx

  •     A lay person’s guide to the Review process and Examination can be found here: www.disabilitywales.org/crpd17
  •     Statistics about disabled women: https://www.sisofrida.org/resources/disabled-women-facts-and-stats/
  •     Section 76 of the Serious Crime Act 2015 created a new offence of controlling or coercive behaviour in an intimate or family relationship. It is a defence for accused abusers to show that they believe their behaviour was in the victim’s best interests and reasonable.

Sisters of Frida calls out UK Government on human rights violations of disabled women

PRESS RELEASE

Sisters of Frida joins Deaf and Disabled People’s Organisations (DDPOs) from across the UK in Geneva this week to present evidence of violations on disabled people’s rights to the UN Committee on the Rights of Disabled People (UNCRPD)

In a closed session on Monday 21st August, DDPOs will highlight the UK Government’s failure to respond to many of the questions put to it by the Committee throughout this process. They will tell the Committee of the systemic failure to support disabled people to live independently and to have access to social, educational, and employment opportunities.

This is the first time the UN Disability Committee is reviewing the UK’s progress in implementing the UN Convention on the Rights of Persons with Disabilities since the UK government ratified the Convention in 2009. DDPOs will tell the Committee that the government has ignored many of the questions put to it earlier this year as part of the review process. The Committee will consider the government’s response to its questions and the DDPOs’ observations before questioning representatives from the UK and devolved governments in Geneva later this week (23 and 24 August).

Eleanor Lisney, Director of Sisters of Frida says,

‘We have been calling out on the failure of the UK Government to fulfil obligations to disabled women since 2013 when we joined the UK CEDAW (Convention on the Elimination of all Forms of Discrimination Against Women) Workgroup and delegation in 2013 going to Geneva). We did the same when we went to UN in New York city for CSW (UN Commission on the Status of Women) the UKNGOCSW delegation and held a side event. It is vital that disabled women are represented in processes like CRPD reporting as too often our experience as disabled women is invisible.This is an opportunity to change this and show how the cuts and legal changes are affecting us.’

Sarah Rennie, who will be representing Sisters of Frida in Geneva says,

‘The UK Government’s response does not address how gender-specific policies incorporate the social model of disability to break down barriers, meet the needs of Disabled women, or require an intersectional approach. We urge the Government to immediately remove the “best interests” defence in the Serious Crime Act 2015 which restricts Disabled women from seeing their perpetrators of emotional abuse brought to justice, and to improve access to medical care for Disabled women including pre-natal and reproductive health services.’

The DDPOs’ submission was co-produced by Reclaiming our Futures Alliance (including Sisters of Frida ), Inclusion Scotland, People First Scotland, DRUK, Disability Wales, Disability Action Northern Ireland, British Deaf Association, and Black Triangle.

 

Defend our Rights, Rights of Disabled Women, #intersectionality #CRPD17, #DDPOSGeneva

ENDS

Notes to editors:

1) The UN Committee on the Rights of Persons with Disabilities investigation is assessing what steps the UK has taken to implement the UN Convention on the Rights of Disabled People. The committee is a body of experts, nominated and elected by governments. The majority of committee members are disabled people.

2) The committee postponed its scheduled assessment of the UK (originally due in 2015) to hold a special inquiry into complaints by DPPOs that the government’s welfare reform policies had violated disabled people’s rights. The current assessment looks at a much wider set of issues, including our laws on mental health and mental capacity, employment policies and education.

3) Before examining UK and devolved government representatives on Wednesday and Thursday the committee will meet with representatives of DDPOs to discuss their views on the formal written response already tabled by the UK government. The DDPOs have prepared their own submission as highlighted above.

4) Previous UN shadow reports from Sisters of Frida can be found at https://www.sisofrida.org/resources/

5) ROFA is an alliance of Disabled People and their organisations in England including Inclusion London, Equal Lives, Alliance for Inclusive Education, Sisters of Frida, National People First and Disabled People Against Cuts. For more information see: www.rofa.org.uk

6) more information about Sisters of Frida to be found at https://www.sisofrida.org

7) information on the status of disabled women in the Serious Crime Art 2015 can be found at https://www.sisofrida.org/resources/violence-against-women/

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