In memory of Eleanor Firman
We are very sorry to learn that Eleanor Firman, a strong activist in East London, died last weekend. She was passionate about housing, peace, benefits, but anti racism and disability rights were her biggest concerns. Her death was sudden and unexpected. She had attended a fund raising dinner on Saturday night and was reported to be on good form.
Eleanor was also a founding member of Sisters of Frida and served on the Steering Group. She attended a meeting in Strasbourg for us at a European Parliament Disability Intergroup and then to Geneva as part of the CEDAW working Group coordinated by the Women Resource Centre in 2013. A committed advocate for women‚Äôs and disability rights, she was in the Women Against the Cuts and also a Disabled People Against Cuts member. She was in Left Unity Disabled Member‚Äôs Caucus for some time. She had wanted to be a Labour councillor in her ward.
We send our utmost sympathy to her partner Gerry, and her family, brother, Richard, her father , Peter, neice Jess and all her friends.
She is a great loss to all of us. We will miss her warmth, her passion, creativity and friendship. She never failed to help and stood up for what she saw as injustice ‚Äď even when it is at a cost to herself.
written by Eleanor Lisney
Added information for the AGM 25th March Sat from 12 noon
Please note new time, although the AGM starts at 1pm as seen from previous post , you are welcomed to get there before. Blackfriars Settlement has an excellent cafe with reasonable prices for lunch or snacks.
Please register at eventbrite
Please also have a look at these documents
We are asking for your ideas, opinions as to how you want Sisters of Frida to plan a strategy for going ahead.
Here is the agenda for the day
Sisters of Frida Annual General Meeting
Venue: Blackfriars Settlement, 1 Rushworth St, London SE1 0RB
Date: Saturday, 25 March 2017
12:00noon to 1:00PM¬†¬†¬†¬†¬†¬†¬† Networking
1:00PM to1:30PM ¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† What we‚Äôve done, finance & questions
1:30PPM to 2:00PM ¬†¬†¬†¬†¬†¬†¬†¬† Visionary: Sisters Of Frida in 3 Years‚Äô
2:00 PM to 2:15PM Break
2:15PM to 3:30PM ¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† Strategy: Road Map
3:30PM to 3:45PM¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† Break
Steering Group Members Meeting
3:45PM to 3:50PM¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† Thank you and welcome new SGM
3:50PM to 4:20PM¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† Prioritise outcome from Strategy session. This will involve agree work plan for the future but also assigning it to the visionary statements.
4:20PM to 4:40PM¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† Governance
4:40PM to 5PM¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬†¬† A.O.B
At the European Parliament: Domestic violence against people with disability
Sisters of Frida was asked to speak at an event hosted by Soraya Post MEP on Domestic violence against disabled people by the European Network of Independent Living (ENIL) on the 31st January 2017. Here is the speech from Eleanor Lisney ( a summarised version was given as the meeting ran out of time)
Having support for independent living is one of the fundamental needs of disabled people and the structural barriers of being able to exercise our rights is in our battles with social services, schools, higher education, housing, stigmas and discrimination and ableism.
Embla and Freyja were giving their testimonies on behalf of¬† the next day on domestic violence against disabled people. Here is their speech for Tab√ļ.
It is clear that a new definition of domestic violence in itself will not solve the social situation of disabled women and end domestic violence against us. That does not change the fact that by redefining domestic violence legally and in policy can change, for the better, the practices of the police, legal system, social services and violence support networks. Changing the definition does not have to shadow the gender-based approach, it should enrich it. This should not have to exclude tackling of other forms of violence, e.g. institutional violence and hate crime. More so it could draw upon the multiple and concurrent forms of violence that should be beneficial to disabled women and service systems. It could deepen the understanding of which kind of violence affects or actuate other kinds of violence as well as offering a better ground to analyse how structures and cultures encourage and minimize abuse in the lives of disabled women.”
We also met up with all four of the Disabled Survivors Unite co-founders from the UK – Alice Kirkby, Ashley Stephens, Holly Scott-Gardner and¬† Bekki Smiddy. Here is their blog of the day with a audio recording and transcript. There was much appreciation of their testimonies.
John Pring of Disability News Service wrote the article¬† ‘Cuts mean government ‚Äėis complicit in high levels of domestic violence‚Äô on their appearance.
Ana Pel√°ez, the Chair of the European Disability Forum (EDF) Women‚Äôs Committee and a member of its Executive Committee spoke on the structual problems faced by disabled women and girls
So the first thing we need to say is that violence against women and girls with disabilities is structural violence that arises from the mere fact that when we talk about their specific situation they are not recognised as women or girls. This non-recognition means they are excluded from policies aimed at providing assistance and recovery for women victims of violence. (Another related topic is the accessibility of these services, but today we don‚Äôt have time to go into this.)
A second structural aspect of violence against women and girls with disabilities is that in many cases they are victims of legal incapacitation which takes place due to their gender. This incapacitation is part of the process to enable these women to be subjected to forced sterilisation without their consent, or without their realising what is being done to them. This practise is another type of domestic violence in some ways, because it is the families who, in violation of the CRPD and even article 39 of the Istanbul Convention, choose to sterilise their daughters to protect them against unwanted pregnancies. I don‚Äôt mean to blame the families; they are also victims of the healthcare system, which very often suggests this type of practise. Sterilising a woman means mutilating not only her reproductive capacity, but also her civil, political and economic rights. In addition, the only thing sterilisation achieves is to leave girls and women with disabilities even more exposed to sexual abuse and rape. Even worse, they are also unable to access justice to report the perpetrators or seek remedies, because they have been deprived of their legal capacity.
Here is the Ana Pel√°ez EP¬† (Word doc) speech in full that she kindly send us.
It was wonderful to meet Madelen L√∂w from We Rise Again (Sweden) who spoke her powerful testimony
People who were involved with the event spoke of their willingness to have further collaboration on the topic – we hope so! We will continue to follow the discussions. There was much mention of the Istanbul Convention that we hope will be ratified soon by the UK.
More photos from the event at Flickr account
Joining the Women’s March London Saturday 21st January
Sisters of Frida are happy to march with the¬† Women Equality Party on Saturday. they are supporting us including helping with access needs so that we are able to march together.
They will have volunteers ready to support people with access needs on the day. If you need to contact us here is the mobile number you can contact 07453528706 – it might be better to text.
you can also contact us through twitter @sisofrida
see the access information provided by the organisers
And from the WEP
Getting there and getting away
- Roads will be closed from noon to 17:00, so we suggest that you plan for delays if you are expecting to rely on buses or taxis
- If you are traveling by tube please be advised that Green Park is the only nearby station that is fully accessible. ¬†If buses are off this may mean you need to make your own way to Green Park tube station, which is slightly under a mile from Trafalgar Square
- Please note that the Jubilee line will be closed on the day.
Buses (likely to be disrupted between 12noon and 5pm)
- To reach Grosvenor Square (stops along Oxford Street near Bond Street Station): 6,7,10,13,23,73,94,98,137,139,159,189,390
- To reach Park Lane: 2,10,16,36,73,74,82,137,148,414,436
- To reach Green Park (stops along Piccadilly): C2,9,14,19,22,38
At the start
WE volunteers will be located at both drop-off points and can help guide you to the starting points, and we will also have a volunteer who can accompany you on the shorter march route if you wish
If you think you might need support, please make yourself known to a WE volunteer before the start. ¬†We will be wearing a WE logo card on a lanyard so that you can identify us
During the march
Our volunteers on hand to help if you need any support and people at the back of our block looking out for anyone who needs some help
If you would like someone to buddy you on the march, just let us know.
And if you’re unable to march on Saturday?¬†
Not sure you can get into the Houses of Parliament on a Saturday to use the toilet.
Marchers taking the shorter route from Pall Mall
There is a shorter route joining the march from Pall Mall, and you are welcome to join the WE/Sisters of Frida block from this point. There will be a WE/Sisters of Frida point person at Pall Mall with a banner. The organisers have let us know that there are drop off points for people joining the march on¬†Pall Mall¬†from the north, at the bottom of Regent Street; from the south,¬†Waterloo Place. There will be access stewards with green placards here. It is recommended that you arrive by 1.20pm to join the procession.
We hope you will join us – bring your family, childen, pets,¬† friends, PAs, support workers. We might not be many but we will be seen. But please self care is important, we totally understand if you cannot join the march.
Send us your photo – a very short message and we will tweet it during the march! on twitter or to email@example.com
Submission to the Human Rights Council‚Äôs Universal Periodic Review (UPR)
Sisters of Frida with the Women Enabled International provided evidence to the United Nations Universal Periodic Review of Human Rights of the United Kingdom. We focused on disabled women and specifically on violence against disabled women and domestic abuse.
A Dialogue: Survivors in a disabling environment: what does empowerment of disabled women mean globally?
Venue CCUN Chapel 12.30-2pm (ground floor) Enter by the far door not the side with elevators. The shape of the room (chapel) might prove a challenge for a formal set up.
This panel will be discussing what would empowerment of disabled women mean locally, nationally and globally. We will try to include voices of disabled women (short video clips) from different parts of the world stating what it means to them if its possible with the venue. We will post the clips online for later viewing if not. We will use the Social Model of Disability; that is to say it is systemic barriers, negative attitudes and exclusion by society (purposely or inadvertently), that disable us. We will also look at the different nuances of violence against disabled women, the different forms of abuse and how disabled women in particular are affected. How they survive inspite of having to face numerous challenges/barriers wherever they are in the world.
Alexia Manombe-Ncube (Naimbia)
Alexia is the Deputy Minister of Disability Affairs in the office of Vice President, Namibia. Recently appointed by President Hage Geingob to handle the affairs of physically challenged people, Manombe-Ncube has appealed to stakeholders to highlight the plight of the country‚Äôs disabled people in order for her to realise her ministerial declaration of intent. She also urged stakeholders to apply all their energy towards the empowerment and development of the disabled and specifically to close the gender equality gap.
She champions those in the rural areas saying disabled are have less resources and left to crawl because they do not have wheelchairs like people in the cities. Alexia will be speaking on the status of disabled in Naimbia and her own empowerment as a minister.
Lucia Bellini (UK)
Lucia currently works as an advocate for disabled people who are victims of domestic violence. She is also a Disability Rights Advocate where she assists people to access care packages, to be re-housed, to apply for benefits and to appeal against decisions they are not happy with. She has a masters in Global Citizenship, Identity and Human Rights from the University of Nottingham. In 2008 to 2010, she worked with disabled people‚Äôs organisations in Guyana where she provided disability equality and project management training to many disabled people throughout the country. She is particularly passionate about ensuring disabled women feel empowered and equipped to make their own choices. Lucia will be speaking about disabled women caught up in domestic violence in the UK.
Michelle Baharier (UK)
Michelle (UK) is a visual artist and disabled activist with lived experience of mental-distress for over three decades. She set up and ran a disabled lead arts organisation changing the way disabled people were perceived in the main stream.
She has worked with women’s organisations and on a telephone help line for women affected by violence, and with women from a variety of cultures including the Poppy Project which supports women who have been trafficked to the UK, the Diane project for Iranian women who need a safe place to be due to violence. Michelle will speak about her work with mental health survivors and their struggle for empowerment.
Suzannah Phillips (USA)
Suzannah is the Legal Advisor for Women Enabled International. Her work focuses on legal advocacy with the United Nations and other international and regional forums to strengthen human rights standards on the rights of women and girls with disabilities. Prior to joining WEI, Suzannah was the International Women’s Human Rights Clinical Fellow at CUNY School of Law, Legal Adviser for International Advocacy at the Center for Reproductive Rights (CRR), and a Human Rights Fellow with VIVO POSITIVO in Santiago, Chile. She is currently a member of the International Human Rights Committee at the New York City Bar Association. Suzannah received her J.D. from Columbia Law School and her B.A. in Social Anthropology from Harvard University. Suzannah will be speaking on how different legal instruments can be used to support empowerment of disabled women especially with Women Enabled International‚Äôs work.
Eleanor Lisney (UK)
Eleanor is born Malaysian Chinese of immigrant parents who moved to UK herself for graduate study. She is a founding member of Sisters of Frida will facilitate the meeting.
We will have time to discuss some action points that could lead us to unite across the world in solidarity and in sisterhood.
http://www.sisofrida.org/ email firstname.lastname@example.org @sisofrida
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Last updated: 2 March 16
Sisters of Frida at the WoW Festival 2016!
We are really excited that many Sisters of Frida will be speaking at the WoW Festival 2016. At the moment we can confirm
Saturday 12th 11.30 -12.30
Coming Out as Disabled: Body Image, Labels and Denial of Disability
One in five of us is disabled ‚Äď so why do so many women try to hide their disabilities?
Zara Todd, Debs Williams, Rebecca Bunce and Dyi Hudjg
Saturday afternoon with Sarah Rennie in
Toilets are a Feminist Issue
Ever been frustrated by the queue for the ladies‚Äô? Come and hear about how you can judge the gender equality of a nation by the state of its toilets. Led by the doyenne of toilet politics, Professor Clara Greed.
Sunday 13th 1.15-2.15, Pauline Latchem
‘Chore wars & domestic lives‘ –
this session is about the male/female split of domestic labour and whether or not this is one of the last frontiers of gender inequality.
Tickets can be bought online
Khairani Barokka:poet/disability & arts advocate at Bare Lit Festival 2016!
We wish her all the best!! and hope a few of us will manage to get to see her there at the Free Word Centre¬†!
Khairani Barokka (b. 1985) is a writer, poet, and interdisciplinary artist. She is also a practitioner of think/do advocacy in the arts, particularly on the ways in which innovation in storytelling can increase inclusion and access for and by disability cultures and feminisms (both of which she is happy to be a part of). Born in Jakarta, Okka works, teaches, and is published internationally, in print and online (see WRITING for recently published and forthcoming work). Her lectures, performances, workshops, and/or projects have been presented extensively, in India, the US, Australia, Malaysia, the UK, Austria, Germany, Singapore, and her native Indonesia. She has a masters from ITP at NYU‚Äôs Tisch School of the Arts, as a Tisch Departmental Fellow, working on participatory, interactive art, literature, and social issues storytelling. Her BA (High Honors, College Scholar) was from Middlebury College in Sociology/Anthropology.
Okka is the writer, performer, and producer of a hearing-impaired accessible solo show, ‚ÄúEve and Mary Are Having Coffee‚ÄĚ (with a grant from HIVOS as main sponsor), which premiered at Edinburgh Festival Fringe 2014 as Indonesia‚Äôs only representative. Previously, she pioneered the production of the first live-streamed spoken word shows in Indonesia, involving cross-national collaborations, with a focus on social justice/disability justice. As an independent scholar, she is a member of the International Federation for Theatre Research (IFTR), and has presented at international conferences, festivals, and as a two-time TEDx speaker (Jakarta and Youth@Chennai). Okka was profiled in UNFPA‚Äôs book ‚ÄúInvesting in Young People in Indonesia: Inspirational Young Leaders Driving Social Change‚ÄĚ (2014) for raising awareness of disability issues and perspectives through art and writing. She has also been featured widely in national and international media, among them multiple ABC Australia appearances (radio and television), RRR (Aus), The Hindu (India), The Times of India, The New Current (UK), and all major Indonesian newspapers and media including National Geographic, Esquire, and BBC Indonesia (see PRESS for complete list).
Okka was most recently Artist-In-Residence at Rimbun Dahan (Malaysia, 2014-15) for 6 months, where she worked on writing projects as well as using text in mixed media works. She has also held residencies at Vermont Studio Center (US, 2011; with a grant for poetry, as first Indonesian writer-in-residence), Tutti Arts (AUS, 2013), the EQUILIBRIUM Project at Sandarbh (India, 2014), Jatiwangi Art Factory‚Äôs Village Video Festival (Indonesia, 2012) and was Emerging Writers Festival‚Äôs (AUS) Inaugural International Writer-In-Residence for 2013.
Her first book as sole author, a poetry-Braille-art production entitled “Indigenous Species” (also to be made available in non-Braille versions), will be out in late 2016 with Tilted Axis Press (UK). “HEAT”, an anthology of Southeast Asian urban writing co-edited with Ng Yi-Sheng for Buku Fixi Publishing (Malaysia), will be launched at the London Book Fair in 2016. In September 2015, Okka began a PhD by practice in Goldsmiths’ Visual Cultures Department, on an LPDP Doctoral Scholarship. She continues her work at the intersections of writing, art, disability cultures and participatory narratives with a long-awaited project–it’s been given the enticing codename “Project A”, as lacklustre codenames are significantly underrated as a method of approaching secret missions.
Sitemap of Sisters of Frida
- About Sisters of Frida
- Becky Olaniyi’s speech – transcript
- Events calendar
- Jagoda Risteka’s speech – transcript
- Kirsten Hearn’s speech – transcript
- Pauline Latchem’s speech – transcript
- Simone Aspis speech transcript
- Sisters of Frida and CSW60
- SoF CRPD Shadow report with List of Issues
- Sophie Partridge and Penny Pepper – transcript