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End panel Brexit discussion

SISTERS FRIDA – DISABLED WOMEN’S VOICES FROM THE FRONTLINE

Blackfriars Settlement 9 July 2016

END PANEL DISCUSSION

Panel: Kirsten Hearn, Miss Jacqui, Pauline Latchen, Eleanor Lisney, Becky Olaniyi,

Jagoda Risteska, Jasmina Risteska, Annabel Crowley

Contributers: Michelle Daley, Dyi,

Eleanor introduced an update from Dyi. The Disability and Sexuality project that Djy

and Lani have piloted with an initial meeting last autumn has now got funding to go

ahead. The next meeting will be in July at the New Union Church Hall and thereafter

every month. The project will provide a safe space to discuss issues around

disability and sexuality. More information and details are listed on the Sisters of

Frida website.

Annabel noted that the day had involved lots of interesting and powerful

conversations. The Brexit vote had provided a focus for discussion: the situation

was already difficult before we faced leaving the European Union and things will be

likely to get more difficult: now is the time to make sure we have a voice.

Eleanor commented that if she had not been at this event, she would have been at

Conway Hall to support a rally of Black Activists Against Racism to protest against

spending cuts. As she was unable to attend that rally, Eleanor had written a letter of

support and solidarity which she read out.

Annabel asked everyone what were their concerns in the light of Brexit.

Becky said that she felt there was not a lot of clear information about Brexit,

especially for young people; they should have had an opportunity to contribute and

make decisions. Older people believed that leaving the EU would mean that the

money saved would be paid into the NHS etc. Young people had mainly voted to

remain in the EU but were not really clear why – and people needed to be clear

about that.

Dyi raised the issue of being an EU citizen living in the UK going forward. We need

to think about the reality of that situation, for example in relation to people’s status

with the NHS. This is a real issue for EU citizens in the UK who rely on the NHS –

though of course it may be different for those who don’t. However, Dyi pointed out,

there is also a lot of inequality in relation to healthcare within the rest of the EU.

Annabel asked if Dyi would be looking for wider consultation with EU migrants to

have more information about the implications of Brexit for them. Dyi replied that she

is looking into the legal implications and building up an information bank on relevant

services as a resource which she will be happy to share with others.

Michelle said that we don’t know what the future will look like. She had voted to

remain in the EU, and there was not, had not been, enough information about what

Brexit would look like, or how our lives will be changed by it.

Kirsten said that the whole Brexit campaign had been based on lies, especially about

the NHS and migration. Secondly, all the years of austerity have influenced people,

especially poorer people: these people see migrants and refugees as competing with

them for jobs, services and benefits and these myths are further spread by

politicians, who paint migrants as lazy scroungers. Migrants enrich our country,

however, and it is not true that all migrants come to Britain to claim benefits rather

than to work. Kirsten said that in her local community there has been an increase in

racial hate crime and that the referendum result is advisory rather than mandatory

and parliament should act accordingly. The government should now consider what

things can stay the same and what should change: for example things like

wheelchair spaces on buses and braille labelling, these sorts of things should stay.

Michelle said that when her parents came to the UK, there were signs in public

spaces saying ‘No dogs, no Irish, no Blacks’ and we are going back to those days

and with the same discrimination against disabled people.

Miss Jacqui said that the people who had voted to leave didn’t really know what they

were voting for. Whatever political party is in power, disabled people – disabled

women especially, will be at the bottom of the agenda. Politicians don’t consider

that the decisions they make now will still affect us in ten years’ time. Starting a new

political party is the only solution. She was not happy with David Cameron as prime

minister but is not happy at what may follow his resignation. We need to find and

develop our voice and consider where does it feel safe to talk.

Becky said so many politicians are leaving their jobs, and Michelle said it was their

job to have a plan (going forward). Becky said politicians exist in a bubble, all this

doesn’t affect them, they don’t think: it’s about the money they can make, the secret

deals and they only think about what affects them. Kirsten said she felt quite

depressed now.

Annabel said we do have voices however we express ourselves. How do we build

and expand on safe spaces to express ourselves? Kirsten said that we need to talk

to the communities that voted for Brexit, especially poor people, people who are

alienated. She is trying to talk to people in her street who voted leave, to try to

understand why they did – we haven’t listened to them in the past. One issue is

employment: people going for jobs, not that skilled, which go to migrants: ‘They’re

taking our jobs’. That, and well qualified people paid low wages for jobs they’re over-

qualified for and all the time the right-wing press reinforce the view that migrants are

to blame.

Dyi said that there is a history of colonialism, racism and imperialism and we should

consider what Sisters of Frida can do to support each other. Annabel said we should

consider what resources – communities and spaces – we can build on and share.

Pauline said that wages are being driven down but it’s not the fault of migrant

workers: low wages here are better than what’s on offer in their own countries. We

should blame the government and business owners, not the migrants. Miss Jacqui

said that some people are really picky about what jobs they will take: if you really

want a job you’ll take anything, you will find a job. Blaming migrants is just an

excuse. Michelle said the government is using a tactic of divide, rule and conquer

and what happened in the referendum is just history repeating itself.

In conclusion, Annabel said the discussion could continue on line: this is one way we

can add disabled women’s voices to the discussion. Maybe there could be a Brexit

forum page on the SOF website; a lot of disability rights have come from the EU and

therefore the discussion could link in disabled friends in Europe.

All present were invited to pass on their email addresses to receive further updates.

Videos from Disabled women’s voices in the Frontline

Here are the videos from the day Disabled Women’s Voices from the Frontline Saturday 9th July, 11am – 4.30pm 

Introduction by Annabel Crowley

Simone Aspis

Sophie Partridge and Penny Pepper

transcript

 

Kirsten Hearn

transcript

Miss Jacqui

transcript coming soon

Pauline Latchem

transcript

Guests speakers – Jagoda and Jasmina Risteska

transcript

notes from discussion

Transcripts from Disabled Women’s voices from the Frontline

Sisters of Frida :Disabled Women’s Voices from the Frontline

transcripts

Jagoda and Jasmina Risteka

KirstenHearn

Simone Aspis

Becky Olaniyi

Sophie Partridge and Penny Pepper

Pauline Latcham

 

Presentation from Svetlana Kotova: Women with Disabilities CRPD Article 6

svetlana with other women

Svetlana Kotova with others from the event

Svetlana went to speak about the CRPD Article 6 invited by the Polish Disability Forum and their partners on Sisters of Frida’s behalf on 13th July. This was part of the project “Implementation of the UN Convention on Rights of Disabled Persons – a common cause” . This is co-funded from the EU’s European Social Fund.

Below is her presentation.

Disabled women and CRPD

Disabled women are one of the most marginalised groups in the world.
According to UN they are

  • 3 times less likely to be literate compared to disabled men
  • Twice less likely to be in employment. When in jobs, they are much more likely to do low paid work
  • Disabled women are much more likely to be victims of violence and often have to endure it for longer, because appropriate support is not there.
  • 50% of disabled women have experienced domestic abuse compared with 25% of non-disabled women.
  • Disabled women are twice as likely to be assaulted or raped as non-disabled women.

Both men and women with a limiting illness or disabilities are more likely to experience intimate partner violence.

  • A study of women who access mental health services identified between 50% and 60% had experienced domestic violence, and up to 20% were currently being abused
  • Disabled women are less likely to have access to health services, including family planning and contraception advice. Some are subjected to invasive procedures such as sterilisation or abortions without their consent.
  • Disabled women are overrepresented among those parents whose children are being removed.

There are many reasons for this appalling situation disabled women face. Those reasons are complex. Disabled women were largely overlooked by feminist movement and although disability rights movement was largely gender neutral, it until recently failed to address the specific needs of disabled women. That’s why the CRPD is so important for disabled women.

Before moving to talk about the convention, I want to tell you a couple of stories of disabled women.

Aisha
Aisha is deaf. She lives with her husband and their 2 children. Her husband works and she depends on him financially. He also is the only adult person who helps her to be in touch with the hearing world. She also relies on the help from her children, but sometimes it is just not appropriate to ask them to interpret. Whenever she has medical appointments or just needs to go to her children’s school or shops her husband or children have to interpret for her. From very beginning of their marriage he was abusive to her. He often hit her and sometimes raped her. She tried to talk to her parents about this, but they told her to be kind to him, as in their view it is worse to be alone, than to be with him. Friends told her to call the police next time he beats her, but she is afraid. She knows there isn’t anywhere she can go to, she depends on him totally. Police are not likely to believe her and what will happen to her if he leaves?
Mary
Mary has learning difficulties. She lives in a home with other people with learning difficulties. Mary fell in love, had sex and became pregnant. She was told about sexuality or given advice about contraception she did not realise what was happening to her. Her parents wanted her to have an abortion, but could not achieve this, as Mary did not agree. While she was pregnant nobody told her what would happen at birth or spoken to her about looking after her child. Mary had a very traumatic experience at birth and after that her daughter was removed.

CRPD
UN CRPD is an international instrument that protects both of those women and all other disabled women in the world.

The Convention recognises equality between women and men as one of its key principles. When it was developed, it has been decided to take a twin track approach, meaning that there is a specific article about disabled women along with specific mentions of gender in other articles. The convention seeks to address some of the specific areas where disabled women are most discriminated against.
Article 6, a specific article about disabled women recognises that they face multiple discrimination and requires states to take all appropriate measures to ensure disabled women can enjoy their human rights on the equal basis with others. Art. 6 is a cross cutting article. It therefore should be applied to all the rights in the convention.

Art 6 has 2 parts.

First it is about multiple discrimination disabled women face. Many of us have multiple identities and we are impacted by discrimination cumulatively as disabled women. Multiple discrimination is discrimination based on more than one status. Its effects can combine or grounds can interlink. Disabled women’s situation is often influenced by the fact of both disability and gender. Other factors such as race and ethnicity or economic situation can also have a huge impact.
Multiple discrimination can happen in private and public sphere and the states have a duty to protect in both.
Discrimination disabled women face can take a form of direct discrimination, when disabled women are specifically excluded because of their gender and disability. Indirect discrimination – when policies seem neutral, but have disproportionate effect on disabled women. In the UK for example we argued that disabled women suffered the most from the recent austerity measures.
A denial of reasonable accommodation is also discriminatory. When disabled women for example cannot access breast cancer screening programmes because there is no equipment to accommodate their access needs it can be seen as a denial of reasonable adjustments.
It is important therefore to recognise that violence against disabled women, lack of access to health or maternity services, socio-economic situation of disabled women or lack of their participation and non-existence of their voices in political debate are all caused by multiple discrimination they face. It is also important to remember that disabled women are a very diverse group and there is a great inequality even within this group.
Do we hear the voices of women from ethnic minority backgrounds?
Do we hear the voices of women with learning difficulties?
Do we know the experiences of LGBT disabled women?

Development, advancement and empowerment

The second part of article 6 talks about the need to take all appropriate measures to secure development, advancement and empowerment of disabled women.
Development means giving women better chance in life by developing their skills and knowledge, improving education, economic situation, health, political participation etc. Advancement requires ensuring situation constantly improves.
Empowerment moves women from subjects of pity to right holders and decision makers. In order to be empowered women need to know about their rights and often need a chance to support each other and help each other have a voice. Empowerment is not only about taking part in political life, for many it is about standing up for themselves, being heard within their families, feeling confident and able to make choices. Empowerment is about feeling you are of an equal worth with others and you are making equal contribution in your own way.

Obligations

In short state’s obligations towards disabled women include the following:
Respect – not to take measures that undermine the development, advancement and empowerment of disabled women and girls. For example not to Introduce policies that may have a detrimental impact on disabled women or weaken protections disabled women already had.
Protect –ensure private bodies do not infringe the rights
For example passing the laws that protect disabled women against violence.
Obligation to protect requires states to prevent, investigate, provide redress and protect the victims. In a context of violence, the states need to look at the positive measures they are taking to prevent it from happening. Are there effective ways for reporting it? Many of us need support to do this. Will those reports be investigated and will perpetrators be punished. Most importantly, will a disabled women who experienced violence get support to deal with it and move on. For many this support should include help to live independently in the community. Many of us are afraid to flee violent relationships, because we depend on the perpetrators not only financially, but also for support with our care needs.
Fulfil – To adopt measures needed to secure the development, advancement and empowerment. This requires specific resources and actions to advance the equality for disabled women.

It is really important to ensure there is enough information to assess the situation of disabled women. That’s why the collection of data is vital. The data that is collected about disabled people should be desegregated by gender. On the other hand, the data about women should include the data about disabled women specifically.
When CRPD was developed disabled people, including disabled women played a key part in the process. Nothing about us without us was truly acted upon. And CRPD recognises that disabled people, including disabled women should be involved in the process of implementation of the Convention and it’s monitoring.

It is important to remember that obligations in art 6 are immediately applicable, states cannot rely on progressive realisation.

Now I would like to focus on some specific areas of particular concern. Those are:

  • Violence against disabled women and girls,
  • Sexuality, reproductive rights and motherhood
  • And socio-economic situation

As I said at the beginning we are more likely to be victims of violence. Disabled women are likely to endure it for longer and have very little opportunities to escape. Violence happens because of dependency generally, but dependency of disabled women can be much greater. Perpetrator is often our carer, and sometimes the only carer. We feel it is much harder for us to make it alone. Who would look after us if we lose our main carer? Many of us are afraid to lose children. The feeling of being trapped is very strong and can be caused by many factors which link together.
We are often targeted because of stereotypes, limited mobility, social isolation, economic dependency, difficulties with communication ect.
Our abusers can be family members, support workers, staff at institutions. We often are made to feel grateful for all the help they give us, so we feel powerless to stand up to them and complain. General public largely is sorry for them for the hard life they have looking after a disabled person, do they care about us? probably not. We are often not believed. How those who look after us could abuse us? And they can always find justifications. Many parents for example who want their daughters sterilised justify this as a way to protect them.
Many of us don’t even know that what we endure is not normal. We don’t always know where to go for help and what to say to get help. Some of us need communication support to ask for help, and often rely on perpetrators or other family members to provide it.

Those who do report violence and try to flee often find themselves in a situation where there is nowhere to go. Many of us have to choose either getting some support in an abusive relationship or not getting support for our disability at all.

Sexuality, reproductive rights and motherhood
When I was young, I was often told that people like me should not have children. It is often assumed that disabled women either cannot or should not be mothers. They should not have sex and should not know about it.
Many of us never get sex education. We do not always get family planning advice. Sometimes our families or professionals looking after us get advice on our behalf and make us undergo invasive treatments, such as abortions or sterilisations. We often can’t access reproductive health services or screening programmes for females.
Those of us who have children are constantly afraid to do something wrong. We cannot ask for help because our children could be taken away.
On one hand we are discriminated and marginalised like all other women are, but on the other, we also have to battle the assumptions that we cannot fulfil a female gender role.
Socio-economic situation
When I apply for jobs I know the employers would firstly be reluctant to offer a job to me because I am disabled, but also because I AM A WOMAN.
Disability causes poverty and on the other hand poverty leads too much greater chance of disability.
Disabled women are less likely to be in work and if they are they earn less. We are disproportionately more likely to be a part of informal economy.
This is why we have to rely on services and the support from social security system. Disabled women are more likely to rely on services and would be disproportionately affected by austerity measures.

Gender and disability mainstreaming

One way to ensure the specific needs of disabled women are met in the policymaking is to implement gender and disability mainstreaming. It is important to analyse the policies and assess their possible impact on disabled women. Disabled women should benefits from programmes targeted at women or at disabled people in general.
Disabled women are women and like all other women they are also protected by other international human rights instruments, CEDAW for example. Disabled women should enjoy all the rights guaranteed by CEDAW like all other women and as part of disability mainstreaming, disabled women should be considered when states monitor the implementation of CEDAW.

And finally, I would like to reiterate this point again. It is important to recognise that we all are different our different voices need to be heard and different experiences should be valued and taken into account.

 

svetlanaSvetlana Kotova is one of the founding members of Sisters of Frida. She has conducted training on the CRPD with Disability Lib and is the Policy and Campaigns Advisor at Sense. She is also the proud mother of a toddler daughter.

 

 

 

Photos from the Disabled Women’s Voices

Photos from the Disabled Women’s Voices from the Frontline event taken by Wasi Daniju are now available for viewing. See the full set at her Flickr album.

Here are some of them. Videos coming soon.

 

 

Simone Aspis with outstretched arms

Simone Aspis

 

Kirsten Hearn

Kirsten Hearn

 

Michelle Daley with Jagoda and Jusmina Risteska 3 wheelchair users

Michelle Daley with Jagoda and Jasmina Risteska

 

 

Annabel Crowley

Annabel Crowley

 

 

Becky Olaniyi and Miss jacqui

Becky Olaniyi and Miss Jacqui

 

Black and white photo of 4 women

Q&A Panel on Brexit and other questions

 

Eleanor Lisney

Eleanor Lisney

 

Sophie partridge and Penny Pepper, both wheelchair users reading their poetry

Sophie Partridge and Penny Pepper

 

participants - forefront 2 older women, one white and one Asian, smiling at each other

some of the participants

Pauline Latchem signing

Pauline Latchem

Many thanks to Rosa UK for enabling this event

rosa fund logo

At UN #CSW60

Two Sisters of Frida were at New York city for the ~UN  Committee for Status of Women #CSW60 – here are some of the sessions we took part there.

At Sustainable Development Goals or Sidelining Disabled Girls? Making SDGs Stand for All Women and Girls This side event was sponsored by Women Enabled International, Sisters of Frida & Women with Disabilities India Network

Commission on the Status of Women – CSW60 Side Event
Title: Sustainable Development Goals or Sidelining Disabled Girls? Making SDGs Stand for All Women and Girls
Date and Time: Thursday, March 17 2:30 PM
Location: Church Center of the United Nations – Boss Room, 770 United Nations Plaza New York, NY

The SDGs offer a valuable platform to advance dialogues with States around key areas that impact the lives of women & girls. Yet, despite accounting for almost one-fifth of all women worldwide, disabled women and girls receive scant attention. As the global community undertakes the crucial task of identifying indicators to monitor progress toward the realization of the SDGs & hold States accountable for these commitments, it is essential that this process includes the voices of disabled women  which reflects their experiences of intersecting forms of discrimination. This panel addresses four SDGs that bear on the rights of women with disabilities: Goal 1 (Poverty), Goal 3 (Health), Goal 5 (Gender Equality), & Goal 16 (Peace & Justice). Panelists will discuss barriers that disabled women  face in realizing their rights as they relate to these goals & will address how SDG indicators can better reflect the realities of disabled women  moving forward.

Eleanor Lisney (UK) – Goal 1 (Poverty) – impact on disabled women of government program cuts –

SDG goal 1. poverty transcript

At A Dialogue: Survivors in a disabling environment: what does empowerment of disabled women mean globally?

Date and Time: Thursday, March 24 12:30 PM
Location: Church Center of the United Nations – Chapel, 770 United Nations Plaza New York, NY
This panel will be discussing what would empowerment of disabled women mean locally, nationally and globally. We will try to include voices of disabled women (short video clips) from different parts of the world stating what it means to them.
Clip from Khairani Barokka (Indonesia)

Clip from Dr Huhanna Hickey (New Zealand)

 Clip from Jamie Bolling, European Network of Independent Living (ENIL)

We will use the Social Model of Disability; that is to say it is systemic barriers, negative attitudes and exclusion by society (purposely or inadvertently), that disable us. We will also look at the different nuances of violence against disabled women, the different forms of abuse and how disabled women in particular are affected. How they survive inspite of having to face numerous challenges/barriers wherever they are in the world.
Speakers
Alexia Manombe-Ncube (Namibia)
Alexia is the Deputy Minister of Disability Affairs in the office of Vice President, Namibia. Recently appointed by President Hage Geingob to handle the affairs of physically challenged people, Manombe-Ncube has appealed to stakeholders to highlight the plight of the country’s disabled people in order for her to realise her ministerial declaration of intent. She also urged stakeholders to apply all their energy towards the empowerment and development of the disabled and specifically to close the gender equality gap.
She champions those in the rural areas saying disabled are have less resources and left to crawl because they do not have wheelchairs like people in the cities. Alexia will be speaking on the status of disabled in Naimbia and her own empowerment as a minister.

Lucia Bellini (UK)
Lucia currently works as an advocate for disabled people who are victims of domestic violence. She is also a Disability Rights Advocate where she assists people to access care packages, to be re-housed, to apply for benefits and to appeal against decisions they are not happy with. She has a masters in Global Citizenship, Identity and Human Rights from the University of Nottingham. In 2008 to 2010, she worked with disabled people’s organisations in Guyana where she provided disability equality and project management training to many disabled people throughout the country. She is particularly passionate about ensuring disabled women feel empowered and equipped to make their own choices. Lucia will be speaking about disabled women caught up in domestic violence in the UK.

Michelle Baharier (UK)
Michelle (UK) is a visual artist and disabled activist with lived experience of mental-distress for over three decades. She set up and ran a disabled lead arts organisation changing the way disabled people were perceived in the main stream.
She has worked with women’s organisations and on a telephone help line for women affected by violence, and with women from a variety of cultures including the Poppy Project which supports women who have been trafficked to the UK, the Diane project for Iranian women who need a safe place to be due to violence. Michelle will speak about her work with mental health survivors and their struggle for empowerment.

Suzannah Phillips (USA)
Suzannah is the Legal Advisor for Women Enabled International. Her work focuses on legal advocacy with the United Nations and other international and regional forums to strengthen human rights standards on the rights of women and girls with disabilities. Prior to joining WEI, Suzannah was the International Women’s Human Rights Clinical Fellow at CUNY School of Law, Legal Adviser for International Advocacy at the Center for Reproductive Rights (CRR), and a Human Rights Fellow with VIVO POSITIVO in Santiago, Chile. She is currently a member of the International Human Rights Committee at the New York City Bar Association. Suzannah received her J.D. from Columbia Law School and her B.A. in Social Anthropology from Harvard University. Suzannah will be speaking on how different legal instruments can be used to support empowerment of disabled women especially with Women Enabled International’s work.

Questions/comments

 

Dieuwertje Dyi Huijg: Coming out as disabled: Body Image, labels and denial of disability – panel speech at WOW 2016

[Screaming:]

 

IS THERE A​NYBODY HERE WHO IS NOT DISABLED, ILL, PREGNANT, OR FOR ANOTHER REASON NEEDS TO SIT DOWN, AND WOULDN’T MIND TO GIVE UP THEIR SEAT? THANK YOU.

By the time the train gets to my station, there are normally no seats left. Often I need to sit down to save energy to get to work and, well, work. When I go to town to work, I go to university to teach. Teaching is a profession as well as a performance: you give it your 200% in a compressed amount of time, having half of your energy simply won’t cut it.

Apart from this swollen and somewhat bruised eye right now, people assess me as a healthy, young, white, heterosexual, middle classed and generally privileged woman. True. Except that I’m not healthy (well, nor young or straight). Apart from the moments I am so utterly exhausted it looks like my eyes will pop out, puke on someone’s lap, or faint if I stand any longer on my feet, —none which normally will happen as I try to wait till I get off the train to crash or return the contents of my intestines to the world—, people feel no inclination whatsoever to stand up for me. Hell, unless someone is pregnant, looks like their eyes pop out, they faint or puke on my lap, are old and deserved their seat-stickers, walk with a cane, look like they’ve been doing some hard physical work all day, I just want to sit and read my book with Arial 20. Just because I’ve the energy levels of a snail on weed, doesn’t mean I’m a saint!

I have an invisible disability. I am invisibly disabled.

I sometimes compare the status of “being invisibly disabled” with that of having a femme identity. I identify as a femme dyke, even though I left my stiletto heels at home, because, arthritis. In your eyes, though, I’m probably the average straight chick on the panel. The queer politics, lesbian coming out hurdles and the drama of my ever-search for The Right Butch in my attempts to adhere to 2016’s dyke normativity of gay marriage aside, ultimately being a femme dyke provides me fun –whether visible to you or not. Dresses and snogging hot women and so forth.

Truth is, not so much with my health shit. Sure, having a bit of vertigo now and then gives The Butch a reason to hold me tight and protect me from an unbalanced world. I’m emancipated like that and know when to take advantage of my disabilities. But, really – not really.

According to the social model of disability, my participation in society would be equal with the priority seats and the “Look at my face, you can’t see it but I’m disabled”-pass. I don’t have a pass that proves that I’m disabled. If you can’t see it in my face, how do you know I’m disabled? If you don’t know that I’m disabled – am I disabled?

Every time that I enter the carriage, do not find an empty seat, then scream out loud in the hope that someone, always a man, stands up for me feeling gentlemanly, saving the ill and maybe even contributing to Justice, I go through an identity crisis. Yes, afraid that no one will stand up and I’ve to use spoons I don’t have in reserve, but also ashamed and guilty because, having grown up in a society where you simply man up your illness, endure your shit, because “normal is crazy enough”, somewhere in me I don’t believe I am sufficiently ill. That I am allowed to identify as disabled. That I am allowed to force others to take responsibility for their abled privilege. Coming out as disabled, I make a difference visible; where you stand up so I can sit down.

Rationally, I think that after 13ys of a variation of chronic health shit I’ve earned my stripes. But if I’m disabled, but you can’t see it, how do you know you’re abled …when you look just like me? And when you look just like me, how can I be disabled?

Because you have a bit of a headache. And your feet hurt after a day work. And you can’t remember everything. And you’re tired a bit. And without glasses you can’t see shit. And when you drink too much coffee your stomach is upset. And when you’re in a pub, your friend needs to scream for you to hear it. So, you know what it is like.

And if you know what it is like, then you know my experience. And if you know my experience, you can judge me. So if you’re not disabled, and didn’t you know what it was like?, then I’m not disabled.

Despite the promises of the social model, it is my busy relation with the NHS, the cocktail of drugs I take, the compilation of chronic illnesses, symptoms and side effects I live with, and the continuous rollercoastery adjustments to reality, desires and hopes, that contribute to what I so eloquently have categorised as Health Shit. Coming out as disabled doesn’t change much about the invisibility of my disabilities and experiences. You standing up to offer me your seat doesn’t end my identity crisis, eliminate assessing looks, or possibly solve the normativity of abledness, but, hell, it does give me a break.

DyiPresentation by Dieuwertje Dyi Huijg for the panel “Coming out as disabled: Body Image, labels and denial of disability”, Women of the World Festival 12/3/ 2016.

Dyi Huijg has coordinated, organised and facilitated networks, meetings and workshops in various social movements internationally (Latin America and Europe) and nationally (The Netherlands). In 2009 she moved from Amsterdam to the UK to do her PhD in Sociology, at the University of Manchester, about power relations and inequality, agency and social structure, and activism and social change. She also started to teach on a variety of topics, among which gender, sexuality, relationships and personal life. Currently she teaches at the University of Westminster. When she moved to London in 2013, she started to facilitate more professionally, followed train-the-trainer workshops, gained a person-centred certificate in Facilitation of Therapeutic Groups (LC&CTA), and is currently in the process of completing a Group Facilitation Certificate (Gestalt Centre). She has facilitated for London Roots Collective and is currently facilitating a lesbian, bi and trans women coming-out group in London.

 

Sustainable Development Goals or Sidelining Disabled Girls? Making SDGs Stand for All Women and Girls

Please come to support us 
Commission on the Status of Women – CSW60 Side Event
Title: Sustainable Development Goals or Sidelining Disabled Girls? Making SDGs Stand for All Women and Girls
Date and Time: Thursday, March 17 2:30 PM
Location: Church Center of the United Nations – Boss Room, 770 United Nations Plaza New York, NY

The SDGs offer a valuable platform to advance dialogues with States around key areas that impact the lives of women & girls. Yet, despite accounting for almost one-fifth of all women worldwide, women and girls with disabilities receive scant attention. As the global community undertakes the crucial task of identifying indicators to monitor progress toward the realization of the SDGs & hold States accountable for these commitments, it is essential that this process includes the voices of women with disabilities& reflects their experiences of intersecting forms of discrimination. This panel addresses four SDGs that bear on the rights of women with disabilities: Goal 1 (Poverty), Goal 3 (Health), Goal 5 (Gender Equality), & Goal 16 (Peace & Justice). Panelists will discuss barriers that women with disabilities face in realizing their rights as they relate to these goals & will address how SDG indicators can better reflect the realities of women with disabilities moving forward.
Speakers:
Asha Hans (India) – Goal 16 (Peace & Justice) – impact of conflict on women and girls with disabilities, especially those who are refugees
Eleanor Lisney (UK) – Goal 1 (Poverty) – impact on women with disabilities of government program cuts
Andrea Parra (Colombia) – Goal 3 (Health) – sexual and reproductive health and rights, including forced sterilization and access to health care for women and girls with disabilities
Adaobi Egboka (Nigeria) – Goal 5 (Gender Equality) – Gender-based and sexual violence and access to justice for women and girls with disabilities
Stephanie Ortoleva (USA) – Welcome and Conclusion
Suzannah Phillips (USA) – Moderator ​
Sponsors:
Women Enabled International, Sisters of Frida & Women with Disabilities India Network
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For more information: Email Info@WomenEnabled.org or hello@sisofrida.org

Sisters of Frida at #WOWLdn

This year is amazing! so many of us will be at the WoW festival this weekend! do go along and support -if you can get a ticket!

Coming out as disabled: Body Image, labels and denial of disability

One in five of us is disabled – so why do we try to hide it from our friends? How do we ‘come out’ as disabled women?

side profile of Zara Todd

Zara Todd

Venue Level 4 Blue Bar at Royal Festival Hall

Time 11:15am – 12:15pm

Date Saturday 12 March 2016

One in five of us is disabled – so why do we try to hide it from our friends? How do we ‘come out’ as disabled women? Four women tell their stories. Speakers include Deborah Williams, Diversity Manager BFI; Dieuwertje Dyi Huijg, Visiting Lecturer, Sociology at University of Westminster and Rebecca Bunce, human rights researcher and campaigner.

 

Chaired by Zara Todd, disability rights campaigner and activist.

In partnership with Sisters of Frida.

Others

Sexism Makes Us Sick Examining Woman’s health

Annabel

Annabel Crowley

Venue St Paul’s Roof Pavilion at Royal Festival Hall

Time3:45pm – 4:45pm

Date Saturday 12 March 2016

Examining women’s health Heart disease kills more women than men each year, fewer women than men survive a heart attack, so why do we hear so little about it? In mental health, women are more than twice likely than men to have depression and less likely to be taken seriously. How does gender affect physical and mental health care and what can we do to change the status quo? Speakers include Bridget Hargreaves, author of post natal depression memoir Fine Not Fine; Dr Victoria Showunmi, lecturer on migraines at the UCL Institute of Education.

 

Chaired by Annabel Crowley.

Toilets are a Feminist Issue

Sarah Rennie head shot

Sarah Rennie

Venue St Paul’s Roof Pavilion at Royal Festival Hall 

Time2:15pm – 3:15pm

Date Saturday 12 March 2016

Come and find out why you should give a shit about toilets. From women always having to queue, to the lack of toilet facilities in the developing world having a devastating effect on women’s safety, what can toilet provision tell us about gender equality? Come and join the grand doyenne of public toilets Prof. Clara Greed; award winning writer and feminist Beatrix Campbell; Changing Places campaigner and disabled feminist Sarah Rennie and periods activist and founder of #periodpostive Chella Quint to discuss. Beware – there may be toilet humour.

Chaired by New Statesman Deputy Editor, Helen Lewis.

Type of event
Talks and debates
Running Time
60 mins

Chores Wars and Domestic Lives

pauline with umbrella

Pauline Latchem (photo from Eleanor Lisney)

 

Venue The Clore Ballroom at Royal Festival Hall 

Time1:15pm – 2:15pm

Date Sunday 13 March 2016

Studies show that women still do twice as many chores as male partners, even when they work full-time. From housework to ‘emotional labour’, is this one of the last frontiers of normalised gender inequality? And how can we level the playing field? Speakers include counseller and lifelong feminist Pauline Latchem, and teacher and writer Lola Okolosie.

Chaired by Laura Bates, founder Everyday Sexism Project.

 

 

Black Feminisms/Black Women Pop Culture

Becky Olaniyi

Becky Olaniyi

Venue Level 3 Foyer (Green Side) at Royal Festival Hall 

Time4:00pm – 5:00pm

Date Sunday 13 March 2016

What does the portrayal of black women in popular culture tell us about race, sex and power? Join journalist and campaigner Reni Eddo Lodge, visual sociologist Emma Dabiri, activist Becky Olaniyi and playwrite Adura Onashile as they discuss the joys and challenges of being a black feminist.

Chaired by Senior Programmer, Contemporary Culture and journalist Hannah Azieb Pool

Rebecca and Zara at Youth Action Festival, Dec 2015

We were asked if Sisters of Frida works with young people and yes, we do. Becky Olaniyi was very much in the picture as part of the Steering Group until she rolled into university and have too much on with university work and getting used to campus life.

And we recently had a thank you note to Zara Todd for Rebecca’s and their  workshop ‘Gender and Disability Discrimination’  at the Youth Action Festival

 

“... but I wanted to say a huge thank you for everything you did for the Youth Action Festival in December. I wanted to thank you and your colleague for giving up your Saturday and providing such a meaningful contribution to the day. We really could not have made the event the success it was without you.

 

Overall the event was a huge success. Please do have a look at the quotes from evaluation forms on the attached letter that give a flavour of what an incredible impact the day had on participants.

 

We also used the solutions that young people put forward during the day and the learning from the day to shape the policy and ideas for our Learn Without Fear UK campaign this year. You can see our campaign and policy content on our web pages and in articles in the press Daily Telegraph Wonder Women section, Metro.co.uk, Huffington Post, Good Housekeeping and the Daily Express.

Thank you Zara and Rebecca!

 

Rebecca at a table with a group

Rebecca

Zara with a reddish jumper at a table with other girls

Zara

Photo Credit: Plan International//Jessica McDermott