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Sisters of Frida at Brussels ENIL Freedom Drive

Some Sisters of Frida went to ENIL 2017 Freedom Drive,  which brought together 300 Independent Living activists from 19 countries in Brussels.

Sisters of Frida behind the banner which says Sisters of Frida, Disabled Women's Collective. They are all wearing read teeshirts. Four wheelchair users.

Zara Todd, Lani Parker, Michelle Daley and Eleanor Lisney, and Rachel O’Brien (photo by Mladen Spremo)

It brought an an end to a week of promoting independent living, peer support, protest and celebration of disability rights. The Freedom Drive has brought together around 300 independent living activists from 19 countries, from as far East as Albania, to Norway in the North.

Among the main Freedom Drive demands were the end to institutionalisation of disabled people across Europe, access to personal assistance in all countries, full implementation of the UN Convention on the Rights of Persons with Disabilities and the end to cuts to support services and benefits for disabled people.

Lani Parker and Michelle Daley said:

 

We also met some MEPs, Anthea McIntyre MEP, Keith Taylor MEP, Molly Scott-Cato MEP, Wajid Khan MEP, and Daniel Dalton MEP, among others to ask them questions on independent living, accessibility, inclusive education, disability rights after Brexit, freedom of labour as part of the EU among other issues.

with man in a squatting position, 3 women wheelchair users and one woman in front.

with Wajid Khan MEP (Labour), Rebecca Farren, Lani Parker, Tara Flood and Michelle Daley (photo by Katai)

2 wheelchair users (one  black woman and one white) at either end. 3 people on sofa, all white, one man 2 women)

Tweet from Molly Scott Cato MEP with Michelle Daley, (Green Party) Keith Taylor MEP, Molly Scott Cato MEP, Tara Flood and Lani Parker

The night before the march we met up with other British attendees for dinner, including Sarah Rennie (Sisters of Frida, Steering Group member) , who had to leave before the march.

People seated at table at restaurant

dinner with other British attendees of Freedom Drive (photo by Debbie)

people at dinner table at restaurant

dinner with other British attendees of Freedom Drive (2nd table) (photo by Debbie)

We were outside the European Parliament the next day to join the other ENIL Freedom marchers on the streets of Brussels.

Michelle (wearing the red tee ENIL teeshirt) with her hand raised up in a fist leading some of the procession

Michelle Daley leading some of the way. (photo by Katai)

Thank you all for all who came with us. Thank you for ENIL to organising this and we wish Zara Todd, as incoming director, the best for the future.

More photos at Sisters of Frida Flickr account.

Involvement of Disabled Women: Nothing about us without us

The UN Committee on the Convention of the Rights of Persons with Disabilities (CRPD) published its concluding observations following its first review of the UK government’s compliance with the Convention. We contributed to the report and went to Geneva, as volunteers, to ensure that violations of disabled women’s rights were given attention. The Committee highlighted many areas of concerns which explicitly or indirectly affect disabled women, but we’ve highlighted three key themes below.

 

1) Involvement of Disabled Women: Nothing about us without us

 

We share the Committee’s concern that disabled women and girls’ rights “have not been systematically mainstreamed into both the gender equality and disability agenda” and support its specific recommendation to “adopt inclusive and targeted measures, including disaggregated data” to prevent the multiple and intersectional discrimination we face.

 

Mainstreaming our rights, requires our involvement. We therefore also welcome the Committee’s recommendation to allocate “financial resources to support organisations representing [disabled women]” and develop mechanisms to ensure our involvement in planning and implementing law which affects our lives. For example, we were not consulted on the drafting of the coercive abuse offence in the Serious Crime Act. If we had, we would have been able to show how the ‘best interests’ defence for carers dangerously undermines the rights and safety of disabled women and people with learning disabilities.

 

Strategies need to be measured, financed and monitored. We therefore welcome the Committee’s recommendation for mechanisms to support our involvement in the design of strategies to implement the Convention through “measurable, financed and monitored strategic plans of action”. Measurability requires the collection of disaggregated data and this has been repeatedly called for by UN rapporteurs. Gaps in data mask the multiple discrimination faced by disabled women.

 

2) Multiple and Intersectional Discrimination

 

Disabled women experience sexism and dis/ableism in our everyday lives, along with many other forms of oppression (eg. based on age, sexual orientation, economic status and migrant status). Here’s an example to illustrate. A visually impaired woman cannot access information on an NHS website due to inaccessibility. This is disability discrimination, but is gender-neutral. However, lack of access to family planning services is clearly gender and disability discrimination. If she is actually a teenage girl living in a remote indigenous community, clearly intersections of multiple aspects of her identity operate to exacerbate the disadvantages she faces.

 

This is why the Convention specifically addresses the rights of disabled women in Article 6. It requires the Government to recognize that disabled women and girls face multiple discrimination. It’s therefore crucial that the Government implement the Committee’s recommendation to explicitly incorporate protection from “multiple and intersectional discrimination” in national legislation. Whether it’s routine GP appointments, cervical testing or maternity care, disabled women constantly struggle to access medical services, so we strongly support the Committee’s recommendation to develop “targeted measurable and financed” strategies to eliminate barriers in access to health care and services and to measure their progress.”

 

3) Access to Justice

Our rights are worthless if they are unenforceable or ignored. The barriers with the justice system are procedural, financial and accessibility-related and stop us from bringing claims to enforce our civil rights, count against us in proceedings (eg divorce and family matters) and prevent us from reporting criminal abuse against us.

 

We therefore strongly support the Committee’s recommendations:

  • to develop training for the judiciary and law enforcement personnel. The UN Special Rapporteur on violence against women has already noted concerns about “women being deemed unfit mothers for having ‘failed to protect’ their children from an abusive parent”. Ignorant, counterproductive and damaging comments and actions by judges and police must end.
  • to provide “free or affordable legal aid” for disabled people in all areas of law. The UN Special Rapporteur on violence against women has specifically noted concern about the evidential requirements to apply for legal aid and the consequences for family law problems.

 

The many other areas of concern noted by the Committee can be read here

 

Next Steps

 

We were disappointed by the lack of media attention given to the 17-page catalogue of shame but the disabled community, including the DPOs, continue to valiantly highlight the UN’s findings.

 

Whilst we welcome the Committee’s recommendation for the UK Government to produce annual reports on its progress, we fear it will be another exercise of denial and lack data, evidence or understanding of intersectional discrimination.

 

We, Sisters of Frida, are preparing for CEDAW (Convention on the Elimination of all Forms of Discrimination Against Women) and working with other women’s organisations on this. In the meantime, we are joining the ENIL Freedom March in Brussels and will raise it with our MEPs as to how they will be responding to protecting disabled women on VAWG as the Istanbul Convention is being ratified by the UK government.

 

Vivienne Hayes MBE, CEO of the Women Resource Centre says:

“The last time Sisters of Frida went with the UK CEDAW Working Group to Geneva, we noted in our oral statement that women of all ages and backgrounds in the UK are facing threats to their rights but this does not have to be the case if government policies are created in partnership with women’s NGOs and include a gendered perspective. This will ensure that there is not a long-term legacy of discrimination against women, and will also impact on the future economy.

 

In 2017, Sisters of Frida note that disabled women are acknowledged as still facing the same level of discrimination in the UNCRPD Concluding Observations. We call upon the UK government to honour its commitment to women’s rights and work with us to establish a clear and inclusive mechanism in order to bring women’s voices into the heart of government.”

 

Dr Mary-Ann Stephenson, Co-Director of the Women’s Budget Group said:

 

‘We know that disabled women have been hit particularly badly by austerity policies over the last seven years. Disabled women have lost income through cuts to both specific disability benefits but also to housing benefit, tax credits and benefits for children. Cuts to public services including social care, health, education and transport budgets have all disproportionately affected disabled women.

The Public Sector Equality Duty, contained in the 2010 Equality Act, places a positive obligation on all public authorities to have due regard to the impact of their policies and practices on equality. Despite this the government have failed to publish meaningful assessments of the cumulative impact of austerity on equality.

We call on the government to meet both their obligations under both domestic and international law to ensure that their policies meet the needs of disabled women’

 

Sarah Green, Co-Director, End Violence Against Women Coalition said:

 

“It is known that disabled women are disproportionately subjected to sexual and domestic violence by perpetrators of these crimes, and that disabled women face additional barriers to escaping and staying safe, and even in being believed.

 

“International human rights treaties require our Government to ensure that disabled women’s needs are specifically considered and addressed when implementing policy on policing and preventing violence. Following the UN CRDP inquiry into the UK’s performance in this area, we need to hear assurances from the UK Government that disabled women’s needs are known and are made part of policy and practice in relation to ending and preventing abuse.”

 

Pragna Patel, Director, Southall Black Sisters said:

 

‘Leave no woman behind’ is an important development and human rights goal that is central to achieving gender equality and one to which the UK government claims to be committed. But in the UK this goal remains largely rhetorical as the most vulnerable women – those with disabilities and multiple needs – are rendered marginalised and invisible by increasingly harsh economic and social welfare measures. Disabled women’s needs and rights are being gravely and systematically violated by the UK government. Why else do we see such an appalling lack of access to emergency shelters, secure housing and welfare rights, education, work, health and counselling facilities for disabled women who are also fleeing domestic violence? If the UK wants to be recognised as a leader in disability and human rights, it must develop laws, policies and strategies that enhance the rights of all women. This means understanding and addressing the overlapping and intersecting forms of discrimination such as race, gender and disability that create additional vulnerabilities and barriers for women. Sadly this government is unlikely to turn its rhetoric on achieving a ‘fairer’ society into reality but we are ready to stand with our disabled sisters to shame the government into action.

 

Lee Eggleston on behalf of Rape Crisis England and Wales said:

 

‘Disabled women who have experienced sexual violence make up a quarter of Rape Crisis service users – which is an indication of how disproportionately disabled women are impacted by sexual violence, often by their own carers. The voice and engagement of specialist organisations run by and for disabled women, like Sisters of Frida and Stay Safe East, is essential to the CEDAW process in raising awareness of sexual violence to the Committee.’

 

Zarin Hainsworth OBE, Chair,  National Alliance of Women’s Organisations

 

Disabled women  face multiple disadvantage in being able to participate as fully as they wish in all aspects of their lives – social, as well as political and economic .  The CEDAW Committee made recommendations in their concluding observations to their last report that would improve the capacity of women in the UK to access health care and justice but little has been achieved and austerity policies combined with a lack of specific attention to the issues faced by disabled women, make these more not less distant goals.  Indeed, disabled women – especially those with learning disabilities who are also likely to experience mental ill-health – continue to face the loss of their babies at birth.

We strongly support NAWO members, Sisters of Frida, in their campaign for focused attention by the UK Government on the needs and concerns of disabled women and girls.’

 

 

We would be happy to hear from others, individuals and/or organisations, who would like to join us in our campaign for disabled women’s rights in issues mentioned here. Please comment below or write to [email protected], tweet @sisofrida

 

Note: Stay Safe East is a unique user-led organisation run by disabled people, providing specialist and holistic advocacy and support services to disabled people from diverse communities in East London (currently Waltham Forest and Newham) who are victims/survivors of domestic or sexual violence, hate crime, harassment and other forms of abuse.

 

A ‘human catastrophe’ – New UN condemnation for UK human rights record

The UK Government’s claim to be a ‘world leader in disability issues’ has today been crushed by the UN Committee on the Rights of Persons with Disabilities. The Committee has released damning Concluding Observations on the UK, following its first Review of the government’s compliance with the Convention.

The Observations conclude last week’s public examination of the UK Government’s record on delivering disabled people’s rights. The examination was declared by the UK rapporteur Mr Stig Langvad, to be “the most challenging exercise in the history of the Committee”. Mr Langvad raised deep concerns on the UK Government’s failure to implement the rights of disabled people. He also noted the government’s “lack of recognition of the findings and recommendations of the (2016) Inquiry” which found ‘grave and systematic violations of disabled people’s human rights’.

Deaf and Disabled People’s Organisations (DDPOs) were hailed as the genuine “world leaders” for their efforts in bringing to light the injustices and human rights violations inflicted on disabled people in the UK.

The UK Delegation of Deaf and Disabled People’s Organisations has issued the following joint statement:

“Today the UN(CRPD) Committee has, once again, condemned the UK Government’s record on Deaf and Disabled People’s human rights. They have validated the desperation, frustration and outrage experienced by Deaf and Disabled people since austerity and welfare cuts began. It is no longer acceptable for the UK Government to ignore the strong and united message of the disability community.

UK Government representatives committed during the review to rethinking the way they support Deaf and Disabled People to monitor our rights. We welcome this commitment.  However, we are clear that our involvement must be genuine and inclusive and that we cannot accept anything less than progress on delivering the human rights enshrined in the Convention, and denied us for too long.

DDPOs have established themselves as a force to be reckoned with following a long campaign of challenging the Government’s blatant disregard for the lives of Deaf and disabled people in the UK. The unity and solidarity demonstrated by the Committee and the UK Independent Mechanism in supporting our calls for justice continue to strengthen us.

Michelle Daley, a Director of Sisters of Frida, said –

“The rights of disabled women and girls have not been systematically mainstreamed in the UK. The UN is obviously recognising this.

The proper collection of disaggregated data has been repeatedly called for by UN rapporteurs. Gaps in data mask the multiple discrimination faced by disabled women.

We welcome the Committee’s recommendation that the State allocates resources to support representative organisations for disabled women and girls and secure our strategic involvement and contributions in legislation. Perhaps this would, in future, avoid abhorrent situations like the ‘best interests’ defence for carers committing coercive and controlling abuse which the Government introduced without consulting us.”

Notes to editors:

  •     The Concluding Observations are published on the Committee’s webpage (UK section) : http://tbinternet.ohchr.org/_layouts/treatybodyexternal/SessionDetails1.aspx?SessionID=1158&Lang=en
  •     DDPOs across the UK have worked in coproduction to collect evidence and compile the reports through the Review process. The delegation of DDPOs present in Geneva w/c 21st August 2017 included Disability Rights UK, Inclusion Scotland, Disability Wales, Disability Action Northern Ireland, the Reclaiming our Futures Alliance, British Deaf Association, People First Scotland, Alliance for Inclusive Education, Inclusion London, Disabled People Against Cuts, Equal Lives, Black Triangle, Sisters of Frida, Black Mental Health UK.
  •     Contributions were also received from Innovations in Dementia, HFT and Intersex NGO Coalition.
  •     On 23rd and 24th August the examination of the UK Government took place in Geneva, with the UN Committee on the Rights of Disabled People. The report of the dialogue can be found here, with links to submission documents: http://www.ohchr.org/EN/NewsEvents/Pages/DisplayNews.aspx?NewsID=21993&LangID=E
  •     The committee postponed its assessment of the UK (originally due in 2015) to investigate a complaint of the violation of disabled people’s rights as a result of welfare reform. This was brought under the optional protocol of the Convention. The findings expressed concern of grave and systematic violations of disabled people’s human rights. That investigation looked only at a part of the UN Convention on the Rights of Disabled People – with a particular focus on the impact of austerity measures and welfare reform. The Review looked at a much wider set of issues, including our laws on mental health and mental capacity, policies on employment and education and more.

Inquiry report, 2016: http://www.ohchr.org/EN/HRBodies/CRPD/Pages/InquiryProcedure.aspx

  •     A lay person’s guide to the Review process and Examination can be found here: www.disabilitywales.org/crpd17
  •     Statistics about disabled women: http://www.sisofrida.org/resources/disabled-women-facts-and-stats/
  •     Section 76 of the Serious Crime Act 2015 created a new offence of controlling or coercive behaviour in an intimate or family relationship. It is a defence for accused abusers to show that they believe their behaviour was in the victim’s best interests and reasonable.

Disabled Women: Facts and Stats

We often get asked why we campaign for the rights of disabled women. Here are a few reasons.

 

Employment and Pay

  • 35% of disabled women (and 30% of disabled men) are paid below the National Living Wage in the UK.[1]
  • Disabled men face a pay gap of 11%, while disabled women faced a gap twice as large at 22%.[2]
  • Despite qualifications, disabled women have lower participation rates in higher skilled jobs and work fewer hours than both non-disabled women and disabled men.[3]
  • 27% of disabled women are economically inactive compared with 16% disabled men.[4]
  • Lone parenthood reduces female employment generally by 15%. However, disabled female lone parents are more than half as likely to work than non-disabled female lone parents.[5]

 

Violence and Abuse

  • Disabled people experience more domestic abuse than non-disabled people. Disabled women are significantly more likely to experience domestic abuse than disabled men.[6] In fact, one in ten experienced domestic abuse in 2012-13.[7]
  • Abuse is also more severe, more frequent and more enduring.[8][9][10]
  • Deaf women are twice as likely as hearing women to suffer domestic abuse.[11]
  • The Serious Crime Act 2015 made ‘coercive and controlling behaviour in an intimate or family relationship’ a criminal offence (s.76). The Act provides that it is a defence for a perpetrator to show that they believed themselves to be acting in the victim’s ‘best interests’. This was intended to cover carers. We believe this defence risks preventing disabled women and people with learning disabilities from seeing their abusers brought to justice.

 

Health and Medical Care

  • UK maternity care does not meet the needs of disabled women. A 2016 study revealed that only “19% of disabled women said reasonable adjustments had been made for them.”[12]
  • The CEDAW Committee is concerned that “Disabled, older, asylum seeking and Traveller women face obstacles in accessing medical health care and that Disabled women have limited access to pre-natal care and reproductive health services”.[13]
  • Disabled women, particularly with learning difficulties, are at risk of forced sterilisation in the UK or are encouraged to consent to sterilisation as a form of ‘menstruation management’ rather than be presented with a range of options available to other women.

 

Mental Health

  • Disabled women with a mental health problem die on average 13 years earlier than the general UK population.[14]
  • Nearly half of female prisoners in the UK have been identified as having anxiety and depression. This is double the rate of male prisoners. What’s more, nearly half female prisoners (more than double the rate for men) report attempting suicide.[15]

 

Public Life

  • The CEDAW Committee is concerned that ethnic minority and disabled women are particularly poorly represented in Parliament, the legal system and on public sector.[16]

 

You download this as a factsheet here: Disabled women – Facts and Stats 2017

[1] Equality and Human Rights Commission. 2017. Being Disabled in Britain. https://www.equalityhumanrights.com/sites/default/files/being-disabled-in-britain.pdf

[2] Papworth Trust. 2016. Disability in UK 2016 Facts and Figures. http://www.papworthtrust.org.uk/sites/default/files/Disability%20Facts%20and%20Figures%202016.pdf

[3] All Party Parliamentary Group for Women and Work. 2016. Women Returns Annual Report 2016. https://connectpa.co.uk/wp-content/uploads/2016/03/Women-and-work-Annual-report-low-res.pdf

[4] TUC. 2015. Disability and employment. https://www.tuc.org.uk/sites/default/files/DisabilityandEmploymentReport.pdf

[5] The Poverty Site, 2011 http://www.poverty.org.uk/45/index.shtml

[6] Adding insult to injury: intimate partner violence among women and men reporting activity limitations. Cohen, M. et al. 8, 2006, Annals of Epidemiology, Vol. 16, pp. 644-651

[7] Public Health England. 2015. Disability and domestic abuse: Risk, impacts and response. https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/480942/Disability_and_domestic_abuse_topic_overview_FINAL.pdf

[8] Adding insult to injury: intimate partner violence among women and men reporting activity limitations. Cohen, M. et al. 8, 2006, Annals of Epidemiology, Vol. 16, pp. 644-651

[9] Prevalence of abuse of women with physical disabilities. Young, M. et al. 1997, Archives of Physical Medicine and Rehabilitation, Vol. 78, pp. 34-38.

[10] Partner violence against women with disabilities: prevalence, risk and explanations. Brownridge, D. 2006, Violence against women, Vol. 12, pp. 805-822.

[11] Women’s Aid. 2015. https://www.womensaid.org.uk/16-days-deaf-survivors-and-domestic-abuse/

[12] Hall J, Collins B, Ireland J, and Hundley V. (2016) Interim report: The Human Rights & Dignity Experience of Disabled Women during Pregnancy, Childbirth and Early Parenting. Centre for Midwifery Maternal and Perinatal Health, Bournemouth University: Bournemouth. http://www.birthrights.org.uk/2016/09/maternity-care-failing-some-disabled-women/

[13] UN Committee on the Elimination of Discrimination Against Women (CEDAW), Concluding observations of the Committee on the Elimination of Discrimination against Women : Great Britain, November 2014, available at: https://nawo.org.uk/wp-content/uploads/2015/09/CEDAW-concluding-observations-EHRC-and-NAWO.pdf

[14] Equality and Human Rights Commission. 2017. Being Disabled in Britain. https://www.equalityhumanrights.com/sites/default/files/being-disabled-in-britain.pdf

[15] Light, M., Grant, E. and Hopkins, K. (2013), ‘Gender differences in substance misuse and mental health amongst prisoners: Results from the Surveying Prisoner Crime Reduction (SPCR) longitudinal cohort study of prisoners’. https://www.gov.uk/government/collections/surveying-prisoner-crime-reduction-spcr

[16] UN Committee on the Elimination of Discrimination Against Women (CEDAW), Concluding observations of the Committee on the Elimination of Discrimination against Women : Great Britain, November 2014, available at: https://nawo.org.uk/wp-content/uploads/2015/09/CEDAW-concluding-observations-EHRC-and-NAWO.pdf

Solidarity message from grassroots Disabled People’s Organisations in the UK for people in #charlottesville

Intersectionality is a core consideration in everything we do at Sisters of Frida. In this case, we are very glad that other DPOs agreed to join us in this statement of solidarity to the people involved at #Charlottesville and in the light of what we see happening in the streets of the USA right now.

A statement of solidarity agreed by grassroots Disabled People’s Organisations in the UK for the people of #charlottesville

We, as grassroots disabled people’s organisations in the UK, are horrified by the violence we see in your cities and the racism and fascism that motivated it, and we are extremely concerned by the failure of the authorities to protect the people on your streets.

We have racism and fascism here in the UK too and we send you our absolute solidarity.

As disabled people, we see people of colour, people of ethnic minorities and immigrantsmany of whom are also disabled- being systematically abused and oppressed in our country by our own government, and its associated corporations and media.

In solidarity with the victims, their families and the city of Charlottesville (and other cities affected), we declare that racism and fascism, like misogyny, homophobia, transphobia, disableism and religious bigotry, should not be tolerated anywhere in the world.

signed by

Sisters of Frida

Disabled People against cuts (National DPAC)

Inclusion London

DPAC WM

Dudley CIL

Merton CIL

Black Triangle Campaign in Defence of Disability Rights(Scotland)

Manchester DPAC

Recovery In The Bin.

Alliance for Inclusive Education (ALLFIE)

Disabled International Residents (Disire)

 

If you want to add your (organisation) signature, please email [email protected]

At the European Parliament: Domestic violence against people with disability

 

2 semi circles of seated people facing each other with one woman in a bed chair lying down and man with hat at this end and interpreters signing in space between the semi circles

Photo of meeting from European Parliament Anti-Racism and Diversity Intergroup. http://www.ardi-ep.eu 

Sisters of Frida was asked to speak at an event hosted by Soraya Post MEP on Domestic violence against disabled people by the European Network of Independent Living (ENIL) on the 31st January 2017. Here is the speech from Eleanor Lisney ( a summarised version was given as the meeting ran out of time)

Having support for independent living is one of the fundamental needs of disabled people and the structural barriers of being able to exercise our rights is in our battles with social services, schools, higher education, housing, stigmas and discrimination and ableism.
four women around a table, 2 wheelchair users, one with Middle Eastern, one with East Asian looks, the other Caucasian with one in a bed chair lying down position.

with Nadia (ENIL), Eleanor (SOF), Freyja and Embla (Tabú)

It seems right that we should meet with ENIL member before the event  – Nadia Haddad and Tabú ‘s Embla Ágústsdóttir and Freyja Haraldsdóttir for drinks to talk before the event.

Embla and Freyja were giving their testimonies on behalf of  the next day on domestic violence against disabled people. Here is their speech for Tabú.

It is clear that a new definition of domestic violence in itself will not solve the social situation of disabled women and end domestic violence against us. That does not change the fact that by redefining domestic violence legally and in policy can change, for the better, the practices of the police, legal system, social services and violence support networks. Changing the definition does not have to shadow the gender-based approach, it should enrich it. This should not have to exclude tackling of other forms of violence, e.g. institutional violence and hate crime. More so it could draw upon the multiple and concurrent forms of violence that should be beneficial to disabled women and service systems. It could deepen the understanding of which kind of violence affects or actuate other kinds of violence as well as offering a better ground to analyse how structures and cultures encourage and minimize abuse in the lives of disabled women.”

 

We also met up with all four of the Disabled Survivors Unite co-founders from the UK – Alice Kirkby, Ashley Stephens, Holly Scott-Gardner and  Bekki Smiddy. Here is their blog of the day with a audio recording and transcript. There was much appreciation of their testimonies.

John Pring of Disability News Service wrote the article  ‘Cuts mean government ‘is complicit in high levels of domestic violence’ on their appearance.

Ana Peláez, the Chair of the European Disability Forum (EDF) Women’s Committee and a member of its Executive Committee spoke on the structual problems faced by disabled women and girls

So the first thing we need to say is that violence against women and girls with disabilities is structural violence that arises from the mere fact that when we talk about their specific situation they are not recognised as women or girls. This non-recognition means they are excluded from policies aimed at providing assistance and recovery for women victims of violence. (Another related topic is the accessibility of these services, but today we don’t have time to go into this.)

A second structural aspect of violence against women and girls with disabilities is that in many cases they are victims of legal incapacitation which takes place due to their gender. This incapacitation is part of the process to enable these women to be subjected to forced sterilisation without their consent, or without their realising what is being done to them. This practise is another type of domestic violence in some ways, because it is the families who, in violation of the CRPD and even article 39 of the Istanbul Convention, choose to sterilise their daughters to protect them against unwanted pregnancies. I don’t mean to blame the families; they are also victims of the healthcare system, which very often suggests this type of practise. Sterilising a woman means mutilating not only her reproductive capacity, but also her civil, political and economic rights. In addition, the only thing sterilisation achieves is to leave girls and women with disabilities even more exposed to sexual abuse and rape. Even worse, they are also unable to access justice to report the perpetrators or seek remedies, because they have been deprived of their legal capacity.

Here is the Ana Peláez EP  (Word doc) speech in full that she kindly send us.

 

It was wonderful to meet Madelen Löw from We Rise Again (Sweden) who spoke her powerful testimony

two women, one speaking, the other woman is listening

Madelen Löw with Judith Ward UK MEP

People who were involved with the event spoke of their willingness to have further collaboration on the topic – we hope so! We will continue to follow the discussions. There was much mention of the Istanbul Convention that we hope will be ratified soon by the UK.

More photos from the event at Flickr account

At the European Parliament Panel: Structural problems faced by disabled people, when accessing their full rights

Hearing hosted by MEP Soraya Post S&D : Domestic violence against people with disability

woman with blonde hair and black rimmed glasses. She has a notice that says Feminism in Europe

Soraya Post MEP

MEP Soraya Post invited the civil society, NGO’s and Members of the Parliament to a hearing regarding domestic violence against people with disabilities, in order to raise awareness and put the issue on the political agenda

For the panel on Structural problems faced by people with disabilities, when accessing their full rights, Eleanor Lisney spoke for Sisters of Frida and ENIL (European Network of Independent Living)

(a summarised version was given due to meeting running out of time )

Thank you very much to Soraya Post MEP – for this opportunity to speak.

Sisters of Frida is an experimental collective of disabled women. We want a new way of sharing experiences, mutual support and relationships with different networks.

We are seeking to build a/or different networks of disabled women.
We would like a sisterhood, a circle of disabled women and allies to discuss, share our experiences and explore possibilities. So at this moment we remain strictly a female group – female includes anybody who self identify as female.

  • – unfunded, we focus on issues specifically to do with disabled women –there is a gap in Women’s organisations and disabled people’s organisations
  • – advocate disabled women’s rights – we went to UN CEDAW examination with other UK women NGOs to Geneva and the UN CSW (Commission on Status of Women)
  • – we re part of ROFA – Reclaiming our Future Alliance for CRPD shadow report
  • – we have spoken on events on social justice, on intersectionality and on domestic violence
  • – we spoke for disabled women at the Global Summit to end sexual violence in conflict

The European Network on Independent Living (ENIL) is a Europe-wide network of disabled people,  Independent Living organisations and their non-disabled allies on the issues of Independent Living. ENIL represents the disability movement for human rights and social inclusion based on solidarity, peer support, deinstitutionalisation, democracy, self-representation, cross disability and self-determination

Speaking on structural problems when accessing full rights for disabled people, I would like to emphasise the importance of access –

  • Access to education – this includes sex education where disabled people are often excluded, and education is a key to being able to access rights, being aware of rights need you to be literate which leads on to
  • Access to information – including web accessibility, for knowing what’s happening and how, where, when to go to for help and make your voice known in consultations
  • Access to the built environment – physical access and independent living so that you are not trapped in your home or a residential place, having the right assistive equipment and care ( personal assistance.)
  • Access to justice – you can have the most wonderful legislation enshrining your rights but if you cannot get to them because you do not have the socio economic means, they would might as well not be there – legal aid is essential

Societal attitudes is also an impediment ie. Stigmas and societal discrimination (social model of disability)

Rashida Manjoo : UN special rapporteur on sexual violence said

  • “Violence against women needs to be addressed within the broader struggles against inequality and gender-based discrimination.” Rape and domestic violence do not occur in a vacuum, but within a culture shaped and influenced by issues such as normalised harassment in public spaces and the dehumanising objectification of women in the media.

Where disabled women are concerned, there is such a low expectancy to have relationships of any kind that they internalized a low esteem, supposing that they are ‘lucky’ to be in a relationship even if it is an abusive relationship and there is a real fear of care support being withdrawn.  Disabled women see violence and abuse as “part of life” : there are high levels of violence, with very low rates of reporting. Violence and abuse happen behind closed doors: at home, in day centres, in residential homes, in supported accommodation, in special hospitals and on mental health ward. Few disabled women access mainstream support services. There is also poor access to justice and often no response

A 2014 study found that only around 15% of rapes recorded by police as crimes resulted in rape charges being brought against a suspect. The research shows that more than 80% of people reporting rape to the Metropolitan Police are vulnerable to sexual attack (women with psychosocial disabilities and women with learning disabilities) but that these same vulnerabilities mean their cases are less likely to be result in a suspect being charged.

(see https://www.thebureauinvestigates.com/2014/02/28/revealed-why-the-police-are-failing-most-rape-victims/)

Professor Stanko’s (Professor Betsy Stanko 2014) research into how the Police deal with rape victims showed that women with mental health issues are 40 per cent less likely to have their case referred to the police for prosecution than women without mental health issues. Women with learning difficulties were 67 per cent less likely to have their case referred.

“These women face almost unsurmountable obstacles to justice, their rape is highly unlikely to carry a sanction, and in that sense, it is decriminalised.”

“Victim vulnerabilities effectively protect suspects from being perceived as credible rapists”.

Lastly, there is also the intersectional ( such as race, ethnicity, sexual orientation, gender identity and immigration status) ) aspect of structural barriers – access is about more than just ramps – my needs may be about faith or culture, or about how you explain things to me, or getting the right interpreter who uses sign language that I can understand. My barriers may be compounded if I am a Indian lesbian deaf wheelchair user for example.

Sisters of Frida works with StaySafe East in London who has years of experience working with disabled survivors. I suggest asking them for advice on best practice on helping disabled people caught in domestic violence.

Having support for independent living is one of the fundamental needs of disabled people and the structural barriers of being able to exercise our rights is in our battles with social services, schools, higher education, housing, stigmas and discrimination and ableism.

 

Thank you.

Eleanor Lisney

Group photo of participants after the event/hearing.

Group photo of some of the participants after the event/hearing, Embla, Freyja, Madelen, and Eleanor in the front row. Aaron Isrealson, one of the organisers is in the back row.

 

 

 

 

 

Cold, chaotic and claustrophobic at times – but we were there at the Women’s March last Saturday!

Group of women, 2 wheelchair users holding a banner with words 'Sisters of Frida Disabled Women's Collective, four other women standing behind

Arriving near Trafalgar Square at the end of the march

 

We sent out this press release on the day of the march

“Sisters of Frida are joining the Women’s March in solidarity with all those marginalised and threatened by the politics of hatred and division. Amongst the many statements that triggered women to march was the mocking of Serge Kovaleski, Pulitzer prize winning reporter for the New York Times, who is disabled.

“Whilst the march was not accessible for all disabled women, Sisters of Frida have been working with the Women’s Equality Party to ensure that disabled women are represented and access improved. Both the Women’s Equality Party and Sisters of Frida will be live streaming and tweeting from the Women’s March on London to open up this space to those unable to join us today.

“This is a powerful example of how a movement can amplify the voices of those who are often most marginalised. Disabled women are twice as likely to experience abuse compared to non-disabled women, and we are still fighting for the right to independent living. Disability hate crime is underreported and can go unrecognised.

“Disabled women too often face barriers to fully participating in politics. Today we are demanding that space. We know that disability can intersect with other marginalised identities – including race and ethnicity, sexual orientation, gender identity and religion. Today we march for a politics that includes all women. Tomorrow we will continue our work to amplify the voices of those women who are too often unheard.”

We had all intentions of meeting up and marching together with the Womens Equality Party but some of us were not well enough given the cold weather, impairment issues and sheer numbers of the people who turned up. It was very difficult to get together even if we manage to get in contact with our mobile phones. Negotiating through the crowds proved very difficult for many even those without a mobility impairment.

Reports of as many as 100 000 women were said to be there at the march and there was a feeling of being united together. There were some questions on the lack of intersectionality on the march and we were disappointed about the absence of the  disabled women voices.

We thank the Women’s Equality Party for their support.

 

Caucasian woman speaking to a East asian woman wheelchair user with many women carrying placards behind them

With Halla Gunnarsdóttir and the Womens Equality Party marchers

We were also joined by Liz Carr and Jo Church on the March. A few people send us messages of solidarity to say they could not come but to thank for representing them as disabled people/women.

More photos can be found at the Sisters of Frida’s Flickr account.

Joining the Women’s March London Saturday 21st January

Sisters of Frida are happy to march with the  Women Equality Party on Saturday. they are supporting us including helping with access needs so that we are able to march together.

They will have volunteers ready to support people with access needs on the day. If you need to contact us here is the mobile number you can contact 07453528706 – it might be better to text.

you can also contact us through twitter @sisofrida

see the access information provided by the organisers

And from the WEP

Getting there and getting away

  • Roads will be closed from noon to 17:00, so we suggest that you plan for delays if you are expecting to rely on buses or taxis
  • If you are traveling by tube please be advised that Green Park is the only nearby station that is fully accessible.  If buses are off this may mean you need to make your own way to Green Park tube station, which is slightly under a mile from Trafalgar Square
  • Please note that the Jubilee line will be closed on the day.

Buses (likely to be disrupted between 12noon and 5pm)

  • To reach Grosvenor Square (stops along Oxford Street near Bond Street Station): 6,7,10,13,23,73,94,98,137,139,159,189,390
  • To reach Park Lane: 2,10,16,36,73,74,82,137,148,414,436
  • To reach Green Park (stops along Piccadilly): C2,9,14,19,22,38

At the start

WE volunteers will be located at both drop-off points and can help guide you to the starting points, and we will also have a volunteer who can accompany you on the shorter march route if you wish

If you think you might need support, please make yourself known to a WE volunteer before the start.  We will be wearing a WE logo card on a lanyard so that you can identify us

During the march

Our volunteers on hand to help if you need any support and people at the back of our block looking out for anyone who needs some help

If you would like someone to buddy you on the march, just let us know.

(But check TFL travel alerts ,TFL, and TFL bus alerts )

And if you’re unable to march on Saturday? 

Join the livestreaming on the day  provided by Obi. WEP will also be livestreaming. Check their twitter feed too @WEP_UK

Changing Places toilets 

Not sure you can get into the Houses of Parliament on a Saturday to use the toilet.

Marchers taking the shorter route from Pall Mall

There is a shorter route joining the march from Pall Mall, and you are welcome to join the WE/Sisters of Frida block from this point. There will be a WE/Sisters of Frida point person at Pall Mall with a banner. The organisers have let us know that there are drop off points for people joining the march on Pall Mall from the north, at the bottom of Regent Street; from the south, Waterloo Place. There will be access stewards with green placards here. It is recommended that you arrive by 1.20pm to join the procession.

We hope you will join us – bring your family, childen, pets,  friends, PAs, support workers. We might not be many but we will be seen. But please self care is important, we totally understand if you cannot join the march.

Send us your photo – a very short message and we will tweet it during the march! on twitter or to [email protected]

 

 

 

End panel Brexit discussion

SISTERS FRIDA – DISABLED WOMEN’S VOICES FROM THE FRONTLINE

Blackfriars Settlement 9 July 2016

END PANEL DISCUSSION

Panel: Kirsten Hearn, Miss Jacqui, Pauline Latchen, Eleanor Lisney, Becky Olaniyi,

Jagoda Risteska, Jasmina Risteska, Annabel Crowley

Contributers: Michelle Daley, Dyi,

Eleanor introduced an update from Dyi. The Disability and Sexuality project that Djy

and Lani have piloted with an initial meeting last autumn has now got funding to go

ahead. The next meeting will be in July at the New Union Church Hall and thereafter

every month. The project will provide a safe space to discuss issues around

disability and sexuality. More information and details are listed on the Sisters of

Frida website.

Annabel noted that the day had involved lots of interesting and powerful

conversations. The Brexit vote had provided a focus for discussion: the situation

was already difficult before we faced leaving the European Union and things will be

likely to get more difficult: now is the time to make sure we have a voice.

Eleanor commented that if she had not been at this event, she would have been at

Conway Hall to support a rally of Black Activists Against Racism to protest against

spending cuts. As she was unable to attend that rally, Eleanor had written a letter of

support and solidarity which she read out.

Annabel asked everyone what were their concerns in the light of Brexit.

Becky said that she felt there was not a lot of clear information about Brexit,

especially for young people; they should have had an opportunity to contribute and

make decisions. Older people believed that leaving the EU would mean that the

money saved would be paid into the NHS etc. Young people had mainly voted to

remain in the EU but were not really clear why – and people needed to be clear

about that.

Dyi raised the issue of being an EU citizen living in the UK going forward. We need

to think about the reality of that situation, for example in relation to people’s status

with the NHS. This is a real issue for EU citizens in the UK who rely on the NHS –

though of course it may be different for those who don’t. However, Dyi pointed out,

there is also a lot of inequality in relation to healthcare within the rest of the EU.

Annabel asked if Dyi would be looking for wider consultation with EU migrants to

have more information about the implications of Brexit for them. Dyi replied that she

is looking into the legal implications and building up an information bank on relevant

services as a resource which she will be happy to share with others.

Michelle said that we don’t know what the future will look like. She had voted to

remain in the EU, and there was not, had not been, enough information about what

Brexit would look like, or how our lives will be changed by it.

Kirsten said that the whole Brexit campaign had been based on lies, especially about

the NHS and migration. Secondly, all the years of austerity have influenced people,

especially poorer people: these people see migrants and refugees as competing with

them for jobs, services and benefits and these myths are further spread by

politicians, who paint migrants as lazy scroungers. Migrants enrich our country,

however, and it is not true that all migrants come to Britain to claim benefits rather

than to work. Kirsten said that in her local community there has been an increase in

racial hate crime and that the referendum result is advisory rather than mandatory

and parliament should act accordingly. The government should now consider what

things can stay the same and what should change: for example things like

wheelchair spaces on buses and braille labelling, these sorts of things should stay.

Michelle said that when her parents came to the UK, there were signs in public

spaces saying ‘No dogs, no Irish, no Blacks’ and we are going back to those days

and with the same discrimination against disabled people.

Miss Jacqui said that the people who had voted to leave didn’t really know what they

were voting for. Whatever political party is in power, disabled people – disabled

women especially, will be at the bottom of the agenda. Politicians don’t consider

that the decisions they make now will still affect us in ten years’ time. Starting a new

political party is the only solution. She was not happy with David Cameron as prime

minister but is not happy at what may follow his resignation. We need to find and

develop our voice and consider where does it feel safe to talk.

Becky said so many politicians are leaving their jobs, and Michelle said it was their

job to have a plan (going forward). Becky said politicians exist in a bubble, all this

doesn’t affect them, they don’t think: it’s about the money they can make, the secret

deals and they only think about what affects them. Kirsten said she felt quite

depressed now.

Annabel said we do have voices however we express ourselves. How do we build

and expand on safe spaces to express ourselves? Kirsten said that we need to talk

to the communities that voted for Brexit, especially poor people, people who are

alienated. She is trying to talk to people in her street who voted leave, to try to

understand why they did – we haven’t listened to them in the past. One issue is

employment: people going for jobs, not that skilled, which go to migrants: ‘They’re

taking our jobs’. That, and well qualified people paid low wages for jobs they’re over-

qualified for and all the time the right-wing press reinforce the view that migrants are

to blame.

Dyi said that there is a history of colonialism, racism and imperialism and we should

consider what Sisters of Frida can do to support each other. Annabel said we should

consider what resources – communities and spaces – we can build on and share.

Pauline said that wages are being driven down but it’s not the fault of migrant

workers: low wages here are better than what’s on offer in their own countries. We

should blame the government and business owners, not the migrants. Miss Jacqui

said that some people are really picky about what jobs they will take: if you really

want a job you’ll take anything, you will find a job. Blaming migrants is just an

excuse. Michelle said the government is using a tactic of divide, rule and conquer

and what happened in the referendum is just history repeating itself.

In conclusion, Annabel said the discussion could continue on line: this is one way we

can add disabled women’s voices to the discussion. Maybe there could be a Brexit

forum page on the SOF website; a lot of disability rights have come from the EU and

therefore the discussion could link in disabled friends in Europe.

All present were invited to pass on their email addresses to receive further updates.