Sisters of Frida Home

Bringing disabled women together, mobilising
and sharing through lived experiences

Privacy Notice

Sisters of Frida CIC is a company incorporated in England and Wales with registered number 09130114 whose registered office is WRC United House, North Road, London, N7 9DP (“SOF”).

SOF is responsible for and (our “Websites”).

Please read this notice carefully. Your use of our Websites signifies your agreement and consent to this notice. If not, please discontinue your use immediately.

This notice describes the type of personal data we collect and how we may use and share that data. The term “personal data” means information about an identifiable individual which includes name, address, email, telephone number and other information relating specifically to an individual.

 How We Share Personal Data

 We never sell or otherwise share your personal data, subject to two specific exceptions:

  • We may share your personal data with service providers, employees or contractors (paid or unpaid) that we have retained to perform services or work on our behalf. They are provided only with the personal data they need to perform their functions and can only use and disclose such personal data as is necessary to perform services on our behalf or to comply with legal requirements.
  • In addition, we may disclose your personal data (i) if we are required to do so by law or legal process, (ii) to law enforcement authorities or other government officials, or (iii) when we believe disclosure is necessary or appropriate to prevent physical harm or financial loss or in connection with an investigation of suspected or actual illegal activity.

Why do we collect data?

SOF is a not-for-profit company which was established as a community interest company (CIC) with a Steering Group. We want a new way of sharing experiences, mutual support and relationships. We send out electronic communications to and for the benefit of self-identified disabled and allied women to promote opportunities and seek feedback on initiatives and activities.

What we collect

We may collect the following information:

  • name
  • contact information including email address
  • demographic information such as postcode, preferences and interests
  • other information relevant to surveys, offers and/or events.

You may provide personal data when you attend one of our events, visit our Websites, contact us and respond to research/surveys. If you choose not to provide us with your personal data you may not be able to access some of the opportunities we facilitate (eg free workshops) or information we share (eg government consultations).

If you communicate with us through any link on our Websites, we may ask you for your personal data so we can respond to your questions and comments.

Newsletters And Other Communications

On our Websites (or otherwise following direct communication with us) we may sign you up to receive our newsletters and other communications. Your personal data is used by us to send you those communications. Details of how you may opt-out of receiving some or all communications from us are described in the “Your Preferences” section below.


 When you book onto and/or attend one of our events we may collect your personal data and record your interest/attendance in that event. Given the need for us to demonstrate value for money from our funders, it’s important for us to demonstrate consultation and engagement with disabled and allied women. We never disclose the names/contact details of anyone who attends our events.

Other Data We May Collect Automatically

 When you visit our Websites, we may automatically collect certain personal data that we then aggregate so that it is not linked to a single, identifiable individual. This information provides us with statistics such as how many users visited our site and which pages were accessed. By collecting this information, we learn how to best tailor our Websites. We may collect this information either through “log files”, “cookie” technology or with “web beacons”, as explained below.

Log Files

Log files are web server files (such as the domain name or IP address, URL, the http response code, the Website from where you visit us or the date and duration of your visit) that are automatically created when an Internet user visits a site. Once you stop using our Websites, we process and use this information only to enable further connections, for billing purposes, to detect disruptions to telecommunication equipment and to detect abuse of our telecommunication services.

This information is used to create general aggregated profiles of our Websites’ user base and is not used to create personalised user profiles. In case of disruption or misuse, we reserve the right to file a report with law enforcement agencies. We do not use this information for any other purpose(s) and do not share this information with any third parties, except as set out in the section titled “How We Share Personal Data” below.


Like many organisations, we use “cookies” or similar objects on our Websites. Cookies are bits of text that are placed on your computer’s hard drive when you visit certain websites. We use cookies to tell us, for example, whether you have visited our Websites before or if you are a new visitor and to help us identify site features in which you may have the greatest interest. Cookies may enhance your online experience, for example, by remembering your passwords and viewing preferences, while you are visiting a particular site.

The majority of browsers are initially set up to accept cookies. The toolbar on most browsers will have a feature to tell you how to stop accepting new cookies, how to receive notification of new cookies, and how to disable any existing cookies. Please note, however, if you do disable, reject or stop cookies, you may not be able to take full advantage of all our Websites’ features and services we would like to offer you.

Web Beacons

Certain pages on our Websites may contain “web beacons” (also known as Internet tags, pixel tags and clear GIFs). These web beacons allow third parties to obtain information such as the IP address of the computer that downloaded the page on which the beacon appears, the URL of the page on which the beacon appears, the time the page containing the beacon was viewed, the type of browser used to view the page, and the information in cookies sent by the third party.

Where Your Personal Data May Be Transferred Or Stored

Your personal data will be processed in the United Kingdom and/or in other states of the European Economic Area (EEA). SOF has taken reasonable steps so that personal data it collects receives an appropriate level of data protection.

Links To Other Websites

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.

How We Protect Your Personal Data

We maintain administrative, technical and physical safeguards to protect against loss, misuse or unauthorised access, disclosure, alteration or destruction of the personal data you provide to SOF.

Access And Correction

You may request details of personal information which we hold about you under the Data Protection Act 1998. A small fee will be payable. If you would like a copy of the information held on you please email If you believe that any information we are holding on you is incorrect or incomplete, please email us as soon as possible and we will promptly correct any information found to be incorrect.

Your Preferences

 If you would like to update your contact details and preferences, or to tell us you no longer want us to process your personal data, you may email us at

If you ask that we stop using your personal data, we take reasonable steps and honour that request. However, we will retain records of your personal data as needed in order to comply with applicable law.

Updates To Our Privacy Notice

 We may change this policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes.

How To Contact Us

If you have any questions or comments about this Notice, or if you would like us to update the personal data we have about you or your preferences, please contact us by sending an email to or use the contact us form.

Last updated: 2 March 16

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