Bringing disabled women together, mobilising
and sharing through lived experiences

Participants at a previous Sisters of Frida event

New peer led skills development course for disabled women

(Start date  and venue TBD probably end of June)

Sisters of Frida is proud to announce a new peer led skills development course for disabled women.

Following our successful projects ‘Disabled women’s voices from the frontline‘ and Disability and Sexuality, Rosa funding is funding us to further develop disabled women’s skills and leadership in a space led by and for disabled women. This exciting project will span 12 months and will give the participants opportunities to

• develop facilitation skills
• presentation skills
• and research skills
• identifying your own specific skills

The project will be split into two parts. The first part will consist of three sessions aimed at building facilitation skills and confidence for the participants we will then go on to design a further seven sessions tailored specifically to the needs of the group and individuals within the group. You will have a mentor who will support you in gaining skills in the area of work which you are interested in you will then share the skills and knowledge through a facilitated workshop designed and facilitated by you.

Ideas for topics include

• disabled women and domestic violence
• sexuality and disabled women
• building campaigns and spaces wich work for all disabled women
• working with disabled young people
• arts and self-expression
• re thinking work for/with disabled women
• building support networks in challenging interpersonal violence

The list is not exhaustive and will be led by the participants. There are limited spaces on this program, please get in touch if you are interested to hello@sisofrida.org

Reposted from Kirsty Liddiard’s blog with kind permission.

Last night I was lucky enough to be invited to introduce Sins Invalid’s film, An Unshamed Claim To Beauty? The film was screened as part of Dis/Cinema, University of Sheffield, which facilitates film screenings with themes of dis/ability, mental health, difference, and otherness. Check out its work here and follow Dis/Cinema on Twitter at @DisCinema. Below I share my introduction and slides. Not surprisingly the film instigated some powerful discussion which followed themes of privilege/power and race, class, gender and nation; the beauty industry and the economics of (bodily) shame; how we culturally come to be repulsed by otherness through fear; and our own experiences of being/enacting the spectacle of disability. A big thanks to Dis/Cinema and everyone who came along to contribute to such a stimulating night.

Introduction

When I got invited to facilitate this session, my immediate thought was, how on earth does one introduce Sins Invalid? What can I possibly say that can prepare you for the transgressive beauty that you’re about to witness in its Kickstarter-funded film, An Unshamed Claim To Beauty?

So I thought I’d begin with a story of the first time I saw Sins Invalid. It was live, at the Art Gallery of Ontario (AGO). I had just graduated my PhD, in which I’d spent three years working with disabled people to tell sexual stories, and moved to Toronto in order to undertake my first postdoctoral position at the wonderful School of Disability Studies at Ryerson University.

This was a massive move for me, particularly culturally, as I’m from Milton Keynes, which, as much as I love it, really is where culture goes to die*. Everything I saw that first week of living in a new country, far from home, was new, rich, and vivid. But seeing Sins Invalid, and sitting with its audience, opened me up to the possibilities of politicising pleasure, (or disabled people’s lack of intimate justice to pleasure, sexuality and love), through art for the first time; that art, politics and power enable silenced stories to be ‘loosed into the world’. These threads have persisted through my own research since that very night.

So what does it mean to “politicise pleasure”, and why is it important to advocate for disability justice, the politic centred in the work of Sins Invalid? Activist Mia Mingus describes disability justice as a truly collaborative and intersectional movement that brings the body back in; as that which proudly centres accessibility; and which shatters the inherent Western, ableist and neo-colonial myth of independence. Patty Bearne, Co-Founder and Director of Sins Invalid, defines disability justice like this:

‘A Disability Justice framework understands that all bodies are unique and essential; that all bodies have strengths and needs that must be met. We know that we are powerful not despite the complexities of our bodies, but because of them. We understand that all bodies are caught in these bindings of ability, race, gender, sexuality, class, nation state and imperialism, and that we cannot separate them. These are the positions from where we struggle. We are in a global system that is incompatible with life. There is no way stop a single gear in motion — we must dismantle this machine. Disability Justice holds a vision born out of collective struggle, drawing upon the legacies of cultural and spiritual resistance within a thousand underground paths, igniting small persistent fires of rebellion in everyday life. Disabled people of the global majority — black and brown people — share common ground confronting and subverting colonial powers in their struggle for life and justice. There has always been resistance to all forms of oppression, as we know through our bones that there have simultaneously been disabled people visioning a world where we flourish, that values and celebrates us in all our myriad beauty’.

(Bearne, 2015)

http://sinsinvalid.org/blog/disability-justice-a-working-draft-by-patty-berne

For me, Sins Invalid offers us a new lens through which to come to know, see, and feel bodies in ways counter to the dominant culture. It makes space to think about bodies, self and desire in affirmative ways – that bodies with what disabled feminist Susan Wendell (1996:45) calls ‘hard physical realities’ – bodies that droop, sag, spit, dribble, spasm, ache and leak in ways deemed inappropriate (Liddiard and Slater, fc; Morris 1989; Leibowitz 2005) and minds that confuse, forget, hallucinate, or take longer to learn are not non-human or subhuman, but can open up new ontologies of pleasure and alternative economies of desire.

Disabled people have long had their intimate citizenship and justice deprioritised – dominant discourse renders our sexual lives, selves and bodies at best as unimportant, secondary to things like housing, care, education, and legislation; as if civil life is detached from intimate life; like the personal isn’t political. We might think, in the current age of austerity, where in the UK and beyond, successive governments have served to denigrate disabled people, our communities and our families, that access to sexuality and intimacy is of lesser importance. That in a new world order controlled by Trump, May, LePenn and others, sexuality becomes, once again, the very least of our worries.

But austerity, neoliberal-ableism and global instability inevitably proffer new forms of precarity that drive us, at best, back into the normative body and self: meaning now is the time to politicise the impacts of such forces in our intimate lives; to claim, as the wonderful Tobin Seibers affirms, a sexual culture of our own.

Asserting, celebrating and living our own pleasures at this time in our history offers radical counter narratives. We can affirm the vibrancy of disability life through pleasure and desire in the face of social and literal death that austerity brings to our communities, and at the same time chip away at the normative boundaries of human pleasure which deem it unnecessary and grotesque for a range of marginalised bodies: disabled, fat, queer, Crip, black and POC, and genderqueer and Trans bodies. It is important, in times of such existential precariousness, that pleasure and sensuality (regardless of their form) are not relegated to luxury, but are means of survival and thus necessary for creativity, vitality and disability future.

I want to end with the words of the wonderful Eli Clare (2002: no pagination). Words which speak to the very bringing together of pleasure, politics and power that Sins Invalid demands: ‘I want to read about wheelchairs and limps, hands that bend at odd angles and bodies that negotiate unchosen pain, about orgasms that aren’t necessarily about our genitals, about sex and pleasure stolen in nursing homes and back rooms where we’ve been abandoned, about bodily—and I mean to include the mind as part of the body—differences so plentiful they can’t be counted, about fucking that embraces all those differences. It’s time.’

Thank you: here is Sins Invalid. See the trailer and buy the film here.

* Sorry to those who live in/love MK – I do – but it ain’t no Toronto for culture…

“Aesthetic Experience ” Allison Estergard (acrylic on canvas0. Showing this month at International Gallery of Art, Alaska, US (Photo courtesy IGCA)   Text – Sins Invalid: An Unashamed Claims to Beauty, Dr Kirsty Liddiard Research Fellow, The School of Education
Email: k.liddiard@sheffield.ac.uk Twitter: @kirstyliddiard1    https//kirstyliddiard.wordpress.com
: https://www.sheffield.ac.uk/education/staff/academic/kliddiard

Disability Justice – A Disability Justice framework understands that all bodies are unique and essential, that all bodies have strengths and needs that must be met. We know that we are powerful not despite the complexities of our bodies, but because of them. We understand that all bodies are caught in these bindings of ability, race, gender, sexuality, class, nation state and imperialism, and that we cannot separate them. These are the positions from where we struggle. We are in a global system that is incompatible with life. There is no way stop a single gear in motion — we must dismantle this machine. Disability Justice holds a vision born out of collective struggle, drawing upon the legacies of cultural and spiritual resistance within a thousand underground paths, igniting small persistent fires of rebellion in everyday life. Disabled people of the global majority — black and brown people — share common ground confronting and subverting colonial powers in our struggle for life and justice. There has always been resistance to all forms of oppression, as we know through our bones that there have simultaneously been disabled people visioning a world where we flourish, that values and celebrates us in all our myriad beauty.” (Bearne 2015) http://sinsinvalid.org/blog/disability-justice-a-working-draft-by-patty-berne

‘I want to read about wheelchairs and limps. hands that bend at odd angles and bodies that negotiate unchosen pain, about orgasms that arent necessarily about our genitals, and sex and pleasure stolen in nursing homes and back rooms where we’ve been abandoned, about bodily – and I mean to include the mind as part of the body – differences so lentiful they cant be counted, about fucking that embraces all those differences. Its time.’ (clare, 2002:no pagination)

Discussion... In what ways did the film surprise you or touch you? what was your favourite part/scene in the film? Why? Was there anything about the film you didnt like or agree with? In what ways did the film make you think about disability, sexuality and/or activism in a different way to before? In what ways in current society are we made to feel shame about our bodies, disabled or not? How can we make (more) space for the arts, performance, activism, solidarity and justice in the Academy? In what ways might we enact disability justice – an appreciation that ‘all bodies are unique and essential and that all bodies have strengths and needs that must be met (Bearne 2015) – in the Academy/Higher Education?

—–

After the 4 workshops on disability and sexuality, Sisters of Frida is presenting films which explore themes of disability and sexuality.

Films to make you:  Think, feel, laugh, shake, desire and more…..

With food and discussion

Please note the films contain controversial themes, they also contain scenes of nudity and frank explicit discussion of sexual acts and sexual desire as well as scenes depicting violence.

Date and Time

Sat 26 November 2016, 12:00 – 17:00 GMT

Location

Disability Action In Islington, unit 3 Marquess Estate

St Paul’s Road, London N1 2SY

View Map

Please register at the event brite  or write to sof.disabilitysexuality@gmail.com

Margarita, with a straw 

(A rebellious young woman with cerebral palsy leaves her home in India to study in New York, unexpectedlyfalls in love, and embarks on an exhilarating journey of self-discovery.

With Kalki Koechlin, Revathy, Sayani Gupta)

and Sins Invalid

Sins Invalid: The film

(“Sins Invalid is a performance project on disability and sexuality that incubates and celebrates artists with disabilities, centralizing artists of color and queer and gender-variant artists as communities who have been historically marginalized from social discourse”)

Please register at the event brite 

or write to sof.disabilitysexuality@gmail.com 

Last night one of my new colleagues expressed surprise on  mention of my children – she said she had no idea I had children. She did not mean it to be malicious but the fact I have children prove surprising to most folks. I think, to be brutally honest, most people do not expect disabled people to be sexual beings let alone have offspring.

And for disabled women it is doubly problematic. Consider the stereotype of being a woman –as a caregiver, as a sex object, mother, housekeeper – you get the picture? Many of those roles are not seen to be within the capacity of disabled women. All the media, films of disability and sexuality are from the perspective of disabled men where they have their needs fulfilled by non-disabled women. Examples, Me Before You (even if he did not think it was enough to keep him living), The Sessions, there not many based on the needs of disabled women (excluding Children of a Lesser God).

There is not much space afforded to disabled women on sexuality and how to factor in disability in the search for companionship, romance, relationships and sex. The narratives are missing. I was made aware how much so when I joined the group of women who went to the first workshop (there are a series of four workshops) lead by Sisters of Frida steering group members, Lani Parker and Dyi Huijg, on Dis/ability and Sexuality. This workshop was titled Crip Sex, Because We Want It Our Way

As disabled women we have a wide range of experiences, positive and negative, around disability, sex and sexuality. Disabled women are sexy, sexual, passionate, loving, caring, desirable, hot, beautiful, strong and much more! Our experiences of sexuality are also affected by different kinds of oppressions such as ableism, racism, sexism, heteronormativity, classism and age.

In this workshop we will explore what sex means for us as disabled women, non-normative sex, positive self-image, exploring sex alone and sex with others

I felt we really shared our experiences as disabled women intersected by faith, culture, and sexual orientation. We examined the differences with impairments, acquired and from a young age, we spoke about chronic illnesses, the barriers and effects of medication and age. Does sex alleviate pain, do we/should we have sex when we are in pain? We compared the attitudes of social workers, medical practitioners and partners – in and out of relationships, domestic abuse from families, society and community pressures.

I cannot wait for the next session. I hope more people will come to visit this wonderful space where we afford each other sisterhood and non-judgemental sharing.

workshops

Themes and dates of the workshops

Workshop 1: Crip Sex, Because We Want It Our Way (finished)

In this workshop we will explore what sex means for us as disabled women, non-normative sex, positive self-image, exploring sex alone and sex with others.

Date: Sat 30 July

Time: 12-4pm

Workshop 2: When It Doesn’t Feel Good and It Isn’t Right

In this workshop we will discuss negative experiences and difficulties we have around sex and sexuality, our boundaries, consent, privacy and ableism in relationships.

Date: Sat 27 Aug

Time: 12-4pm

Workshop 3: Disabled Desire: Sexy and Sensual Possibilities

In this workshop we will discuss positive experiences we have and want to have around sex and sexuality, pleasure, and what it means to desire and be desired.

Date: Sat 17 Sept

Time: 11.30-3pm

Workshop 4: Sex: Getting What You Want and Need

Here we will build on the other workshops, and discuss how to develop confidence and feel empowered to do and want sex differently, challenge internalised oppression and other obstacles, and talk about how to put our desires and needs into practice.

Date: Sat 22 Oct

Time: 12-4pm

this project was funded by

— ——

Eleanor Lisney is a founder member and coordinator of Sisters of Frida. She is an access advisor, an NUJ member on the New Media Industrial Council and the Equality Council. She is also on the British Council Disability Advisory Panel and the web team of the International Network of Women with Disabilities.

Disability & Sex/uality project         

Invitation

We are delighted to announce that we are now able to continue the Disability and Sex/uality project that we started in September 2015. This phase of the project will consist of four workshops, each with a different theme. These workshops are for self-identified disabled women who want to create a space to talk about disability, sex and sexuality. It would be ideal if you can attend all the workshops, but if you prefer, you can just come to the ones you want. We would love to see you there!

Please RSVP now for the Disability and Sex/uality meeting on 30 July 2016, 12-4pm, London. (sof.disabilitysexuality@gmail.com)

The project

The idea for this project came out of a screening of the documentary AccSex, which showed how a group of disabled women in India experience their sexuality. We at Sisters of Frida, a disabled women’s cooperative, felt the need to create a space where we can safely discuss our sexuality in a supportive and empowering environment.

As disabled women we have a wide range of experiences, positive and negative, around disability, sex and sexuality. Disabled women are sexy, sexual, passionate, loving, caring, desirable, hot, beautiful, strong and much more! Our experiences of sexuality are also affected by different kinds of oppressions such as ableism, racism, sexism, heteronormativity, classism and age.

Themes and dates of the workshops

Workshop 1: Crip Sex, Because We Want It Our Way

In this workshop we will explore what sex means for us as disabled women, non-normative sex, positive self-image, exploring sex alone and sex with others.

Date: Sat 30 July

Time: 12-4pm

Workshop 2: When It Doesn’t Feel Good and It Isn’t Right

In this workshop we will discuss negative experiences and difficulties we have around sex and sexuality, our boundaries, consent, privacy and ableism in relationships.

Date: Sat 27 Aug

Time: 12-4pm

Workshop 3: Disabled Desire: Sexy and Sensual Possibilities

In this workshop we will discuss positive experiences we have and want to have around sex and sexuality, pleasure, and what it means to desire and be desired.

Date: Sat 17 Sept

Time: 11.30-3pm (note the different time!)

Workshop 4: Sex: Getting What You Want and Need

Here we will build on the other workshops, and discuss how to develop confidence and feel empowered to do and want sex differently, challenge internalised oppression and other obstacles, and talk about how to put our desires and needs into practice.

Date: Sat 22 Oct

Time: 12-4pm

Registration

The topics we will discuss can be sensitive. For this reason, please contact us directly to register and discuss participation as this will be a closed meeting: sof.disabilitysexuality@gmail.com. Note that places are limited, please get in touch as soon as possible. Deadline for registration for the first workshop (30 July) is 15 July.

Accessibility and needs

The venue is large and wheelchair accessible. There is an accessible toilet, but without a hoist. There is a kitchen people can use for quiet-time. Please get in touch as soon as possible if you need BSL or if you have other access needs. If you have any concerns or queries about the nature of what might be discussed in the workshop and how it could relate to your experiences, please get in touch. Please note that this is a peer-support group, so we cannot offer professional support.

Other details

Where: New Unity Islington

Address: 277A Upper Street, Islington, London, N1 2TZ

Contact: sof.disabilitysexuality@gmail.com

Deadline for registration: 15 July 2016

Accessibility: please get in touch to discuss your needs as soon as possible

Funded and supported by

This is a call for Papers for the Lancaster Disability Studies Conference 2016

The foundational text, The Sexual Politics of Disability, was ‘the first book to look at the sexual politics of disability from a disability rights perspective’ (Shakespeare, Davies and Gillespie-Sells, 1996: 1). Ground-breaking in its contents and its approach, the sexual stories contained within the covers of the book – told by disabled people themselves – challenged the prevailing myth of asexuality and other tropes which render disabled people as perverse, hypersexual, or as lacking sexual agency.

Despite this scholarly activism, the sexual, intimate, gendered, and personal spaces of disabled people’s lives remain relatively under-researched and under-theorised in comparison to other spaces of their lives. Rarely are disabled people themselves authors or co-producers of this work. Where austerity policies dominate, we are unsure of how this impacts the possibilities for intimacy and relationships. Conversely, we lack evidence about the impact of the UN Convention on the Rights of Persons with Disabilities. Significant gaps remain in our knowledge of disabled people’s experiences of sex, love and relationships, then, often in marked areas.

This inaugural sexuality stream marks the 20th anniversary of The Sexual Politics of Disability (1996). In this stream, we aim to celebrate and encourage the broad bodies of work that have emerged within the ever-expanding field of disability studies, gender studies and sexuality studies. For this stream, we will prioritise papers containing original social research, as a response to the relative dearth of empirical work within the field.

We are thrilled to have Don Kulick, Distinguished University Professor of Anthropology at Uppsala University, Sweden, as keynote speaker. His books include Travesti: sex, gender and culture among Brazilian transgendered prostitutes (1998), Fat: the anthropology of an obsession (2005, edited with Anne Meneley), Language and Sexuality (2003, with Deborah Cameron) and most recently Loneliness and its Opposite: sex, disability and the ethics of engagement (2015, with Jens Rydström).

We welcome papers on the following themes:

1. Identity and imagery: masculinities, femininities, Queer and Trans* identities
2. Intersections of gender, race, sexuality, class, nationality, age, and religion/faith/spirituality.
3. Sex education and sexual health
4. HIV/AIDS
5. Pleasure, sensuality and desire
6. Sexual and bodily esteem, confidence, self-worth and self-love
7. Impairment, embodiment and corporeality
8. Psycho-emotional disablism
9. Barriers to sexual expression
10. Youth
11. Parenting
12. Learning disability and sex/uality
13. Mental health, distress and intimacy
14. Intersections of personal assistance, residential and social care, and intimacy
15. Sex work and sex industries
16. Sexual, emotional and intimate-partner violence
17. BDSM, kink, and fetish
18. Online and cyber sexuality
19. Sexual drugs, enhancements and technologies
20. Human rights law and disabled sexualities
21. Researching sex/uality: data collection, methodology and analysis
22. Theoretical contributions: Critical Disability Studies, Feminist disability studies; Queer Theory; Crip Theory; Posthuman and DisHuman studies.

Contributions that reflect on any of these themes are invited from academic and non-academic researchers, scholars, activists, and artists. These themes are indicative only, and we will consider proposals that fall outside them so long as these relate to the overall conference stream. We welcome offers of traditional academic papers (20 minutes max) and also welcome proposals and presentations in alternative and/or creative formats (e.g. film, animation, poetry). Submissions should be made through easychair and please specify you wish to be considered for this stream.

If you have any other questions, don’t hesitate to get in touch with Kirsty: k.liddiard@sheffield.ac.uk.

Please see here for the Mad Studies stream and here for the main conference call for papers.

Kirsty Liddiard is on Sisters of Frida’s Steering Group. She is currently a Postdoctoral Research Associate within the Centre for the Study of Childhood and Youth,  at the University of Sheffield, working on a transdisciplinary research project entitled Transforming Disability, Culture and Childhood: Local, Global and Transdisciplinary Responses. Prior to this post, she was the inaugural Ethel Louise Armstrong Postdoctoral Fellow at the School of Disability Studies, Ryerson University, Toronto, Canada.